ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: Viva on March 08, 2026, 06:44:16 PM
-
Hi everyone,
After months of reading this forum quietly, I finally decided to post, my Gamma Knife radiosurgery is scheduled for this week.
I’m 48 years old and was diagnosed with an 18 × 11 mm vestibular schwannoma on the left side.
My symptoms so far are fairly mild:
Serviceable hearing
Left-side tinnitus (about 2 years)
Very mild dizziness when turning my head quickly
During imaging they also found an incidental 4 mm petroclival meningioma on the right, close to the trigeminal porus.
I’ll be tested for NF2 in June, although Dr. Slattery at House Ear Clinic told me he does not think this is NF2.
I feel comfortable with the treatment decision, but I would really appreciate hearing from people who have already gone through single-dose radiosurgery for vestibular schwannoma.
A few questions for those who have been through it:
What symptoms did you experience in the first days or weeks after treatment?
Which symptoms are common and expected after radiosurgery?
Which symptoms are NOT common and should trigger a call to the doctor or urgent care?
How long did it take before you started feeling normal again?
Any tips for the first few weeks of recovery (fatigue, dizziness, activity level, steroids, etc.)?
If you had serviceable hearing before treatment, were you able to preserve it long term?
Also, if anyone here has dealt with two tumors at the same time (like a vestibular schwannoma plus a meningioma), hearing about your journey would be especially helpful for me.
I’d really value hearing your experiences and anything you wish someone had told you before or after treatment.
Thank you in advance — this forum has already helped me a lot just by reading everyone’s stories.
Diagnosed 10/2025
18x11 mm VS left side; right 4mm incidental petroclival meningioma close to trigeminal porus
GK scheduled this week @ University of Miami
-
Just adding that even short experiences would really help me, especially about the first week after Gamma Knife.
If anyone remembers what symptoms showed up in the first few days, I’d really appreciate hearing about it. I’m trying to understand what’s normal vs what should trigger a call to the doctor.
Also very interested in hearing from anyone who had more than one tumor.