ANA Discussion Forum
General Category => AN Issues => Topic started by: tatianne on January 14, 2009, 08:56:39 am
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Hi everyone !
A lot of new names here that I dont recognize and a few that are familiar.
For those who dont know me, I was diagnosed with a right side 8mm AN in July 2006.
Since then I have been have been having yearly MRIs to track the growth.
July 2006 8mm
Jan 2007 9.5 mm
Jan 2008 15 mm ( 5.5 mm of growth in one year)
At that point I was really questioning wether treatment should start but was advised by both my neurosurgeon and neurotologist to wait one more year. My AN was still complelty in the IAC and he felt it could still stop growing but also told me chances are treatments will be need sooner rather then later.
I had my annual MRI yesterday, it went ok with help of the relaxing meds, couldnt live without those !
I see my Neuro on Feb 3, ( yes Im in Canada and things are a little slow)..
I find the waiting really diffcult, each year the same anxiety during this time.
Hoping and praying for a stable AN that has decided to not grow this year.
Hearing is still the same, pretty good, I can use the phone with my AN ear and Im thankful for this.
Symptoms continue to be my friendly ringing and occassionaly a full blocked feeling.
My balance is a little off but not so bad, so symptoms and hearing stable since 2006, no change.
The advice I was given last year was if the hearing is still stable, GK is the way to go and if the hearing is gone surgery.
So waiting to find out if this is the year for treatment or another year of waiting.
I used to be around a lot on this forum but I have health anxiety and I realized as much as I loved sharing and helping others it was making me more stressed. So, usually around this time of year I come around and give my update, get to know whats whats with everyone.
God Bless
Tatianne
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Hi Tatianne,
Visiting us once a year is fine. Having a life away from the forum is something we all strive for. ;)
I sure hope you don't have another 5 mm of growth; stable would be a very nice result for this MRI. It is great that your symptoms have not changed, and your hearing is still working so well. I hope that continues as well. Best wishes!
Steve
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I am one of the new names around and I can tell you that I did not even want to read or hear anything about AN when I found out. I figured that ignorance about AN for me was bliss. The less I knew the less I would stress out. I am post op about 3 1/2 months and I feel great, so I figured that I can maybe encourage others that are going through this (what I call) speedbump in life. This decision is very difficult and again I am so thankful to my support group for giving me the information that I needed about others who had gone through this. May the Lord guide you in your journey and decision, if I can give any encouragement or information please let me know. God Bless....
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Tatianne -
good luck with the MRI results; let us know how it goes :)
Jan
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Tatianne ~
Welcome back and thanks for the update. I think we can all understand your need to think about things other than an acoustic neuroma every day. Remember, the majority of folks that visit here are post-surgery or post-radiation, which changes your point of view quite a bit. I join many others in hoping your MRI showed no growth this year and that you can conquer your anxiety enough to enjoy your life. We'll look for your update following your February 3rd consultation with the neurosurgeon. Many prayers will be with you. :)
Jim
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Thanks everyone, you guys are still the best as always !
MUahhhhhhhhhhhhhhh!
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Hi Tatianne -
I'm crossing my fingers for you that your MRI will show no new growth. Good luck and keep us posted.
Wendy
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Hi Tatianne
I too am a watch and waiter and a proud owner of a tiny little intracanicular (and a newbie, and a Canadian - in Toronto). I pretty much have no symptoms at this point either.
I hope you see no growth and can put off any decision/worry for another year. I am encouraged to see that you have been able to delay any aggressive treatment for several years but 5mm in one year, YIKES!
Good luck - I will be very interested to hear of your results.
PS - my secret for next year, BOOK your ENT appointment when you get notice of your MRI 6 months earlier. I havent' quite done it yet - but already asked the ENT because the wait was so so so hard between MRI and consult. He said book for a few days later.