ANA Discussion Forum
General Category => AN Issues => Topic started by: Dan on September 04, 2007, 07:00:01 pm
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I'm visiting my parents in the USA, and they intoduced me to someone in our church that had an AN zapped (GK) 3 years ago. He's doing good. I asked him if he had contact with anyone that had had surgery, he said yes there is a lady that had a 4cm AN removed and a man that had a 1.7cm AN removed living in town. We didn't have very much time to talk but I'm going to try and contact him again. I hit me after our conversation that ANs are suppose to be pretty rare (somewhere around 1:100 000-1:150 000) and so how could there be 4 of us living in or from a town with a populatin of only 17 000. There is not a Hospital or Dr. within 120 miles that specializes in ANs. I'm going to try and meet with them all and find more out but I find this pretty strange. Has anyone heard of something like this before?
Dan from Germany visiting in good old USA
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Hi Dan:
I guess you did find a support group in the USA!!
That # does sound a bit odd. Maybe you will be the first to find a common thread. Could your AN have been around since you lived in your hometown?
I have read that 1 in 100,000 per year is diagnosed and that many show up at autopsy. I can't remember the
figure if you include ANs found at autopsy. I am sure someone will know.
Have a good vacation and keep us posted on your support group, Kathy
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If you do the math, it is not so odd. 1 in 100,000 per year is the usual approximate number. For a group of 17,000, that is about 1 every 6 years. After 24 years, you would have 4 of them - on average, that is. There will be a city of that size somewhere with twice that many, and another somewhere with half that many. Not so odd, really. About 1 out of every 1000 people wind up with one sometime in their lifetime, although not all of them are ever diagnosed.
Hope you enjoy your visit to the USA.
Steve
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I live in a town that has a population around 20,000. To my knowledge I know of at least 7-maybe 8 people who have had these AN's throughtout the years. Before I knew I had another one because I am an Nf2- I was kidding with my ENT that we must have something in our water. Before I knew it the joke was on me because now I have another one. Go Figure. I am the only one that opted for Radiation. Why do we have a cluster in this area and our town-who knows? Thanks_Ron
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Okay you math freaks, tell me this....What do you think the percentage of the population of the US has an AN? I read that about 7% of the population has diabetes (which I am one of >:() and I was wondering what the percentage would be of AN's. I just thought of that and thought that would be interesting to know. I am math challenged, so wondered if anybody out there has seen that number or can figure that number out! It must be just a tenth of a percent...but go to it, math geniuses!!
Sue in Vancouver USA
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Sue: I LOVE NUMBERS !!! But since this surgery, I can't think worth ----!!! And I don't ever want to THINK HARD again !!!!!
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Just a guess, but I'd say Steve's lifetime number of 1/1000 has to be multiplied by the median age divided by life expectancy to estimate the current percentage. Say median age = 40 and life expectancy = 80 to keep it easy. Thats 1/1000 x 40/80 = 1/2000 or 0.05%. That's about 8 AN's in a town of 17,000.
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Well, how does this sound for the numbers. I live in a town with the population of approx. 40,000 and my radiooncologist "radiates" 50 plus AN's yearly. That does not account for the microsurgeries or those who go elsewhere. Now that I'm thinking this through, it's alot, isn't it?
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Hi,
I talked to an audiologist today and he told me in 26 years of giving hearing tests (and sending the nerve damaged ones for an MRI) he has never had someone with an AN tumor...... his office is in Vancouver, WA . There are a ton of people there.
I live about 50 miles north of there and I know 3 other people in my small town who have had AN tumors..... including my next door neighbor (who has had three) and her name is Margaret too !!! how weird is that??
Margaret
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Well, you guys are trying...at least the ones who can think! ;D hee hee
I guess when you think how many people get diagnosed with, say, diabetes each week in a medium sized town...it's quite a few people. There are classes all the time at hospitals, what I call Diabetes University, and they have several a week - daytime and nighttime classes and my class had 20 people in it or so...and this was just one hospital. Some are repeating the class...so say 10 new patients each week...No way are AN patients being diagnosed in that quantitiy which would be hundreds each month for diabetes (say 6 hospitals x minimum 20 new people each week). So the point being...I'm not sure what the point is now..I think I have a headache! :D
Anyway, 0.05% sounds good to me. Or bad, depending on your point of view.
Sue in Vancouver USA
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just my opinion,i think the reason that more and more are being found,is due to new technology.
my neighbor has 22 yr old daughter,woke up one morning and she had the famous crook-ed
smile.had a cat and found 5.3cm abnormality.anybody got a number for erin brockovich.
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The latest stats were 2 per 100,000 which is attributed to better diagnostic technology. Before people just didn't know and often weren't found until after they had died. (I personally think they all died from very old age! ;D)
Funny once you start talking to people they seem to know someone who had one or a friend of a friend. Still I like to think it's because I was special and have been able to meet the bestest people!
M
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Michelle -
I just have to say that I've read a few of your posts tonight and I just LOVE your sense of humor. I usually log onto this forum when my kids are asleep, the work I dragged home from the office is done, I've just folded multiple loads of laundry, and I'm tired and crabby. Your posts are like a breath of fresh air and usually provide me with a chuckle.
Thanks so much,
Jan