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Post-Treatment / Yr 8 update CK
« Last post by mwatto on Today at 03:06:45 AM »
Just had my annual MRI and all going well - AN has shrunk yet again now at 10 mm so basically has reduced by more than half.  :) Hearing stable as yet no hearing aid. I still get nerve pain from time to time but not as bad- the specialist said " to be epected". Unsure if from shrinking or what- seems to come and go at night.
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Post-Treatment / Re: 1 year post -op
« Last post by DanFouratt on May 16, 2026, 01:27:18 PM »
Also, thank for sharing a positive experience. 

Dan
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Post-Treatment / Re: 1 year post -op
« Last post by DanFouratt on May 16, 2026, 01:24:43 PM »
Mark,

Congrats it sounds like things are going great for you.  I too have accepted my SSD.  It is now a game when we goo out in a group, "Dan where do we sit?" I have not had a bad seat in the house in years! Stay well and continue to enjoy life.

Dan
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Eye Issues / Re: Double Vision following surgery
« Last post by Mark F. on May 14, 2026, 10:41:27 AM »
I know this is an old thread, but if you are still checking out the site Cheryl.  I have some experience with that.   It may not be exactly what you want to hear.  Immediately following my surgery I had side by side double vision all the time for several weeks.  I wore an eyepatch over one eye when I was reading or watching TV because then I only saw one image instead of two.   Now total disclosure, I had double vision for 2 weeks about a month before my surgery that resolved itself, but after surgery it lasted much longer all the time.   I say all the time because I am one year post op now and I actually still have instances of double vision though not everyday and not for long periods of time.   It comes and goes.  The positives of my surgery far outweigh the negatives so I hesitated to respond because I don't want to make anyone change their mind.  Overall I couldn't be more pleased with my progress. 
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Post-Treatment / 1 year post -op
« Last post by Mark F. on May 13, 2026, 08:04:19 PM »
Just updating.  Today 5/13/2026 marks one year post-op for me.  Things have gone very well for me this past year.  I quickly regained balance, dizziness is gone, headaches which used to be a 24 hour a day thing are now only occasional and a lot milder than before.  I used to think that regaining my hearing would be important, well I am single side deaf, and I can honestly say it doesn't bother me.  If I had known how much better I would feel I wouldn't have placed such a high value on hearing out of the left side again.   I even set a new personal best 5k time this past year, since I no longer have balance issues.   This past year since my surgery has actually been the best year I've had in a long time.   I hope it continues, and that the tumor is truly gone forever now.   Thank you to all my friends on here for being there when things were very dark.   I really wonder sometimes how people without a support system make it through mental health wise.   

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Post-Treatment / Re: 2.5 Year Update
« Last post by Mark F. on April 28, 2026, 03:38:42 PM »
Michelle, Glad to hear you have been pain free.   
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Post-Treatment / Re: 2.5 Year Update
« Last post by mwatto on April 27, 2026, 10:44:46 PM »
Hi Mark - you are right! I bought an extra pillow to relive pain plus I got a pillow with a hole in the middle for a while for that side (in the end I didnt really use it much). The elevation now with my extra pillow has made a bg difference- plus I got rid of my latex pillow as way too firm which increased the pressure. In fact CatGPT suggested the same- that the pressure from lying on firm pillow and less elevated was the cause. Have had no pain at all past two weeks!
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Post-Treatment / Re: 2.5 Year Update
« Last post by Mark F. on April 22, 2026, 08:19:34 PM »
Hey Michelle,
Glad you found relief.  Those pains can be pretty bad.   You ever try sleeping slightly elevated?  I noticed quite a difference when I came home from the hospital between laying flat on the bed and the elevated position I had with the hospital bed.   My first night at home I got really sick from laying flat.   After a couple  days I was fine laying flat, but if your getting pressure laying down I just thought it might help.  Just a thought. 
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Post-Treatment / Re: 2.5 Year Update
« Last post by mwatto on April 22, 2026, 08:10:09 PM »
Thanks Dan! Actually its gone away at the moment and I feel great! Sleeping deeply on just a hot magnesium bath before bed (was on medical cannabis which kind of helped). Anyway will let you know how MRI goes- at least the audiology report was excellent.
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Post-Treatment / Re: 2.5 Year Update
« Last post by DanFouratt on April 21, 2026, 07:35:23 PM »
Michelle,  Sorry to hear you are suffering from this. I hope your MRI goes well. If I recall you are a non contrast person.

Take care,
Dan
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