ANA Discussion Forum

General Category => AN Issues => Topic started by: Lupy on April 05, 2009, 04:28:58 am

Title: Quick survey for my peace of mind...
Post by: Lupy on April 05, 2009, 04:28:58 am
What was the longest anyone was on any form of steroid - pre or post op?

Me: 3 weeks, in total, pre op, and counting.
Title: Re: Quick survey for my peace of mind...
Post by: NancyMc on April 05, 2009, 04:45:31 am
Why are you on them?
I was on them for five years for inflammatory arthritis but weaned off very gradually when they caused osteopenia.
Title: Re: Quick survey for my peace of mind...
Post by: Lupy on April 05, 2009, 04:59:41 am
I mentioned in my previous thread - just to deal with some pre op tumour issues, but my op may not be for two months. Ugh! The waiting game is never fun, and steroids don't help the issue! Haha!
Title: Re: Quick survey for my peace of mind...
Post by: Kim Zingale on April 05, 2009, 05:22:03 am
My surgery was on Feb. 9, so I imagine I started on Decadron immediately afterward, and I took my last taper dose on Feb. 21. So I think it was about two weeks?

Kim
Title: Re: Quick survey for my peace of mind...
Post by: joebloggs on April 05, 2009, 06:00:11 am
I was on dexmethasone post-op for six days to bring down swelling around the facial nerve which was causing my eye not to close.  Three days on a full tablet 4 times a day and three day on a half tablet 4 times a day.  Steroid worked and glad I'm off it, didn't sleep very well while I was on it.
Title: Re: Quick survey for my peace of mind...
Post by: nteeman on April 05, 2009, 06:28:08 am
My surgery was on January 27 and I was on dexemethesone from then until February 12.

 :)

Neal
Title: Re: Quick survey for my peace of mind...
Post by: EJTampa on April 05, 2009, 07:05:59 am
2 weeks of Decadron started a few days after surgery.  Was a decreasing dose though, as others had mentioned.
 
Ernie
Title: Re: Quick survey for my peace of mind...
Post by: cindyj on April 05, 2009, 07:09:37 am
2 weeks of Decadron immediately following surgery...

Cindy
Title: Re: Quick survey for my peace of mind...
Post by: Kathy M on April 05, 2009, 07:45:06 am
I was on Decadron for a week after surgery, but started having major headaches as soon as I ran out.  After 4 days of steroid-free misery, they put me back on them for another week.  That did the trick!

Kathy
Title: Re: Quick survey for my peace of mind...
Post by: DLM4me on April 05, 2009, 09:11:34 am
I've been on prednisone for almost a year for a degenerative spondylitis problem in my lower back; my doctors have yet to discuss with me anything about steroids following surgery this week.  This thread has me wondering!
Title: Re: Quick survey for my peace of mind...
Post by: bpham on April 05, 2009, 09:35:33 am
I was on steriod for 15 days before the operation and 15 days after.  1 months before that I was on for 3 weeks, all for partial facial weakness problem caused by the tumor
Title: Re: Quick survey for my peace of mind...
Post by: lori67 on April 05, 2009, 11:16:00 am
I was on them for 8 days total, beginning surgery day.  At that point, my blood sugar was so off the wall that it was causing me to pass out and give myself a nice black eye to match the one I had from the actual surgery!  So, we stopped them at that point.  Thank goodness!

And I recall not sleeping very well while on them also.

Lori
Title: Re: Quick survey for my peace of mind...
Post by: Cheryl R on April 05, 2009, 11:55:26 am
For 3 of the surgeries I was only on the IV decadron while in the hospital.     The surgery a year ago I was on some oral also for a few days and quickly on the tapered dose.     Maybe only a week.     
                                       Cheryl R
Title: Re: Quick survey for my peace of mind...
Post by: Jim Scott on April 05, 2009, 01:34:03 pm
Steroids in the hospital (4½ days) then a 5 day decreasing dose at home.  No problems that I can recall. 

Jim
Title: Re: Quick survey for my peace of mind...
Post by: mk on April 05, 2009, 06:20:21 pm
I think I can beat everybody in this survey.

I was on prednisone twice, for sudden hearing loss,  for about 6 weeks each time - First two on 40 mgs, and then a very slow taper. Not sure why the ENT prescribed such a lengthy course, since from what I have seen here this is not typical.  ??? Anyway, I didn't have any major problems, other than some steroid high and feeling dehydrated.  Oh, and I had a short IV course right after the GK procedure.

 Marianna
Title: Re: Quick survey for my peace of mind...
Post by: Lupy on April 06, 2009, 03:35:55 am
Thanks guys! Seems like I must be quite sensitive to Decadron. I have been on it for 5 days and feel awful! Depressed and blood sugar levels all over the place, which is very unlike me. And all of this is pre op! I think the doctors are changing me over to another steroid tomorrow so maybe that will be better! I hope so anyway as I have at least two months to wait until surgery and 2 months of this would do my head in!
Title: Re: Quick survey for my peace of mind...
Post by: cindyj on April 06, 2009, 02:13:56 pm
I think many people have trouble or weird things happening while on Decadron.  I know I had terrible nightmares, and even while awake, I would smell this horrible, horrible smell.  I was very glad when I took the last one...it is, apparently, wonderful and necessary stuff, though :P

Cindy
Title: Re: Quick survey for my peace of mind...
Post by: cherrypiper on April 08, 2009, 09:16:34 pm
2 weeks post surgery for me.
Title: Re: Quick survey for my peace of mind...
Post by: AMD on April 09, 2009, 04:54:05 pm
I think a total of 4 weeks for me, but I probably could have weaned a week sooner.
Title: Re: Quick survey for my peace of mind...
Post by: rezski on April 09, 2009, 05:48:14 pm
I was on prednisone from the late 60's till 1990 for my Crohn's.  I am now in osteopenia.
Title: Re: Quick survey for my peace of mind...
Post by: Desilu on April 09, 2009, 07:06:10 pm
I was on prednisone for two weeks after surgery but still had some temporary paralysis so the doctor put me on it for two more weeks, slowly taking me off of it. After that, things were fine. I wish you the best. Ann