I am in the Boston area. It can be hard to get into an MD.  You could try Mass. Eye and Ear since this is the result of surgery for an an.an.

MGH has a facial pain clinic  https://www.massgeneral.org/neuroscience/treatments-and-services/facial-pain-clinic

Hi -
Curious where you landed.   I live in the Issaquah area. I did meet with Dr Gupta first at Swedish where I was diagnosed and Dr Ferriera a UW where I currently have a surgery scheduled.  I just did a free consult with UCSD with Dr Friedman this morning as well. 

Thanks
Amy

Hi I wanted to reply as I have experienced this past 6 years. Much to my surprise an MRI revealed that my trigeminal nerve was not affected by the AN. The ear and back of eye and face pain was TMJ! Wearing a dental mouth gurad has helped so much. Also full spectrum CBN at night for sleep and nerve pain. This was all I took for pain- tho I do still rub bit of Voltaren over that joint at times. I also use a face roller now at night- gently massage the area.

Hey everyone,
After much hesitation, I decided to try Botox for my forehead lines and some tension headaches. I went to Vancouver Laser & Skin Care Centre, as I’d heard great things about their expertise. The team was super professional, and the injections themselves weren’t too bad—just a little pinch here and there.
For the first couple of days, everything seemed fine. My skin looked smoother, and I thought I’d finally found a solution for those stubborn wrinkles and tension. But then, on day three, I started to feel this weird, tight sensation in my neck. By the next day, it turned into full-on muscle pain, making it hard to look down or even hold my head up properly.
I called the clinic, and they assured me this was likely a temporary side effect that should ease up soon. Still, I’m nervous—has anyone else had something similar happen? How long did it take to go away?
I feel naive for not asking more questions beforehand, like how experienced the injector was and what side effects I should look out for. I really trusted the clinic, and I still do—they’ve been kind and responsive—but now I’m wondering if this is just my body reacting badly or if something was done wrong.
I’d love to hear if anyone else has had neck or muscle issues after Botox. Did it resolve, or did you need additional treatment? I don’t want to give up on Botox altogether, but I’m feeling really anxious about trying it again.
Any advice or shared experiences would mean the world to me. Thank you! 🙏

Hello Greece Lover, so sorry for the very late reply. I appreciate your kind input.  I had my second opinion recently and was told my tumor is sitting on the cochlear nerve. I am on watch and wait at this time. She wants to wait a year to make sure we don't miss any growth. Of course she said if I have more hearing loss or other symptoms to call immediately. She said they use steroids because sometimes the hearing loss can be recovered since it could be due to inflammation from the tumor. I have horrible pulsatile tinnitus.  I get headaches all the time and they turn into migraines w/aura. I also experience ear pain that comes and goes which doesn't seem to correlate with a tumor this small but I don't know what else to attribute it to. The two docs I have seen so far are like night and day. I prefer #2. Extremely thorough at my appointment and I can message her with questions and not get told to make an appointment (she's a two hour drive). I had other tests that she reviewed and wanted a complete picture of my brain unlike the other doc. At this point I'm not sure what else to do but wait it out.  I do have a 3rd opinion scheduled in January at the Cleveland Clinic.  I am undecided what to do. I am 64 and dislike this waiting game.