ANA Discussion Forum
Treatment Options => Radiation / Radiosurgery => Topic started by: Berta on May 31, 2024, 10:40:04 am
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This study (2021) is one of the few I've found that compares GK vs LINAC. I'm having trouble understanding this conclusion: GK decreased odds of trigeminal nerve (TN) impairment ….while LINAC did not impact TN function. Isn't that the same thing? Anyone out there better at understanding the difference here??
Here's the link: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8579095/
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The way I read it is that neither GL nor LINAC has much of an impact on Trigeminal Nerve impairment (which I would guess is probably true with all radiation treatment), but GK is slightly better (OR 0.71, 95% CI 0.41-1.22) versus (OR 1.13, 95% CI 0.64-2.00) for LINAC. And LINAC is slightly better when it comes to Tinnitus (OR 0.15, 95% CI 0.03-0.87) versus (OR 0.70, 95% CI 0.48-1.01) for GK.
The telling statement may be the final statement: "Future studies are warranted to investigate the efficacy of GK and LINAC SRS more directly."
So, this study by itself may not be persuasive in choosing CK or LINAC over the other. More research needs to be done.
At least that's how I understand it.
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So I have had 5 years of atypical trigeminal type pain after Cyberknife which have mystified my specialist. My AN is ipsilateral to the trigeminal nerve so I thought it was that however even with a focus of the MRI on that nerve all seemed normal. Yest stabbbing eye and ear and throat and deep in head that side (could never sleep on that side either) would wake me up almost every night. I saw a neurosurgeon this year for his opinion as he also a TN specialist. He said in his opinion nothing to do with AN (and he operates on that quite a bit) he thought I might have had Herpes simplex viral reactivation especially since I had the vaccine and Covid and RSV post my treatment. My dentist and my doctor said TMJ so I got a dental mouth guard which helped a little. Then about three months ago I saw my naturopath a biochemist and he said lets try high dose PEA and a few other things. This stopped the pain and it has not returned. Full spectrum CBD, CBG and CBN have also helped I think. Anyway am completely pain free for a few months now. Sleeping well also (a few things am taking such as Ecklonia Cava).