ANA Discussion Forum
General Category => AN Issues => Topic started by: tenai98 on November 30, 2009, 12:16:01 pm
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Well then neurosurgeon doesnt believe the tumor has grown. He said it was the way the radiologist read it...He also stated that he was very conservative going in to protect my facial nerve...The tumor is definitely a different shape..going from looking like a button mushroom to a football....He said he could have taken more of tumor out but didnt want to chance the facial nerve. And knowing that we had already discussed the radiation after surgery type thingy. So we are going ahead with the radiation but not til after my trips and anothe MRI in May. He said 'our' hospital has been approved for a cyberknife machine and that they just need the funding now...so hopefully in six months Ottawa will be the second Canadian city to have one. He also said if it were his nuggin, he would go gammaknife or cyberknife...not LINAC.....and cyber over gamma...
So now, I put this all behind me until next MRI and then on to radiation....and all I know is that the transcript (surgical) stated tumor size around 1.8-2.0cm...and until I get the reading from the next MRI, really wont know if it has grown...So on with life
JO
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i was looking for you 'verdict' on the other post - glad i saw this one!
well, i wish you didn't have to gave any more treatment, but i'm glad it hasn't grown, and you can wait, and while you're waiting you may get the type of treatment you want there in Canada.
i'm glad you're relieved. and also so glad it didn't grow!
keri
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Some great news for a change. Congrats.
Mike
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What a sigh of relief, breathe deep and enjoy your trips!
Anne Marie :-*
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Great verdict! Hope the wait didn't cause too much gray hair!
At least now you can relax a bit and enjoy your trips and your holidays!
I think you should start celebrating now!
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JO .....
Big exhale ....... The doctor's explanation makes good sense and so glad you have the go ahead to take your trips! Thanks for letting us know.
Clarice
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Jo ~
All I can do is extend my congratulations on the very good news! I'm sure the relief you're feeling is like an early Christmas present. Enjoy the next 6 months!. :)
Jim
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Phew!
I was checking the other thread, too!
Go play now.
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Good news! You can officially enjoy the holidays now!
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Just arrived home and voila...A hat from Steve was in the mail....it is so soft and an awesome color...Thank you Steve...a great end to a great day.
JO ;D
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What a relief! Couldn't come at a better time - holidays are here, trips in your future - live it up!!!!
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Jo,
I'm very happy about this news, but it doesn't sound like the surgeon did a very good job of communicating to you initially after the surgery.
Anyway, enjoy the holidays and you vacations. It sounds like everything is back under control. ;D
Wayne
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Fabulous news!!! Enjoy your trips and the holidays :)
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Well, I'm not so sure the news is 'fabulous', but it seems way less scary anyway. I'm sorry you were mislead with how much was left behind. How frustrating.
I AM glad and relieved that it's not how it appeared for a bit there......rapid growth.
You have a great attitude!
(hugs)
Adrienne
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A Two-fer day:-)
Two good things in one day.
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Jo -
good news - on both accounts.
Looking forward to a picture of your new hat.
Jan
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I glad your surgeon had good news for you today! No growth is music to our AN ears!!!
Cyndi
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Great news!
That and a Stevie orginal arriving the same time... wonderful.
Our Steve is a gem- isn't he?
Hope you post a photo of you in your toque soon.
Relish in the good day!
DHM
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Our Steve is a gem- isn't he?
That he is ;D
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Fabulous news!!! Enjoy your trips and the holidays :)
This is the sort of enthusiasm for hats that I live for. ;D
Jo, I am happy to hear that the hat found you on a good day. It occurs to me that your Dr. may have sort of hollowed out the tumor, leaving much of the shell in place. This a good step for minimizing nerve damage, and often is enough to finish off the tumor, since it cuts off blood supply, and is a method that may become more common.
It may be the shell that shows up on the MRI. If you do need radiation to finish it off, it will not be a big deal. I think you are in good shape. :)
Steve
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A Two-fer day:-)
Steve, what timing! Nice job!
Can't wait to see the color.
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Jo,
I'm so relieved for you -- what great news! Have a great vacation -- you sure deserve (and probably need) it! Keep us posted.
Wendy
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Glad to hear you didn't have a super sized growth of your AN! Think Steve's theory is an interesting and likely one.
Even better, you have a hat-by-Steve! We're expecting a picture of you and the lovely hat soon! Sure it's getting about cold enough up there to wear it, right ;) Every time I start to grumble about being cold down here in GA, I think about all my Canadian AN friends and...still grumble, but with sympathy for you guys!
Cindy
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Fabulous news!!! Enjoy your trips and the holidays :)
This is the sort of enthusiasm for hats that I live for. ;D
Jo, I am happy to hear that the hat found you on a good day. It occurs to me that your Dr. may have sort of hollowed out the tumor, leaving much of the shell in place. This a good step for minimizing nerve damage, and often is enough to finish off the tumor, since it cuts off blood supply, and is a method that may become more common.
It may be the shell that shows up on the MRI. If you do need radiation to finish it off, it will not be a big deal. I think you are in good shape. :)
Steve
Interesting. Thanks for offering that insight. It might explain a lot of things about the MRI results.
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Jo, what double great news!!!! What a relief - now where is that picture of you in your new hat?!?!?! ;D
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or at least reveal the mystery color!