ANA Discussion Forum

General Category => AN Issues => Topic started by: phx on July 28, 2010, 08:59:18 pm

Title: I thought it was the end of the world...
Post by: phx on July 28, 2010, 08:59:18 pm
when I was first diagnosed. I was sad, depressed, you name it. My first doctors weren't much help. I didn't really know much of what they explained to me. Now I feel like there's been some progress. I'll be getting my mask, mri, and ct scan done in the next week to prepare for radiation. Knowledge is power! Just feeling happy, so I thought I'd post something. Any stories out there! If anyone read my first posts, my outlook on things are different now. Thanks ANA forum!!
Title: Re: I thought it was the end of the world...
Post by: LisaP on July 29, 2010, 05:20:30 am
Hi Phx,

Glad to hear that you are doing well, when I was first dx with my AN 2.5 years ago, I was devasted, scared and confused, but with the help of this forum and research, I have been better able to cope with my dx.  I am still W&W, my next MRI is in Oct.  Can you give me a little back ground on when you where dx and where you are going to recieve you radiation treatments.

LisaP ;D
Title: Re: I thought it was the end of the world...
Post by: Lizard on July 29, 2010, 09:42:52 am
Knowledge is power!  Congrats on your decision.
Liz
Title: Re: I thought it was the end of the world...
Post by: Jim Scott on July 29, 2010, 01:40:29 pm
phx ~

Although your initial emotions regarding your AN diagnosis were pretty normal, it's good to see you feeling positive! 

FWIW: My FSR experience was uneventful, almost boring, and I suffered no ill effects at all.  It was also successful (dead tumor).   I'm confident that you'll do well with your CK procedure.

Jim
Title: Re: I thought it was the end of the world...
Post by: phx on July 29, 2010, 08:59:50 pm
I was diagnosed last November with a 4x3 cm tumor on the left side of my head. Had surgery on Feb. 25th with 15% removal. The tumor was too "vascular" (if I'm using the term correctly), so now I'm looking at radiaton to keep it from growing. I'm feeling good. My symptoms are not bad like before. Doctors say I want to make sure it doesn't grow any bigger because it will start to press on my brainstem again. On Monday, I'm going to get my mask, mri, and ct scans done. After that I will schedule radiation hopefully sometime in mid-August. Thanks for sharing!
Title: Re: I thought it was the end of the world...
Post by: LisaP on August 03, 2010, 05:50:46 pm
Hi,

What kind of radiation are you going to have?  Keep us posted with how the radiation treatment go and glad to hear that you are doing well.



LisaP ;D
Title: Re: I thought it was the end of the world...
Post by: DR on August 05, 2010, 07:10:52 am
It is easy to get overwhelmed by the whole situation, but having a place like this forum allows many of us the opportunity to learn from those who have "been there, done that."  A positive attitude goes a long way and it sounds like you are approaching your treatment with a VERY positive attitude!  Best wishes and please keep us informed.

- Dennis
Title: Re: I thought it was the end of the world...
Post by: moe on August 05, 2010, 07:53:13 pm
Hi,
I'm glad to see you are feeling better about everything. Sometimes it's better to take care of the booger in stages.
I remember your fears from the beginning and now am so GLAD for you! You sound so much better and confident.
Keep the positive spirit, let us know how things go :)
Maureen
Title: Re: I thought it was the end of the world...
Post by: phx on August 24, 2010, 10:49:27 am
Hi eveyone!

Finished radiation about a week ago. So far, everything is going well. Still taking steriods, but other than that I can still do everything I was doing before. Thanks!
Title: Re: I thought it was the end of the world...
Post by: iluuvpups on August 24, 2010, 10:53:43 am
Thanks for the update.  Very glad to hear that you're doing so well!
Title: Re: I thought it was the end of the world...
Post by: moe on August 24, 2010, 11:00:51 am
Great update. Please keep us informed on your progress, ok? :)
Maureen
Title: Re: I thought it was the end of the world...
Post by: Jim Scott on August 24, 2010, 01:27:01 pm
Phx ~

It's good to learn that your radiation treatment went well and that you're regaining normalcy.  We appreciate the update.  Besides, we all love happy endings.  :)

Jim
Title: Re: I thought it was the end of the world...
Post by: Lizard on August 25, 2010, 06:58:49 am
Thank you for the toastie postie update.  Hopefully you don't have any further symptoms so you can continue to improve.
Congrats!
Liz
Title: Re: I thought it was the end of the world...
Post by: bell on August 25, 2010, 10:52:50 am
Congratulations on  your radiation. I hope this works for you and you do not feel to many side effects.
Bell