ANA Discussion Forum
AN Community => AN Community => Topic started by: MDemisay on August 30, 2012, 12:10:50 pm
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To all my AN friends,
I just recently (about 2 weeks ago) received a request by a mother of someone who just received a diagnosis of NF2 in January and had undergone 2 surgeries already(C1-C2 tumor resection in May and an L2 tumor resection in July) She has also an AN that according to her surgeon she cannot have another surgery yet. The mother and 25 year old daughter (Kristina Reyes) a nurse, had been told the tumor is almost 3cm already. They were told that radiation was not advisable because it will trigger growth.
What Erlina asked me( because I am Catholic) is that I pray for her daughter that she will receive a miraculous healing. I said to her that I would go one step further! (Do you remember praying for Chloes Mema, Mike (me), LizAN , my coworker Mary and my friend Phyllis R.?)
I am proposing that we gather together (online) and pray for this worthy cause!
Prayer is very helpful and healing and the response and peace one gets from it can often soothe one's fears!
In June we thought of grouping together and calling ourselves the Prayer Warriors a name that thankfully, Karen (Chloes Mema) coined.
I am asking that we all activate ourselves as Prayer Warriors ( by praying individually as a group) once again for Kristina that she receive miraculous healing or some relief from her torment of this AN. Please pray for her mother (Erlina) as well.
Many of you believe in the power of prayer (especially directed prayer) as do I. I believe God is merciful and will provide an answer!
Thanks in advance.
PS. For those of you who don't pray, send your healing thoughts to Kristina please.
Mike
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I'm adding my thoughts and prayers to them. :)
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praying down south
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Prayers have been sent for a miraculous healing for both Mother and Daughter!!!
Jackie in Oregon
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Dear ANA friends (It is what it is, Brewers7 and Jackie and others who will read this and pray),
Thank you so much for responding to the group prayer call of the Prayer Warriors! I can't begin to express how much it means to Erlina(the mother) and Kristine (her 25 year old daughter, that without ever knowing much about them, and taking it on faith that you would respond to my call to prayer in such a loving way, I really appreciate it as do they.
Hopefully and faithfully we must proceed sometimes, I have faith in God that He will provide answers to them they only have to research and decide on which path to take.
God bless all of you and speed you to health wherever you are with your individual journeys, thank you again!
Mike
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Mike, She also wrote to me and I hope my writing back can be of some help too. Having NF2 and being so young would be so hard. I am lucky to have such an older age onset. My thoughts are with them and have to hope for the best over time. Cheryl R
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Thank you, Cheryl,
You have provided some insight to me and some background about coping with NF2 and an AN. I can imagine the brain being adaptable but I didn't know just what going through multiple operations so close together would do.
I have had 30 years between operations, giving my brain time to learn and adapt to new situations. I know God is merciful and will provide the best possible outcome for them!
Keep praying everyone, thank you!
Mike
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Thanks for allowing us this opportunity to to pray in a specific direction. Pre-church prayers going on now.
Skip
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Dear ANA Prayerful Friends,
An update from Erlina the mother of Kristine Reyes (the NF2 post operation) who has an AN as well. Tomorrow they are going for a consultation at 9:00 am with a Dr. William Slattery of HEI in LA.
I have been asked to pray that "everything that we will hear tomorrow will be good things, that there will be hope that she will not be deaf nor encounter facial paralysis."
I will update you on Wednesday.
She has additional symptoms of pain (burning sensation) around the face,headache and spasming as well as stiffness in her neck area.
We can pray for miracles can't we?
Mike
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I too am praying with us all for strength and courage and blessings.
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Thank you for your response Prayer Warriors,
As of yet I haven't had an email from Erlina to tell me anything, but please be assured that I may know something either tonight or tomorrow as to the interview. I will inform you as soon as I know anything. As for now, let us keep praying for positive outcomes!
Thanks!
Mike
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Adding my prayers. I am so grateful for all the prayers that were offered during my surgery and recovery - it's the least I can do.
Liz
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So glad I got on and read this post this evening. I will be praying for Kristine and Erlina. Praying for good news and hope, wisdom and direction.
