ANA Discussion Forum
General Category => Inquiries => Topic started by: jacey on January 11, 2007, 05:08:35 am
-
Hi, I posted in symptoms regarding a negative MRI result, just in case its missed i thought i would title the topic more appropriately.
I have all the symptoms of a AN, my ENT specialist sent me for a MRI in a mobile unit, lasted for 10mins, with no contrast, it came up with a negative result. I have had one reply from someone so far regarding a negative result with contrast, has anyone else had a negative result with a MRI with or witout contrast. If you did have a negative reslut, how long was it before the AN was found?
Thanks you for your help.
Best wishes
Jacey
-
HI Jacey,
Insist on a second MRI. A friend of mine had a similar experience here in Ireland and she organised her own MRI. Second time they found a small 7mm An that was giving her some significant symptoms. ANs can be missed if they are small, and sometime they can have a big impact on us even if they're small. Then again, maybe it could be something different? Have they checked for other possibilities? I don't know what your symptoms are.
Allt he best, Lorenzo
-
Hi Jacey,
Doesn't seem like your first MRI was done the way it should have been done. AN's show up much better if contrast is used - dye injected into your arm and quickly makes its way to your brain. They they just glow. I agree that you should get a second one done. My MRI's usually last 40 minutes or so.
Good luck,
Sue in Vancouver
-
Jacey,
Sue and Lorenzo are correct. It could be something else... and without IV Contrast during the MRI, it's very difficult to make a conclusive diagnosis. Maybe another dr would be of help (2nd opinion) as well. 10 min MRI is wow!.... mine have all lasted just approx 1 hr.
Hang in there and hoping they resolve your medical issues soon.
Phyl
-
FYI,
I week before I had contrast with MRI I had a CAT Scan w/o contrast and a MRI w/o contrast. Three days after this I lost all hearing in my left hear. I went to local neurotologist and he ordered one with contrast. There was a 1.0 cm x .7 cm x .6 cm acoustic neuroma that could not be missed. I look at the old MRI and can't find a thing on it. Look at the one a week later and it is lit up like a christmas tree. Insist on another MRI with contrast.
Sandy
-
Def get another mri with contrast. It takes about 45 mins to an hour. mobile unit mri sounds interesting. Not something I think I'd want to do.
let us know how things go!
-
i really appreciate your replies, yes, im going to insist on another MRI with contrast this time. I should be hearing from them in a day or so, to see the specialist and i will let him know what i know about ANs. You wouldve thought that if they were looking for a AN, that contrast wouldve been used, maybe the consultant didnt think about asking for it when he shouldve? Well, I will let you know what happens as an when so to speak.
Best wishes to everyone
Jacey
-
Hi all
I just wanted to tell someone, nothing dramatic or anything but, just had a phone call from the hospital, at 8am!! It took me by surprise a bit, you probably know by now how slow the NHS can be at times. The lady said i need to be seen this week and made an appointment for me for tomorrow, is it because i complained to my GP last week, or something else. Well, i will let you know tomorrow the outcome. Im starting to feel nervous already, have they now found something or will i have to battle for the second opinion? (the latter i reckon)!
Best wishes to everyone.
Jacey
-
Jacey...Ensure that you get the maximum input from your consultation and do not be 'fobbed off'. Best of luck and we look forward to how it all went for you.
Derek
-
Jacey:
Yikes. Thank goodness things are moving right along now.
I will be thinking of you tomorrow.
Kathy
-
Jacey, whatever the reason, I am glad you are being seen tomorrow. Please know that we are all here to help you weed through this very confusing process. I am keeping you in my thoughts and prayers.
Hugs,
Cheryl
-
Jacey check back in with us and let us know what happens. Keeping you in my prayers!
Michelle
-
Hi All
Thank you for your thoughts and prayers, it means a lot, thank you.
Well, oh dear, what an ongoing nightmare, sat at the clinic for 1 hour and 15 mins, to then be told that i had been booked in at the wrong clinic >:( !! Its supposed to be on Thursday. So, now im waiting to hear from the clinic this afternoon to book me in. I cant begin tell you what the frustration is like. Its just one thing after another.
So, will let you know the ongoing saga, later in the week!!
Bye for now.
Jacey.
-
Hang on in there Jacey...no wonder folk go 'private' to avoid such NHS bureaucratic blunders which merely adds to the stress.
Best of luck.
Derek
-
`If I may say so, the NHS sounds just as bad as the irish system that kicked me out. Fantastic care. Fortunately at least we have the option of going private. Hang in there Jacey, we're all wih you!
:) Lorenzo
-
Hi Everyone,
Just to let you know, Im now waiting to see if the radiologist thinks I should have another MRI with contrast done or not, apparently its down to them not the consultant, thats what i was told anyway!
Regardless of what the radiologist thinks, I will be getting another one done with contrast, privately, I havent been left much of an option, if i ask to see another ENT specialist for a second opinion it will take weeks again.
My ear has been dreadful the past week, the pain and pressure in the ear getting too much to bear, spent most of Wednsday in bed. I had a hearing test done yesterday, I wasnt told what the results were, I thought the consultant would tell me, but he was in such a bad mood I forgot to ask. When they stick that thing in your ear and it starts making a noise, eek, the pain in my ear, I think it was the instrument to test the pressure.
Well, thats all for now. Thank you all for your support.
Best wishes
Jacey
-
Hey jacey.
one thing that helped the pressure in my ear was if you take a coffee mug or styrofoam cup and put a washcloth in and hot water and hold it up to your ear (bend your head sideways) the heat helps to open the ear up some. Just be careful not to burn your ear!
keep us updated!
-
Hi
Thanks for the info on the ear pressure problem, I will certainly give it a try. Funny you say that, when my mum went abroad via aeroplane, she used to suffer terrible pain in her ears and found a cure by holding two cups over her ears during take off and landing, she said it really did work, felt a bit silly, but who cares eh!!
I have found out i have private insurance cover,and there are no pre conditions, so I can really go for it now, just waiting to hear from the hospital to fit me in for a MRI this week!!!!
The consultant has his appointments on Mondays, i might even have an answer by Monday evening next week. I hope so.
I was wobbling about all over the place last night, my partner and I laugh about it, he is always saying you drunk again woman!! You have to laugh really dont you. I was having a small dispute with my GP about balance and dizziness, he said they are the same thing, i kept saying i didnt think they were, i dont feel dizzy when i go off balance, its like someone either gently or pulling hard a rug from beneath my feet, i have to grab something because it feels like im going to fall, but ah well, Drs know best eh!
Hope everyone is ok, and not feeliing too bad today.
Jacey.
-
Yeah I felt pretty silly with the cup on my ear on the plane but I was miserable enough I didn't care what anyone thought LOL
Yep the dizzy and loss of balance are not the same to me either. I can get disorientated like a pilot that loses his bearings. What do doctors know they only PRACTICE at work all day LOL