ANA Discussion Forum
Post-Treatment => Facial Issues => Topic started by: Vivian B. on May 27, 2009, 05:06:14 am
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Hello Everybody,
For the past week or so I have had some swelling on the side of my AN. I had noticied this sometimes in the past even prior to being diagnosed. I always thought that it was sinus pressure.
Has anyone had this symptom prior to having treatment? Do you think it is AN related?
I welcome any thoughts. Thank you.
Vivian B.
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Thanks Phyl for moving this new post. I actually wasn't sure about where to post it.
Vivian
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Vivian,
If one looks really closely at my face, they will see I am swollen on the side I have my facial neuroma. Some days it is more noticeable. My face also aches. I'm very gentle when applying make up. My left lip is also slightly pulled up, my left eye is more buggier and my left nostril looks like it is closed over. Sometimes it is hard for me to breath through my left nostril.
Hope this helps,
Anne Marie
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Hi Anne Marie,
Thanks for replying. I can definitely relate to your symptoms. My face feels more like it's been stuffed with cotton balls. Anyway, you look great!
Vivian
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You are too kind Vivian. Wait until you see me in person. Maybe we can meet up when I see Dr Rutka in July.
Anne Marie
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Hi Vivian,
is your face actually swollen, or does it feel swollen? If it is really swollen I have no idea what it would be causing it, it would be probably unrelated to the tumor. But if it is only a feeling, I would suspect that your trigeminal nerve (nerve V) is acting up (mine has been acting up too recently by the way). Given the size and location of your meningioma it is not unlikely that it is affecting this particular nerve, and if it does you may get all sorts of strange sensations. This is something you may want to ask your doctor about this the next time you see him.
I hope that other than that you ar feeling well.
Best regards,
Marianna
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Hi Marianna,
Thanks for replying. No, it actually looks swollen. I have had it in the past even prior to being diagnosed. It does subside. It could also be from sinuses as I have had two colds in the past month, and pretty bad ones. When I last saw the Neuro. and surgeon, and they actually checked my face to see if it was still symetrical. I had no swelling at the time. I will ask next time I go.
Anne Marie,
When you come to see Dr. Rutka, let me know what your schedule is like. Would love to see you. I would also like to meet you Marianna if you are ever in Toronto for any Dr's appts.
Vivian
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Hi Vivian,
No facial swelling, just a lot of "pulling" sensations on my right side of my face, back of head, side of head and neck. I do feel at times that I have a sore throat? Any one else?
LisaP ;D
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Hi Lisa,
Thanks for replying. I also have some of your symptoms, neck and back of head pain even sore throat. Sometimes I even feel pain in the back of my good ear which worries me. I guess it's all part of having something stuck where it should not be!!!!!!!!
Vivian
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Hi:
I am 6 months post op from retrosigmoid and I definetly have facial swelling and tender pain. It has gotton better but it does look swollen and talking is more difficult. I had headaches all weekend and my face is swollen so.. also my head and ear hurt today...I hope all this buisness goes away some day...
My doctor told it may take 2 years to recover form facial nerve damage with 90% recovery. Not sure if there is anything you can do but wait it out. Sorry you have pain and hang in there.
Bell
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Hi Bell,
Thanks for replying and I am sorry to hear you have facial swelling. The good news is it will get better overtime. Be patient and take one day at at time. My facial swelling is a little better this week but comes and goes. I will have to wait it out as there is not much the doctors can do right now. My next MRI will determine growth and possible treatment.
Vivian
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Hi I noticed i have facial swelling on my lip am not sure what causes this.
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Hi jazzfunkane,
Thanks for replying. I am beginning to think that all these weird symptoms are just a normal part of this process. Keep well.
Vivian
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Hi Vivian,
Glad to know that some of these symptoms are not my imagination. I too have pain or a funny sensation in my good ear. Anyone know why this happens to the uneffected side? Maybe Jim or Steve would know!!
LisaP ;D
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Hi Lisa,
I am wondering the same thing. I keep on thinking that it is all related to having a foreign body that is not suppose to be where it is and everything around it is acting up as a result. All the best!
Vivian
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Hi Vivian,
Glad to know that some of these symptoms are not my imagination. I too have pain or a funny sensation in my good ear. Anyone know why this happens to the uneffected side? Maybe Jim or Steve would know!
