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Author Topic: Yr 8 update CK  (Read 785 times)

mwatto

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Yr 8 update CK
« on: May 18, 2026, 03:06:45 AM »
Just had my annual MRI and all going well - AN has shrunk yet again now at 10 mm so basically has reduced by more than half.  :) Hearing stable as yet no hearing aid. I still get nerve pain from time to time but not as bad- the specialist said " to be epected". Unsure if from shrinking or what- seems to come and go at night.
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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible, stable.
MRI 2023 Further reduction 12x12x10mm!! Hearing 87%
MRI 2026 - further reduction to 10mm x 9mm x 9 mm! Hearing stable - no change since 2025 no need for hearing aid as yet.

DanFouratt

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Re: Yr 8 update CK
« Reply #1 on: May 23, 2026, 06:48:34 AM »
Michelle,

Congrats!  Eight years and going strong.

Take Care,

Dan
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Dan Fouratt             65 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

mwatto

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Re: Yr 8 update CK
« Reply #2 on: May 23, 2026, 10:41:32 PM »
Thanks Dan - just thought I would post as positive! A friend of mine In Perth is also going well - we had CK at the same centre hers has shrunk also. 
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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible, stable.
MRI 2023 Further reduction 12x12x10mm!! Hearing 87%
MRI 2026 - further reduction to 10mm x 9mm x 9 mm! Hearing stable - no change since 2025 no need for hearing aid as yet.

ppearl214

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Re: Yr 8 update CK
« Reply #3 on: June 01, 2026, 06:56:29 AM »
Michele,

Congratulations!!!!!!!! 

I just celebrated my..... 20... yes, 20 years post-CK for my AN. it was 1cm at time of treatment.... over time, now reduced to a 5mm blob  ;D

Just sending these good vibes to you for continued wellness! Time to celebrate!

Phyllis
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

ppearl214

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Re: Yr 8 update CK
« Reply #4 on: June 01, 2026, 06:57:24 AM »
Dan,

Woohoo! Congratulations! Continued wellness wishes to you!

Phyllis

Quote from: mwatto on May 23, 2026, 10:41:32 PM
Thanks Dan - just thought I would post as positive! A friend of mine In Perth is also going well - we had CK at the same centre hers has shrunk also.
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

mwatto

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Re: Yr 8 update CK
« Reply #5 on: June 01, 2026, 06:48:55 PM »
Thanks so much Phyllis!! I am so pleased to hear how well you are going. Very reassuring!
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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible, stable.
MRI 2023 Further reduction 12x12x10mm!! Hearing 87%
MRI 2026 - further reduction to 10mm x 9mm x 9 mm! Hearing stable - no change since 2025 no need for hearing aid as yet.

DanFouratt

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Re: Yr 8 update CK
« Reply #6 on: June 03, 2026, 06:25:57 PM »
Phyllis,

20 years is awesome!  Great to heat that.  I have 17.5 more to catch up with you and I will!

Thanks for sharing,
Dan
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Dan Fouratt             65 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm
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