MJCM
Thanks for posting. I'm now 6+ months since the SRS and received my MRI 2 Sep. The Radiation Oncologist is happy with the results indicating that it looks like the tumour is dying by the black areas within the tumour which was all white from the previous MRI. Oddly, or perhaps this is normal, I'm feeling more wobbly/dizzy/tired than I ever have. Hoping at some point the negative trend reverses. All for now, will stay engaged.
Cheers
Ash

Thank you Don!

Derek, I’ve been reading your updates about long-term watch and wait and would appreciate hearing how you’re doing.

Are you still watching and waiting? Have you had another MRI since your June 2024 update? How have your hearing, balance, and overall quality of life been?

I’d also welcome updates from anyone who has followed observation for many years. If you eventually chose treatment, what prompted that decision—tumor growth, changes in hearing or other symptoms, or something else?

Your experiences would help me understand the long-term picture. Thank you for sharing.

So, I get terrible motion sickness symptoms after long car journeys where I have been a driver.  This is a symptom that i did not have pre-op, it shows as major confusion and lack of balance.
My ENT consultant in the UK told me he is sure this is an outcome of my surgery but he has not know of others to complain of it and he was limited in his advice.  I therefore have done some AI and online research of my own which I would attach if I could as it includes exercises and pre-travel recommendations.  Instead here is what is happening to me which hopefully fits in this box - let me know if any others have similar symptoms.

Clinical Mechanism: Dynamic-to-Static Transition Failures
What you are experiencing when you stop driving is not standard motion sickness. In medical literature, this is classified as an inability to quickly adapt during the transition from a dynamic state (moving) to a static state (stillness) following unilateral peripheral vestibular loss. [1, 2]
Here is exactly what happens in your nervous system during a drive:
1.   The "Seated" Vestibular Clamp: While you are driving, your body is strapped into a seat, moving at a constant velocity. Because your right balance nerve is gone, your cerebellum (the brain's balance control centre) heavily relies on your remaining left ear and your eyes to keep your world stable. It builds a temporary, high-effort computation loop to process the forward movement of the road. [1, 2, 3]
2.   The Post-Motion Adaptation Lag: Clinical studies on post-acoustic neuroma patients show that the brain's ability to smoothly "turn down" or recalibrate this high-intensity motion loop is damaged. When the car stops moving, your left inner ear suddenly signals absolute stillness. However, your brain's motion-processing centre takes time to empty its "stored" motion calculations. [1, 2]
3.   The "Confusion" Trigger (Cognitive Exhaustion): Because you have unilateral loss, maintaining balance and visual tracking requires active, conscious brainpower—called cognitive reserve. When you are driving, you are burning through this fuel rapidly to keep yourself oriented. The moment you park, the sudden clash between the immediate stillness of the vehicle and your brain's lagging motion loop creates an acute sensory conflict. This floods your nervous system, temporarily exhausting your brain and manifesting as sudden disorientation, heavy brain fog, and confusion. [1, 2, 3, 4, 5]

v357139, It’s great to hear that you’ve been able to get back to biking, swimming, golf, yard work, and lifting after translab. Thanks for sharing your experience.