Thanks for the vote of confidence but I'm not a doctor and can't really diagnose your 'good ear' problems - but it doesn't seem possible they could be related to your AN. Of course, I could be wrong. I suggest you ask your doctor (the guy with medical training) about this. You may have 'issues' in your 'good' ear that can be addressed before they have a deleterious effect on your hearing.
Jim
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Hi Jim,
Thanks for replying, its hard to know what symptoms are related to the AN and which are not. But it good to keep talking with people who have the same or related symptoms and know that it is not just me going around in this crazy circle called the AN world.
Did you read the lasted Newsletter on the 2007-20008 survey? I did not get dx until March of 08 so I could not participate. But I found the information very informative.
I also read most of your postings due to I find that you, Steve and Phyl are very "up" on the AN world of information and give great advise to us fellow AN's.
LisaP ;D
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I also read most of your postings due to I find that you, Steve and Phyl are very "up" on the AN world of information and give great advise to us fellow AN's.
naw, we just sleep at Holiday Inn Express hotels :D
Lisa, curious about one thing. Are you a seasonal allergy sufferer? We know things are rough around here (New England) right now and tree pollen and such has been noted for having a longer pollen season than usual. Just a thought....... as allergies are affecting my ears (which, eventually, affects my facial numbness). Even as of last night, both of my ears were "closing" up on me.... even my non-AN ear.
Phyl
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Hi Phyl,
Yes, I do suffer from seasonal allergies, since I quit smoking my allergy symptoms are much better but still there. I take Zyrtec daily. Do you see a connection with the AN and allergies?
(Red Sox vs Yankees tonight at Fenway) Go Red Sox....
LisaP ;D
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Oh, I forgot to mention this, has this happen to anyone else? I woke up this morning with the tip of my "nose" tingling, what is that about? Anyone?
LisaP :o
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Hi Lisa,
It could be that due to the swelling, you can also feel some numbess/tingling. I get that on my AN side of the lip. It drives me crazy, it feels like it is drooping but it is not. I guess it is all part of the weirdness. I am beginning to feel like an alien. Hope you get some relief.
Vivian
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Hi Phyl,
Yes, I do suffer from seasonal allergies, since I quit smoking my allergy symptoms are much better but still there. I take Zyrtec daily. Do you see a connection with the AN and allergies?
(Red Sox vs Yankees tonight at Fenway) Go Red Sox....
LisaP ;D
hey Lisa! :-* I find my "wonky head" kicks in a little more with the allergies.... some ear fullness.... but overall, tolerable for me. Zyrtec... good stuff! I can't say if there is an "official" connection between the AN and allergies, but some note typical AN symptom enhancement during allergy season. No scientific proof to my knowledge.
Let's hope tonight isn't rained out. Saw them last time they were in town! :) Capt Tek's Grand slam, final score Sox win 16-11. The evil empire is back and they're ours! They're going down! :D
Phyl
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Hi Vivian,
Woke up again with my nose "tingling" doesn't hurt, just annoying. I guess it all is just part of our wonderful AN world, but glad to know that I am not alone in this.
Phyl,
Those Yanks not only went down they crashed, hope Wake can do it again for us tonight!!
Take my Zrytec failthfully, but like I said, since I quit smoking allergies are better but still there.
Go Red Sox!!
LisaP ;D
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Phyl,
Those Yanks not only went down they crashed, hope Wake can do it again for us tonight!!
Take my Zrytec failthfully, but like I said, since I quit smoking allergies are better but still there.
Go Red Sox!!
LisaP ;D
Hoping the smoking-be-gone is going to help... as well as the rain we have been having... and tree pollen is easing up now, so I'm hoping the allergies will now begin to aleviate. BTW, Wang is having a lousy time and hoping Wake does the trick! Great outing by Beckett last night. Nothing like a shut-out to hopefully make them shut-up! :D
Feel better and hang in there!
Phyl
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i am also experiencing the facail swelling feeling,so don't feel like the lone ranger and it's nice to know i am not hallucinating (smile) also facail fullness,tightness,numbness and novcaine feeling in my gums hopefully this will all go away with time hang in there ::)
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Yes along with the facial stuff going on I also experience pulling sensations in my neck and throat area. Anyone else\? I tend not to panic when a new symptoms appears due to my knowledge that I have gained through this forum. Plus it is good to know that I am not alone.
thanks everyone,
LisaP ;D