In Christ,
Jan
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I firmly believe in a God of miracles. Each of us needs an answer to prayer and I am trusting God that whatever we go through and whatever our outcome, God is our strength. "I will never leave you nor forsake you" Hebrews 13:5, Deut. 31:6
Skip
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Dear ANA Prayer Warriors,
Erlina has asked me to thank all of you that have been praying and sending your thoughts of healing to Kristine and her. She reports to me that the Dr. Slattery interview went well and that yes he does work with Dr. Friedman and six other specialists at HEI. I wanted to add my personal thanks as well for what the group did when they responded to my request that we "activate" ourselves. You see what a little payer does, it unites us!
Kristine now feels comfortable and so does her mother! :) I would like to thank Jim and Cheryl R as well you two have provided me with your friendship and knowledge base as well as we made this "leap" of faith together.
Perhaps, they will seek treatment at HEI but at least I know that prayer petitions work and the requests have worked well in the past to ease the pain of this waiting period. Praise God!
Say a prayer of thanksgiving as I will, for each of our shared journeys, but for uniting us across this great distance and welcoming another into our fold!
Thanks again ANA for being a vehicle to allow us to open our hearts in this way!
Mike
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Dear ANA Prayer Warriors,
It has indeed been a long time between messages from Erlina hasn't it? Today dear Warriors, she sent me some news on Kristine's results from her new MRI! Erlina reports to me that there has been no new growth and the 2 tumors she has 1 in her thoracic and 1 in the lumbar are the same size.
However, the tumor in her ear grew it is now 3 x 2.2 x 2.7cm and pretty large. Erlina thinks she might need another surgery. Erlina is Fed-Exing a copy to Dr. Slattery and she is setting up a phone conference. Erlina is praying that there will be other options than surgery. After the 2 surgeries Erlina says that Kristine is now very scared. She is still recovering from her surgeries. But with our steady help through our prayers Erlina feels that Kristine is getting stronger!
The neurologist in San Diego says that the tumor in her left side is now compressing on her facial nerve and eyes and that she now has double vision.
Please join me in continuing to offer up prayers for Erlina and her daughter Kristine that she continues to make the right choices in her medical care , that she experiences relief from the pain and that she feels stronger and stronger.
Thank you all!
Mike
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Mike ~
Thanks for the relatively encouraging update. I'll be sure to include Kristine and Erlina in my prayers.
Jim
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I ll pray for them too.I pray Gods hand over them.:-)
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Praying with you.
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Dear Prayer Warriors,
Thank you one and all!
Mike
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Dear Prayer Warriors,
Erlina has contacted me again (yesterday) and she reports to me that Dr. Slattery has informed Erlina and her daughter Kristine that she ( Kristine) unfortunately will have to have surgery there is no other option at this point (in his opinion). The sad thing he told them is that she will lose hearing in her AN affected ear.
Erlina and Kristine are understandibly frightened this will be her third surgery. It has been scheduled for November 29th. They have been told that the recovery period is 1 to 2 months and that the surgery will last for 5 to 6 hours.
They don't know what to expect, and not being one afflicted with NF2, I don't know what to tell them to expect either! The thing of it is Erlina has visited and seen the NF2 website and has been frightened because of all the information.
Please continue to pray Prayer Warriors and I will continue to contact by PM members who I think can be more helpful.
Mike
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Praying for them.
Karen
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My prayers are added as well.
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It has been scheduled for November 29th. They have been told that the recovery period is 1 to 2 months and that the surgery will last for 5 to 6 hours.
Any news on how the surgery went/is going? I had Dr. Slattery. My experience was just as he described. My surgery was 5 or 6 hours and I was back at work in two months.
Prayers going up...
Liz
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EXXtra prayers on this day of surgery.
karen
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To everyone,
Thank you for all of your prayers of support, I do not know the outcome but I suppose I will find out soon! Prayer is powerful! I know we the Prayer Warriors, are doing good for them. Bless you!
Mike
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Thank you, Mike, for caring so much for your friend and for sharing. I hope all went well. I haven't bee on here in a while and am reading some of the updates.
I will be praying here in Maryland!
Keri