ANA Discussion Forum

Treatment Options => Radiation / Radiosurgery => Topic started by: DanFouratt on June 14, 2024, 02:21:33 pm

Title: CK update
Post by: DanFouratt on June 14, 2024, 02:21:33 pm

I finally had my 6-month post CK follow up at a mere 9 months. A little OHS came in the way.  I went back to my ENT for long term follow up.  I have previously posted the Oncology department at UNC is not patient friendly. That aside my tumor was marginally smaller, good news.  Dr. Brown was very satisfied.  I have a year break! I am so glad I went radiation in the fall. Dr. Brown, no so much, but support my decision and was part of the radiation team.

I asked about dropping the contrast, long story short it is easier to drop contrast if you have radiation.  I was told I no longer needed it! 😊 Next meeting with him in 12 months.

Next event for me is in 30 days for his OHS review. This was made possible by the radiation decision. I would not have be able to do the stress test in December, that led to OHS in March and a great recovery form that.

Thank you for your support through the years.

Dan

Title: Re: CK update
Post by: mwatto on June 14, 2024, 08:22:16 pm

Dan I am so happy for you! And also glad re no contrast :-)

Title: Re: CK update
Post by: DanFouratt on June 15, 2024, 02:07:24 pm

Thanks,

Dan

Title: Re: CK update
Post by: UkulelesAreAwesome on June 16, 2024, 04:21:58 pm

Congratulations! That first post radiation MRI is scary. The positive outcomes give the rest of us hope for the future.

Title: Re: CK update
Post by: DodgeAU on June 17, 2024, 03:55:35 pm

Good to hear your progress Dan. I'm on the second year post GK and wish to drop the contrast as well. I hope I can convince the local MRI staff  ;D

Title: Re: CK update
Post by: mwatto on June 18, 2024, 11:00:13 pm

Dodge I am in Perth. I just said if anything is flagged then sure I will come back and have the contrast - everyone agreed this was sensible. The MRI technician  and my specialist. In any event good to know your renal function if you must have it. Imaging is way superior these days to what it was. And after radiotherapy its more about tracking and comparison every year I was told.

Title: Re: CK update
Post by: DodgeAU on June 19, 2024, 01:59:48 am

Thanks Michelle, I will tell the MRI team here in Sydney when Im due for one in September this year. All the best

Title: Re: CK update
Post by: DanFouratt on June 19, 2024, 02:37:41 pm

My doctor said tell them team you do not need it and do not let them change your mind. be firm.  Trust me
I will be!  Good Luck.