ANA Discussion Forum

General Category => AN Issues => Topic started by: Nicole222 on July 12, 2008, 12:59:48 pm

Title: Meningiomas
Post by: Nicole222 on July 12, 2008, 12:59:48 pm

Does anyone know of a support site similar to this one for people with meningiomas.  I know someone who has 3 and really needs support.

Any suggestions would be greatly appreciated.   Thanks, Nicole :)

Title: Re: Meningiomas
Post by: cmp on July 12, 2008, 01:36:04 pm

Hi Nicole--

Here is a link to the page of regional and online support groups at the "Brain Tumor Foundation" site:

http://www.braintumorfoundation.org/btsm_supportgroups.php

If you scroll all the way the page, there are two online groups that focus on meningiomas.

Sorry to hear about your friend, and hope this info may help a bit.

Carrie

Title: Re: Meningiomas
Post by: sgerrard on July 12, 2008, 07:08:14 pm

Hi Nicole,

If she has no luck finding one, she is always welcome to join us. We have a few members who have or had meningiomas, and besides, we take in all sorts of strays and misfits - any wonky-head symptom or strange blob in your in head is good enough. :)

Steve

Title: Re: Meningiomas
Post by: MaryBKAriz on July 12, 2008, 07:25:17 pm

Below is a site for your friend. Of course all are welcome here, too.

I read the book the women wrote about her experiences and then started the site. She is a pro baseball player's wife.

Mary

www.meningiomamommas.org

Title: Re: Meningiomas
Post by: ppearl214 on July 13, 2008, 07:16:30 am

Hey Nicole,

FYI.... Sheryl (on this site) has just gone through 2 Meningioma treatments with her husband. The first he had surgically done... the 2nd was CK last October.  Good reference for 2 forms of treatments (ie: microsurgical and radio)........As a patient-to-patient resource, she may be of help as well. Just a thought.

Wellness wishes to your friend!
Phyl