ANA Discussion Forum
Archive => Archives => Topic started by: littlemissrory on May 05, 2005, 03:59:03 pm
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Hi. I had the retrosigmoid surgery on May 24th of 2004 for an A.N. the was 5x8x6mm. Prior to surgery the symptoms were extreme nausea, falling over, dizziness, vertigo. The surgery went extremely well, I kept the nerve and have no hearing loss. Recovery also went very well and I was back to whitewater kayaking and skiing much sooner than I expected.
So here's the question...does anyone notice a difference with memory being worse after a successful surgery?
I can't say my memory has been stellar in the past, but over this last year it seems much worse. This week alone I couldn't remember the way to a place I drive fairly often, forgot my roommates name whom I've lived with for over a month and seem to lose things easily.
Any thoughts on this would be greatly appreciated.
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Hi. I had my surgery nearly 5 years ago (haven't checked this site for a long time). Your post brought back memories - no pun intended. I did indeed have problems with my memory post-op...some rather substantial. My doctor attributed it partially to trauma of surgery, partially to lingering effects of anesthesia, and partially to medications I was on for pain (the latter because of the killer headaches I had). It did eventually get better, but I actually had to work really hard at retraining my brain to think & remember. One of the most helpful - although frustrating - things I did on the advice of a cognitive therapist was to read murder mysteries. It was so hard to remember the characters and plot from night to night! But it did stretch my brain and seemed to ultimately help.
Good luck,
Jane
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Hi
It's hard to believe you don't have at lest some residual disorder producing cognitive side effects.Maybe do a Google search of "Cognitive Aspects of Vestibular Disorders" by Dr Kenneth Erickson. You may see yourself here.
Happy kayaking!! -Russ
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Thanks for the input...I'll check out google, and start reading murder mysteries. I appreciate the help.
Rory
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I had the same surgery in august 2001 under what was supposed to be the best surgeons nationwide. I wasn't so lucky, I lost my hearing and I too had signifigant memory problems. I spoke with others that had had various types of brain surgery and their experience was the same. Trouble finding the right word, difficulty remembering short term and not being able to find things stored in my memory. My doctor said that there was no reason for the symptoms but I know I had them. They have improved some over the last 3 1/2 years, but I have lost my confidence in myself and my ability to learn and retain information. I wish someone had warned me before! Good luck and if you hear of anything that helps, please let me know.
Laura
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I can totally understand how you feel. There are days I suffer from CRS (can't remember stuff). I make a lot of lists and carry a 2 year day planner. All my phone numbers are written in the day planner and dialed into my cell phone (really sucked when I suffered from a "mindless moment" and washed my cell phone!- OOPS!)
Fee free to contact me personally via my email address, as I don't check this site often enough!
Mo
Gheegheemo@sbcglobalnet.com
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Hi,
I was told that you usually have trouble with memory when it is your left side. Is this true?
Lynn
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Yea, I have trouble with memory and sequences. My handwriting was terribly effected. I use to have beautiful handwriting, and I could hardly hold a pen correctly after the surgery. Well, things have gotten better, but I can just write ledgably (SP) now. One thing I notice, that makes me so mad, is while I am writing, I will forget a letter or two. Things that I can spell usually, well, I still know how to spell them, but forget a letter while writing the word.
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Do you have a memory like this? Five years or so before my AN was discovored I had a big memory problem. Never remembering phone calls or birthdays. I'v been married for 26 years and I still don't know my inlaws birthdays. If I have to date a check I have to ask what the date is, and thats normal but if I date something a few seconds later I have to ask the date again. Nothing sticks. Even before I found out about my friend {tumor} I sware, I knew there was something wrong with me, big time, but after my operation, I thought things would get better but there just the same or worse. I have all the help I can give myself, I write things down etc. reply....the cakes
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I'm glad I'm not the only one with memory problems. My surgery was 10 months ago. My doctor told me there shouldn't be any difference with memory after the surgery, or at least not any more than there was before the surgery. Not true, I too have to write things down. If someone gives me driving directions I'm good for the first couple of streets, but by the time they start with the third street I need to write it down. These are streets I'm familiar with, so it not like trying to find my way in a new town. I also have a problem with finishing sentences. Most of the time it's no problem, but there are times when I know what I want to say but I can't quiqte finish the thought I had or it doesn't come out like I wanted it to come out. I do think it is worse when I haven't gotten enough rest from the night before. When I'm well rested I do much better.
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I remember seeing a documentary on memory. I'm not a dr but i remember (my memory is ok) that the short term memory is in a different part of the brain than the long term memory - I think it was explained like a computer - ram and hard disk. Anyway, apart from some physisist not remembering where he parked his car but could still lecture, which was due to some rotten Canadian mussels (yep thats right), there are tests that can be done on whether there is something missing in the brain that affects memory.
