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Author Topic: Did SSD Hearing Device help with Tinnitus???  (Read 848 times)
Denise S
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« on: February 06, 2010, 10:49:00 AM »

This question is more aimed towards those post surgery that had SSD and tinnitus.

If you have had both and got a Hearing Device, have you noticed it helping decrease the tinnitus??

I ask this after reading something on a website www.askdocweb.com/tinnitus.html


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www.thesanfordadventures.blogspot.com
W&W 2 1/2 yrs. (due to watching a different brain tumor...stable)
Left AN: about 1cm (grown for sure during 2 1/2yr.) removed,
MIDDLE FOSSA  11/9/09;  Michigan doctors Pieper & Zappia;
delayed onset of facial paralysis lasting 3-4 weeks only;  left SSD
leapyrtwins
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« Reply #1 on: February 06, 2010, 11:40:52 AM »

I am SSD and have a BAHA.  Fortunately, I don't suffer from tinnitus - didn't prior to my surgery either.

My doc told me that a BAHA wouldn't affect tinnitus either way.  Wouldn't cause it, wouldn't eliminate it, wouldn't make it worse.

But that was just a BAHA.  I don't know about conventional hearing aids.

Jan
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Retrosigmoid 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
AN 2.5+ cm left side (1.5 cm @ diagnosis 6 wks prior) SSD.  BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
JerseyGirl2
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Posts: 442


« Reply #2 on: February 07, 2010, 09:29:07 PM »

This question is more aimed towards those post surgery that had SSD and tinnitus.

If you have had both and got a Hearing Device, have you noticed it helping decrease the tinnitus??


I am SSD and had tinnitus before and after surgery. I wear a BAHA and it has no effect whatsoever on tinnitus. I understand that many doctors want to make sure that patients who are considering BAHAs, TransEars, etc. fully understand that these devices will not "cure" their tinnitus issues. On the other hand, they don't make the tinnitus any worse!

Catherine (JerseyGirl 2)
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Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ
Shelley G
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« Reply #3 on: February 07, 2010, 10:30:54 PM »

I am trying out a conventional hearing aid- had it about 2 weeks now-  I have about 25% hearing in my right ear. I now have tinnitus after having gamma knife- but did not before. I was afraid the hearing aid would make the noise worse, but it doesn't- the noise gets louder as the day goes on- some nights just feels like its screaming, which makes hearing more difficult because of the distraction it causes, but overall doesn't appear to be interfering with the sounds and speech I now realize I was missing.
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2.9cm
Gamma Ray Knife Surgery April 2009
25% hearing in right ear- conventional hearing aid Jan/10
balance issues- but getting better
sunfish
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« Reply #4 on: February 22, 2010, 10:20:15 AM »

I'm still "pre-treatment."  But I've had a hearing aid for six months, and it gets rid of my mild tinnitus completely.  The only time I have tinnitus is at night, when I take the hearing aid off.
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Rt. side 14mm x 11mm near brain stem
Mild to moderate hearing loss (conductive loss too, from otosclerosis)
I use a hearing aid (Dot 20 by Resound)
Diagnosed January 2010
Cyberknife March17, 2010
Roper Hospital Cancer Center, Charleston, SC
Mei Mei
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Posts: 350


« Reply #5 on: February 24, 2010, 09:44:04 AM »

What hearing aid is this that gets rid of the tinnitus?   This is very interesting?

Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
moe
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« Reply #6 on: February 24, 2010, 09:59:25 AM »

I wish there was a hearing aid that gets rid of tinnitus!
I had the BAHA put in with the surgery, because I knew I would lose my hearing. Tinnitus before surgery worsened after surgery with the SSD.
I don't think the BAHA made the tinnitus worse. It was already pretty screamy.
SO I have the BAHA on hold right now. Abutment unscrewed, but can be activated again when I feel up to it.

So my answer Denise is- I was just more keenly aware of my severe tinnitus with my BAHA after surgery! Shocked I'm willing to try it again tho some day.
Maureen Smiley
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06/06-Translab 3x2.5 vascular L AN - MAMC,Tacoma WA
Facial nerve cut& reanastomosed.Tarsorrhaphy.SSD
11/06. Gold weight, tarsorrhaphy reversed
01/08- nerve transposition-12/7  UW Hospital, Seattle, WA Gracilis flap surgery 13 May UW for smile restoration Smiley
Successful! FACE IS MOVING!!!!
Mei Mei
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Posts: 350


« Reply #7 on: February 24, 2010, 12:29:10 PM »

Yes, I agree, Moe, that tinnitus gets worse after the AN surgery.  My tinnitus was mild before the surgery, but now that I am deaf in the AN ear it got much louder.  Sunfish said that she got a hearing aid that makes the tinnitus softer which is the first I've ever heard anyone on this site ever mention this happen.  I'd love this to happen but know for sure it won't happen with the BAHA.
I guess you can't wear them in combo, can you?

Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
JerseyGirl2
Sr. Member
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Posts: 442


« Reply #8 on: February 24, 2010, 03:19:34 PM »

Yes, I agree, Moe, that tinnitus gets worse after the AN surgery.  

I think this must be very individualized. My tinnitus was mild pre-surgery and has remained mild two years after my translab surgery.

Catherine (JerseyGirl 2)
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Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ
Pooter
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« Reply #9 on: February 24, 2010, 03:37:44 PM »

Definitely individualized because I had moderate before surgery and I hardly notice it now..  It's louder to me at bedtime and there are no other sounds..

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager
Denise S
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Posts: 289



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« Reply #10 on: February 24, 2010, 05:59:33 PM »

When I have read on tinnitus, I seen where sometmes Hearing aids or devices may help with it.  That's why I ended up posting it here to see if anyone has noticed that.   Looks like really only 1 has had that.   Just found it interesting  Wink
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www.thesanfordadventures.blogspot.com
W&W 2 1/2 yrs. (due to watching a different brain tumor...stable)
Left AN: about 1cm (grown for sure during 2 1/2yr.) removed,
MIDDLE FOSSA  11/9/09;  Michigan doctors Pieper & Zappia;
delayed onset of facial paralysis lasting 3-4 weeks only;  left SSD
sunfish
Full Member
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Posts: 126


« Reply #11 on: February 26, 2010, 03:34:32 PM »

I don't think my situation can be compared to yours all that well.  I still have plenty hearing in that ear - mixed hearing loss.  I have moderate conductive loss due to injury or otosclerosis, as well as sensory-neural loss from the AN.  I use the new Dot(squared) 20 by ReSound, which helps overcome the conductive loss, but won't do a darn thing for the loss from the AN.

I have regular tinnitus, as well as a weird, whistling noise when I shake my head, which no one can seem to explain.
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Rt. side 14mm x 11mm near brain stem
Mild to moderate hearing loss (conductive loss too, from otosclerosis)
I use a hearing aid (Dot 20 by Resound)
Diagnosed January 2010
Cyberknife March17, 2010
Roper Hospital Cancer Center, Charleston, SC
mellowrama
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Posts: 155



« Reply #12 on: February 27, 2010, 12:45:04 PM »

I'm SSD with both tinnitus and hyperacussis since translab surgery Sept 09. 

Had my full hearing with no tinnitus prior to surgery...both the tinnitus and hypercussis has about driven me nuts over the last few months.
Since I've started wearing the BAHA in Jan the sound issues are not as noticeable, however, I doubt that it has to do with the baha as much as healing and getting used to it.  My doc (Dr. Friedman) said he thought the tinnitus and hypercussis would ease up over time.
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22mm x 19mm x 12mm CyberKnife  9/25/2006 BNI Dr. Daspit/Dr. Smith/Dr. Brachman
Growth after failed CK  2.6cm 
Translab Surgery with House Docs 8/26/2009 Dr. Friedman, Dr. Schwartz,
SSD, tinnitus...other than that good to go...amazing recovery!
Denise S
Sr. Member
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Posts: 289



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« Reply #13 on: February 28, 2010, 10:16:40 AM »

http://www.ata.org/for-patients/treatment#Amplification

http://www.askdocweb.com/tinnitus.html

Here are 2 of the multiple sites that mentioned hearing aids "possibly" helping with tinnitus.   Seems like all say about the same thing and not positive if it would be referring to the bone conduction aids too.  It mentions something about the frequency of the tinnitus, not sure how that is measured...HuhHuh   

So, that is why I threw this question out there to check peoples history and thoughts to the subject.

Thanks for the replies!   Wink

Denise
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www.thesanfordadventures.blogspot.com
W&W 2 1/2 yrs. (due to watching a different brain tumor...stable)
Left AN: about 1cm (grown for sure during 2 1/2yr.) removed,
MIDDLE FOSSA  11/9/09;  Michigan doctors Pieper & Zappia;
delayed onset of facial paralysis lasting 3-4 weeks only;  left SSD
Mei Mei
Sr. Member
****
Posts: 350


« Reply #14 on: March 02, 2010, 06:13:54 AM »

Dear Denise,
I just read with interest what you sent us.   I happen to have TMJ and have been wondering if others in our group also have it because they don't mention it.   I've been wondering if it has a relationship to the headaches I've been having, but on this link it makes a suggestion that there is a cause for the tinnitus!   I never would have guessed this and will contact my dentist about this.

Thanks, Denise.

Sincerely,
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
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