ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: Yvette on July 02, 2007, 08:07:48 pm

Title: Ok, tell me please!
Post by: Yvette on July 02, 2007, 08:07:48 pm
Hi guys, How long before that "fat head" feeling, tightness, or as I remember one ANer aptly describing-the feeling of your head being over stuffed with packing material-feeling goes away? Especially after excertion, my head gets tight and over stuffed:-(   The feeling is not 24/7 as it was after surgery, but still occurs very often. How long will this go on? Yvette
Title: Re: Ok, tell me please!
Post by: Brendalu on July 03, 2007, 05:11:02 am
Yvette,
For me that "tight" feeling last for about three or four months.  It has been almost two years since my surgery and I still get that feeling if I am overly stressed or very tired.  I think it is different for each of us, as is almost everything else about this AN business.  I would ask the doc about it if it persists or you become really uncomfortable with it.
Brendalu
Title: Re: Ok, tell me please!
Post by: Yvette on July 03, 2007, 10:26:03 am
Hey Brendalu, thank you for the reply. Hey-what does the caption underneath the picture of your dogs refer to? Yvette
Title: Re: Ok, tell me please!
Post by: eugd on July 03, 2007, 04:21:06 pm
Yvette did that pocket ever resolve on its own or did you have any procedure?
Title: Re: Ok, tell me please!
Post by: NF-2er on July 03, 2007, 09:37:51 pm
Hi Yvette;

   I think each is individual. Thankfully it is not 24/7 for you. Mine lasted 2 or 3 months.
   I have read of some, however, some coming out of AN surgery having developed a type of migraine syndrome.
   If there was lost balance function, the feeling would take longer to resolve and come on easier.
   Hang in there, and if the otologist or neurosurgeon can't help, I'd see a neurologist if it were happening to me.

   NF-2er
Title: Re: Ok, tell me please!
Post by: Brendalu on July 04, 2007, 06:32:32 am
Yvette,
I need to change the caption.  It referred to the pic I tried to post of my incision with the staples in it.  My grandkids thought it looked like a zipper and I told them it was so I could add my own fat whenever needed.  The picture you see now is my two Pugs, Saras' Sunshine Lady (fawn and ten years old) and Sophie LaRoo (black and fourteen months old).  Sara was my savior after my surgery and Sophie has made me smile on days I thought I didn't have anymore smiles left!
Brendalu
Title: Re: Ok, tell me please!
Post by: Yvette on July 08, 2007, 06:01:01 pm
Thank you everyone for the responses. To those who read my post but didn't reply-does this mean you do not get that tight feeling? Never did? I wonder:-/

Give your puppies a hug from me Brendalu, and Eugene, I emailed you. Take care guys, Yvette

p.s. If anyone was wondering, the fluid pocket I developed under the incision reabsorbed without any intervention. No serious exercise workouts for me-only walking and light stuff again.
Title: Re: Ok, tell me please!
Post by: Windsong on July 08, 2007, 08:06:35 pm
HI Yvette,
I get the tight feeling still after two years ( and I had rads not an op)  but it's an off and on again feeling..... I am not sure if it is  exacerbated with tiredness only but it seems that way... overdoing, not enough sleep, that sort of thing. It prickles too lol... not nice... but goes away....comes back...goes away.
W.
Title: Re: Ok, tell me please!
Post by: Omaschwannoma on July 09, 2007, 08:24:28 am
Hi Yvette,

Tightness on and off here too.  I'm 2.5 years post surgery.
Title: Re: Ok, tell me please!
Post by: krbonner on July 09, 2007, 10:05:25 am
Thank you everyone for the responses. To those who read my post but didn't reply-does this mean you do not get that tight feeling? Never did? I wonder:-/

Don't have to wonder about me!   ;)

The skin over my incision feeling tight for a few weeks post-op, but that's it.  I didn't reply because I can't relate to the sensation very well.  It seems we all have our own, personal reactions to these dang ANs...