Talk to your neurosurgeon to see if a test can be done. I doubt whether an AN or op to remove an AN would be causing this
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My doctor swears that my memory problems are not associated with my AN surgery, I on the other hand disagree. I as well as other family members noticed right after my surgery that I was having problems finding the right words, not being able to finish my sentences and some short term memory problems. I am 7 1/2 years post op now and I still have some of these issues. I find myself working hard at conversation, almost practicing what I am going to say when I am in a social situation. My family automatically finds my right word and finishes my sentences. This can be a bad thing, because I know I need to work at this and have become somewhat lazy.ÂÂ
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I am also about 7 1/2 years post surgery and still have memory problems. I have been tested, and while everyone agrees the memory problems are there, my doctor also insists that the surgery had nothing to do with the problem. But like everyone else, I didn't have the problem with my memory until after the surgery. At least once every day I find it hard to find the right word while speaking, I forget names of people I've known for years, forget how to drive places I've gone to many times before, and when writing checks often have a hard time remembering what year it is! While the memory problem is frustrating, it's even more frustrating that no one can explain why it happened (other than it wasn't the surgery). I'm glad I get to read everyone else's stories (though I am sorry you are all having this same problem), but it's reassuring to know I'm not the only one.
And to answer a post up above - yes, my tumor was on the left side.
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If you going to same Dr. that done the operation, I'd go to someone else. Preforming dr. sometimes won't amit any problems you might have due to it might reflect on them IMO. Go get another opinion. I beleive about 98% of us who have or brains exposed have; headachces, memory loss, weakness, those of us that have ten of the 10 of the 12 nerves mess with An operations have Balance problems, site problems, MIgraine's, short term memory loss, Neck pain, head pain just from turning you head, Sleep disorders, waking up in the night with head pain and about 10 other's I can't think of right now cause I'm breathing an with no pain at the moment which is a great day.
They who preform the operations in a hole the size of a quarter, lasting hours, and most are suscessful, but IMO other problems occur and are well documented on this forum and in studies, are we all dreaming these conditions? I don't think so. IMO it's just finding the right dr. that will believe you and understand what you been through. Yet some say it's in your head, Well it got their somehow and I think the obvious is the tumor pushing on nerves and the operation you just had is how it got there. Maybe I'm out to lunch? Rc.
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Rc,
Couldn't agree more
Larry
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I'm 20 months post op and I too have some memory problems. It has definitely improved but I still blank out on words, confuse words, can't remember phone numbers/addresses as easily, and I have to keep lists.
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I don't know whether to laugh or cry... this is so me!
Pre-op, I had a phenomenal memory, seriously. I had a thing for numbers (license plates, phone numbers, zip codes) and could recall them for years. Post-op, I'm struggling to remember what I wore yesterday.
My surgeon swears he didn't touch that part of my brain but I know that I'm not the same. My husband sees my cognitive difficulties too. They affect everything: speech (I've heard it appropriately called "verbal constipation"), fine motor skills (my handwriting was very nice and now it's so inconsistent), memory, logic, etc.
I'm 1 year post-op and yes the issues are less flagrant than they were 6 months ago but I still feel rusty sometimes.
Sorry, I am no help just affirmation!
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Hi : I am almost 9mo post op. I've been having a very hard time dealing with my lack of headaches, memory, word recall and disorganization. I am a special ed. teacher and am planning on going back to school for my masters. But frankly, I'm scared to death. It reassures me to read that many others have the same difficulties, but ticks me off that Dr.s don't say a things about these side affects.How does everyone else cope with these difficulties? luv2teachsped
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My tumor was on my left side. I don' t think my memory is any different than before. I have always been good with dates, etc... I do a lot of crossword puzzles and word find puzzles and I think this helps. When I went through occupational therapy, I was given math problems, reading problems, and word finds to figure out. I really think this OT helped me as much as the PT is helping me. The only time I get headaches now is when I am stressed from work or did not drink enough water during the day. Don't get me wrong I am not perfect and do have issues with the facial paralysis and my left eye, but overall I am coming to terms with the new me. I take Zoloft daily and I wish I could go back a few years and change my attitude about the importance of my health. I was having symptoms and had I taken the time to see a dr. my tumor might have been found when it was small enough to radiate. Anyway you know what they say about hindsight! Sorry I am babbling.....back to the topic of this thread...my memory seems to be the same.
Denise
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And I've just said that my bad memory lately it is just because of stress......!!!! Lately I really have difficulties to remember what I was going to do, where I put something. I am trying to call my hunband, he don't answer....he calls be back in 30min .... I don't remember what I wanted from him. Can it really be from the surgery? I had 3.5cm tumor on right side, operation Jun04/Sept04/Mar05.
For good I've entered to my phone calendar days to remeber..
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I know memory isnt' the same. My tumor was on the left side. I feel like I'm stuid. I would love to have an IQ test done to see if I've lost iq points.
Teach what are you getting your masters in? I'm thinking of trying an online masters program that allows you to go at your own pace. It is also cheaper than going to classes as the whole program is less than the tuition at the local university and I won't have to do any tests!
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Hey Batty P:
Now that I'm single again(divorced after 25 years of marriage), I'm going for my masters in curriculum and instruction, with intentions of eventually going for a teacher consultant job or to general ed(which I DON'T want to do). I thought of even going to work for the state dept. of ed., they could use a few people there who know what they're talking about! I think I've put off registering because I'm not sure of what I'm getting into. I also checked the online route, but I decided against it, thinking I probaly would need as much help as I can get!! ::)luv2teachsped
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I was checking into teaching for the dod which looks interesting. Think I might after my son is in college. I know a girl who did advocacy work for the department of ed in Fl. Sounded interesting..we were both ex ed majors. I don't know if I'd have the patient (or stamina) to sit in class heck I know I won't have the retention lol