ANA Discussion Forum
Archive => Archives => Topic started by: ppearl214 on March 14, 2006, 04:01:14 pm
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In the months I have signed up for this site and for all I have read, I have shared, I have learned... through all the jokes, giggles, etc. I just wanted to say a special thank you to one and all of you here!
When I first logged onto this site mid to late 2005, a lot of the conversation was dreary and rightfully so. No one is trying to make light of what each individual is experiencing. I have learned a great deal from this site and as it's a free forum/board to those of us that use it, I would like to send out a special thank you to the ANA folks that help to maintain it, to those that pay annual membership to the ANA to help keep this board up and running.
I know the past couple of months, I've been trying to help post light-weight discussions in a time of a lot of stress for me. I find humor to be a great stress reliever for me so I've let my warpedness run rampant around here (amongst my serious posts.. yes, I do certainly post some) to help curb the edge of the stresses that all of us are going through.  I firmly believe that laughter is truly the best medicine and if my warpedness has helped you in any way to help take time away from the stresses you all are experiencing, well, then, I'm glad. Dealing with AN is not a funny issue as we all know... far from a funny issue. But, for me, I am just trying to share a little sunshine (yeah, I know, the screennic is used and won't be smearing her around!) with many here that have not-so-good days... and if you are having a good day, well, maybe my humor (or lack thereof) is helping just a wee bit.
So, thank you to the ANA mgt group for keeping this site up and running... and to all of you that tolerate my shennanigans, harrass my spelling and grammar (yeah, Batty, I saw that post!), for the hugs and phone calls and emails and suggestions/recommendations and words of encouragement.
Ok, nuff of me being sappy (damn, I must be hormonal again) but I do sincerely mean my thanks to you all.
Phyl
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I couldn't agree with you more! Humor is what has helped pull me through not only my AN journey, but my husband's illness as well. Lately I have had some really down and stressfull days dealing with AN problems and I come here because we all share a very special bond. We understand each other, when our family, friends and doctors can't. I don't know what I would do without this forum.
For me, it is laughter that helps me get through the pain and fear.
thank you everyone, you are awesome!
Hugs to you Phyl! You Rock!
matti
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Oh Jeez Phyl, I'm gonna start Hoo-hooin'  :'(  You are so right about keeping a sense of humor!
Just after I was diagnosed and in my early recovery I was here when it was in a different form--I remember Raydean, Russ, and a couple others and it's good to be back here and I love the new format.
Sooooo--you are welcome!
Captain Deb
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:'(
:-*
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shucks :-[
*puts hands behind back, lowers head, kicks shoe through dirt*
:-* backatcha!
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Yeah, what Phyllis said....both times!!!! WE ALL RAWK!!!! And Phyllis, you're especially KEWL!!
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check's in the mail to each of you. ;)
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YEE HAW I can make that mort payment now :o
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Your comments are spot on Phyl.
I find this site fantastic, both from a serious view - options, treatments etc to the humour. There is a great mix and I find it fantastic. Its quite amazing that funny twists can actually lighten the stressful issues of AN's but it works for me.
And what about the support that is given - wow - its great.
cheers to all and a keep fighting comment to those that are struggling with recovery - we are here for you.
Larry
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Okay, here goes. I think you hit the nail on the head. Quite literally. Lately, I've been thinking about the quality of life of not just me, but everyone. Yeah, having an AN isn't what I had planned at this point in my life, but I'm sure no one plans on any life threatening disease or trauma. Sooooooooo
my issue became, and is Quality of Life. How do we want our lives to be like????? Better? Normal???? What???? How do we take all this we haven't asked for and learn the lessons we need to from it? Each of us have a personal answer to that, don't we. We do the best we can, wherever we are at the moment.ÂÂ
Honestly, I have dissected everything from the first symptom, to the day of diagnosis with only one thought in mind....what can I learn from this experience, and how can I help myself and others. My new mantra is "Aspire to Inspire" everyday.ÂÂ
Humor, wisdom, kindness, smiles, don't cost a thing.  If we can't give these things freely, how will we ever feel like living? Laughter, is a gift, and if we share our gifts freely, we receive more gifts than we can imagine.
So, laugh, sing, dance, hoola-hoop your hearts out. Whatever works. Sharing your gift is a wonderful way to heal yourself and each other.
And that's what I think.
ta-da ;)
Ya'll keep on keepin' on. I mean it. 8)
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I'll chime right in. Been doing a lot of spiritual reading lately, except today with my sore attitude...and of 20 strategies to cope with a chronic illness --I guess I fall in that category for now--humor, social network, staying busy as your body allows, don't think about the illness, were just a few gems. Book is called Being Sick Well, by Jeffrey Boyd. He's a Christian, and that flows througout the book ( not really my thing), but he talks to people of all and no faiths.
This forum provides humor and social network. We are a rare lot, every "body" is different, as Cheryl once said, I think, I can't compare my progress to everyone else's. My body will heal as it will. Cheryl, sorry about your right arm stuff. I've had almost constant mouth twitching and spontaneous tearing out of the AN side. Facial nerve, also, I suppose. I could care less if God would just take the dizziness away--keep praying, please! I know I have to do my part, though, keep working at it....groan.