Katie
Title: Re: Ok, tell me please!
Post by: leapyrtwins on July 09, 2007, 10:30:20 am
As someone said, I think everyone is different.  I am 5 1/2 weeks post-surgery and have never had a "tight" feeling.  Then again, the left side of my head is still fairly numb at this point.  My biggest problem is my left eye (AN was on left) which seems to get very tired and bloodshot.  It feels almost like eye strain.  I originally had double-vision for 3-4 days postsurgery, but not since then.  I also have no facial nerve damage, so I don't think that's part of the eye problem.   Anyone else have a problem with a "tired" eye?
Title: Re: Ok, tell me please!
Post by: jimmy r on July 09, 2007, 10:45:17 am
I am 3 weeks post-op and do feel the tightness. I also still have bliurry vision, although sometimes it is ok.
Title: Re: Ok, tell me please!
Post by: Yvette on July 09, 2007, 04:11:51 pm
Thanks for the input guys, I was beginning to wonder if I was just "weird." This is such a great forum, the feedback is so helpful. Hey Leapyrtwins-I had double vision briefly after surgery, but it went away, tired eyes too. I'm 6 months out, and am just now getting the feeling back around the incision and my outer ear. Katie-does your incision itch? Have a great day everyone, Yvette
Title: Re: Ok, tell me please!
Post by: Cheryl R on July 10, 2007, 08:51:17 am
I have heard of ANers who did have a bit of eye problems even though they have no facial problems.      I am wondering if you would try some eye lubrication  it might help the eye.    There are tears which is the thinnest liquid and also one that is heavier gel that works very well.   Then one goes on to the gels in the tube for very dry eye or overnight use.        My personal favorite is the med weight gel and love Refresh Liquigel.         There are many brands and one can experiment.     There are some kinds with perservative in them that some people can not tolerate.    I like the one I use as it is in a bottle and not the little individual vials.         These are available in drug and discounts stores.    Target in  my area though doesn't sell the smaller bottle of the Refresh Liquigel ,only the bigger econmy size.    Luckily Walmart still does.   
   The mention of the bloodshot eye is what is making me wonder if a little dryness may be some of your problem.      You should see an eye doctor if trying lubrication doesn't work.     
                 Good luck in your recovery.                       Cheryl R
Title: Re: Ok, tell me please!
Post by: leapyrtwins on July 10, 2007, 10:17:05 am
Thanks for all the advice/suggestions about my eye.

I have used eye drops and they do help, so maybe it is dryness.  I'll definitely try some of the specific drops you suggest, Cheryl.

Jimmy R - all I can say is give it time.  My eyes were a problem for a while.  Originally I didn't want to open them because they hurt so much.  Then when I did open them, I tended to close one because it eliminated my double vision.  As the days have progressed, my eyes have gotten much better.   It took me about 3 weeks to start reading again.  It's not that I couldn't, but it was too uncomfortable.  It also took my eyes time to adjust to my new style of walking.  As I've gotten steadier, my eyes feel better.  Hang in there; and keep us posted on your progress.

Title: Re: Ok, tell me please!
Post by: krbonner on July 10, 2007, 12:06:27 pm
Katie-does your incision itch? Have a great day everyone, Yvette

It does off-and-on in spurts.  Don't know what that's about.  Lately, the bald spot on the back of my head where the head frame  was attached has been very itchy...

Katie
Title: Re: Ok, tell me please!
Post by: Yvette on July 11, 2007, 10:21:11 pm
Hi Katie, what a hoot, I have bald spots where the head frame was as well. I thought I was the only one! I wonder if our hair will grow back there-perhaps your itching is a signaling of that starting! My incision still has an itchy day now and then. Don't know why either. Anybody out there have any ideas?
Title: Re: Ok, tell me please!
Post by: Jim Scott on July 14, 2007, 02:57:34 pm
I experienced quite a bit of 'tightness' around the site where the titanium mesh was used to fill the space taken out of my skull for the surgery.  I mentioned it to my surgeon on a follow-up visit and he seemed unconcerned.  He said this was just normal healing.  The feeling disappeared about 10 months post-op and I now believe he was correct and that the surgery site has finally, totally healed. 

Of course, we all had different types of procedures and heal differently so I don't expect everyone to have had a similar experience.  I just wanted to add mine for Yvette's benefit, for whatever that may be worth to her.

Jim
Title: Re: Ok, tell me please!
Post by: leapyrtwins on July 14, 2007, 06:43:36 pm
I experienced quite a bit of 'tightness' around the site where the titanium mesh was used to fill the space taken out of my skull for the surgery.

Jim

Jim - 

I'm still a newbie, so explain, please.  You mention titanium mesh used to fill space.  I know I have titanium plates and screws in my skull.  I also had an abdominal fat graft; my surgeons used abdominal fat to fill in the space in my skull.  They also used the fat to cover the titanium plates, I believe.  So, is it possible I also have titatnium mesh in my skull; or did the surgeons use my fat instead?  I just assumed the fat graft was common procedure.  Is it basically a surgeon's choice?  Is it a new protocol (my surgery was 5/31/07)?  I really had and have no issues with the fat graft, I'm just curious about the mesh.

Jan
Title: Re: Ok, tell me please!
Post by: Patti UT on July 15, 2007, 10:25:19 pm
Yvette,
  Do a search for a thread called "fishbowl head"  it will make you laugh, cuz it's the prerfect descrirtion, along with Baloon head, and Cap'n Deb's Wonky head


patti ut
Title: Re: Ok, tell me please!
Post by: Yvette on July 17, 2007, 01:36:28 am
Thanks Patti and Jim!! Yvette