ANA Discussion Forum
AN Community => AN Community => Topic started by: ombrerose4 on March 26, 2011, 03:49:56 pm
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We just had our second, very successful ANA NYC support group meeting. I want to thank everyone who joined us for this meeting. We had Dr. John T. Roland, Chairman of Neurotolgy at NYU Hospital, and his associate Dr. M. Cosettil as our speakers. They was excellent! Dr. Roland shared alot of new information regarding new research being done, including the use of Cochlear implants for SSD and he spent alot of time answering questions. I think we all got alot out of this meeting. For those of you that were unable to attend, I hope you will join us for our next meeting in early June.
P.S. @ Mickey- you confused me when you introduced yourself as Mike :)
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Lauren ~
Congratulations on what was obviously an outstandingly productive ANA Support Group meeting!
Jim
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Big thanks to Lauren and Miranda for doing a great job once again. I'm sorry I was late, my apologies.
I got the impression that Dr. Roland was into every aspect of this from soup to nuts. That's exactly the kind of attitude I want to see from the medical professionals. He was very knowledgeable about any aspect of treatment, diagnosis, etc that he was asked about. It was a really good turnout once again too. It sounds like we will be having a lot more input from them in future meetings. I look forward to being the most knowledgeable W+W patient on my block 8)
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Glen,
Sorry I didn't have a chance to say hello, but I am so glad you were able to join us. I was also very impressed with Dr. Roland's range of knowledge and interest not just in the surgical aspect of acoustic neuroma's, but the research aspect too! I can see that Dr. Roland and his staff will be very available to us for future meetings on many different topics. He seemed like a very caring and honest man, spending alot of time after the meeting speaking with people, and not rushing off. I can see why people speak very highly of him. Looking forward to many more successful meetings in the future ;D
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A well put together intimate kind of meeting, nice job! Dr Roland + Cosetti were very informative and up to date on the latest. There was alot of knowledge put out there for each type of treatment and after treatment especially for improvement of hearing post opp.. Being a W+W person I was happy to get some imput on information to where possible drug theropies are going in the battle to shrink AN`s. They mention that for NF2`s there has been alot of participation with quite a few different drugs and they are really excited going into the future. With regular AN`s there approach is a bit different. Looking into different drugs administered before operating and examining the AN after to see what effects the drugs had. They also have been asking for participation in this project. All and all I got the impression that eventually (maybe sooner than we think) drugs may be another viable way to treat AN`s. Lets hope! At the meeting I signed in as Mike but on this board I`m known as Mickey. Best wishes to all, Michael... haha
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So please forgive me if I looked confused when you introduced yourself as Mike. A little voice in my head was saying " but he looks like Mickey from the brunch", lol.
I was very glad you were able to attend and I agree that there was alot of interesting information learned at this meeting for everyone. :)
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This is great to hear!! I'm glad you had a productive support group meeting that was full of... support!
Keri
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Hey Mickey, let's hope the drug they find that shrinks the tumors the best is Viagra. Talk about double the bang for your buck :)