ANA Discussion Forum
Treatment Options => Microsurgical Options => Topic started by: Karled on April 20, 2025, 11:40:16 pm
-
Hi all,
I have an Intralabyrinthine schwannoma which started 11 years ago when I woke up one morning with tinnitus in my right ear, my first MRI revealed a meningioma on the left side of my brain, which was unfortunate because all ENT's after that focused it even though I was going deaf in my right ear. It took 6 years of a yearly MRI for any signs of the Intralabyrinthine schwannoma to show on the scan, by which time I was profoundly deaf in my right ear. I had given up on getting any help as once they found out what it was, they deemed it too difficult to operate, and too small for the gamma knife so I just had to live with. This would been ok because thankfully my left ear is fine until I started getting dizzy, which I am now permanently. I have had vestibular physiotherapy which has not helped, I have scheduled another ENT for a second opinion which will happen in June. My question is however has anyone had to deal with something similar, does anyone know if micro surgery could be successful. As far as I understand the damage is to the nerve and not the cochlear, but I'm exactly sure about that. This it the relevant part of my last MRI.
Diffuse enhancements of the right cochlear is identified. It does not extend into the internal acoustic canal. The cochlear is not enlarged when compared to its left counterpart.
Cheers
-
Sounds tricky. You may want to get a consult with a neurotologist since they share the surgery with a neurosurgeon. Maybe they could advise you.