Blessings to all,
Nan
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Nan, like you, I am VERY spiritual (although not a Christian) but as we know, AN's are non-denominational, but I hear you.... inner peace. Gawd, how do we find inner peace as each of us deals with our own situations? Good days, crappy days, UGH! days, peaceful days... I know we are all going to have an array of days... but I'm so glad that everyone here can relate. Regardless of wait/hold, which treatments, which outcomes, which whatever's, in the long run... you're stuck wtih us! and I'm glad you are! :)
xoxo
Phyl
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In the last couple weeks since my diagnosis, and the week plus on the board I have learned so many things....lots about what I have, but also about how to laugh and feel OK everyday, whether it's a good day or bad. And, you know, that's my measuring stick for now. I'm trying not to expect too much of myself (I'm a virgo wanna be perfectionist) and just say "yea! I had a good day today" or "man, today was not good, what am I going to do to make tomorrow better". Hanging out with you guys makes the wait thing for me tolerable. Also the dealing with people who don't know how to react to the news and are uncomfortable makes me uncomfortable, but I don't worry about that here. I too love the mixture of serious and humor, it's how I'd be everyday with or without AN. This would be so much harder on me if it weren't for all you great people. Thanks for welcoming me in to your special club.
Back to an old thread, just to note, I signed on on 3/6/06 as #904. It's 3/15/06 and we're at 921. Thanks Batty for the welcome wagon.
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Phyl,
Glad to be stuck--what a good place to be stuck in! Very tired today--I keep asking why, but trying to be okay with "what is." I've been trying hypnotherapy and personalized relaxation CD--in case I have something to "unblock" in my brain.
Thanks for the validation/support.
Nan
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I think a special thank you is in order for all who post on this board. It is the people that make the board work. You have all given me lots of information and have certainly made me laugh. I particularly like that the posts are very varied and dont always relate to ANs. I haven't really posted before, I guess because I don't really feel like I have anything wrong with me and didnt want to admit it. I'm very lucky as mine was found very small a few years ago and I only have loss of hearing and tinitus as symptoms..... mind you trying to make up my mind what to do, or not to do is not the easiest as I'm sure you all know. These boards do make you feel like you are not alone and that there are others out there who pick themselves up and get themselves through the hard times. Fortunately for me (touch wood) the hardest part was finding out about my AN.
I think that in a lot of ways us ANs are very lucky. It has certainly made me make sure that I dont take things for granted and that life is what you make it. I no longer settle for second best and dont sweat the small stuff. Life is too short to worry about things you cant change and that includes AN.
Keep up the great posts everyone!
lol
L x
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Keep up the great posts. My dr. said to me not to use the computer for advise. I think he ment it well, he just thought I'd read all the negitive things. And I do but with alot of positive issues and heart warming stories. It seems when I reply, I have just lighthearted things to say but I know there are some people on here that have alot of AN issues and I feel very greatful that I have just a few. I am glad to hear your expericiences. Keep up the good posts, I do'nt put in much, but I love to read them. Patti {and always, sorry about the spelling}
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Ditto, what everyone said!  ;D
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Yesterday, I was "lurking" this place to see what mischief and mayhem you all were up to. I saw a Forum Admin logged on and hope they saw this thread (as well as all the others). Do you think we got brownie points? Now that they have seen this, who is going to lead the skinny dip brigade? Batty-one? matti? Capt'n Deb? Kilroy? Larry? who? :P
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Seeing as how our BattyP likes to sailboat topless, she can go first. I'll be the lookout and make sure we don't get busted. ;)
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matti, you're on... as long as we can get batty-one up on deck and away from her cabin with B.o.B. :P
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We can make chocolate-covered Matthew walk the plank--batty P is sure to follow!
Captain Deb 8)
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Scary that we know batty all that well, isn't it? :D
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I love logging onto this site and laughing til it hurts! You guys rock!
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Ok hold it! We need to have this corrected...BATTY P HAS NOT...OOPS JUST SAILED TOPLESS CAPT DEB DID..I only motorboated topless LOL There is a difference you know ;D
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Motorboating topless can be DANGEROUS! What with all the bumpity-bump-bumping and all. Could HURT somebody. Sailing is a much gentler motion. a lot safer. For everyone.
I added a new pic of myself in full Captain Regalia on the frapper site
http//:www.frappr.com/acousticneuroma
still not good at navigating around it yet. I think you can click on the pin in the NC area on the map and my ickyhead photo comes up, then click on the little house icon in the window!
Batty P is that you in Melbourne FL?
You sooo cute!
AAAARRR!
Captain Deb
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Yeah that's me in Melbourne Fl just down the coast from you. Well I didn't say the motor boat was moving now did I? :o
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So that IS you! Cool! Glad to be in the company of such decorative wenches!
I put a URL on my Frappr site
http://www.frappr.com/CaptDeb
Put some photos of my work as well as a pic of myself in full pirate wench regalia.
Check it out!
Capt Deb 8)
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Capt. Deb,
Did you paint all those pictures??? They are extremely gorgeous! Do you sell any?? I haven't posted a pic at frappr cuz my an pic was on the old puter and I really don't have many pics of myself, just of the kids and dog!
Maybe I'll post my dogs pic ;D
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Yes Stat, I painted all dem pitchurs my ownself. And I sell alot of em, too. It's how I paid alla them docs to dig that puppy outta my noggin! I quit putting buildings in 'em after my surg cuz horizontal and vertical lines don't work for me anymore!
Capt Deb 8)
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Capt,
I can see why you enjoy painting so much, you are really good at it! Keep it up and show us some more! I love pictures without buildings in them anyways, nature is much prettier!
Stat
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Capt, i seen some of your pictures also. You paint really well. Do You sell alot? I use to paint still life. Do you ?
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Still life just doesn't float my boat! Besides, nuthin wants to stand still for me!
I'm kinda an outdoor girl, so that's what turns me on.
Capt Deb
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Geesh, We finally found something that will turn Capt Deb on..AMAZING :o
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Deb,
LOVE the paintings! OMG, what an artiste you are! VERY impressive! :)