Mark, that’s an awesome story and filled with hope. I really appreciate hearing it!

I do have questions about Hopkins, I have an appointment with them in February, and I live in MD, so it would be nice to go there. I’m not sure what the appropriate way to ask questions about clinics is or where the appropriate place is….

Hi, everyone!  I am scheduled for Gamma Knife radiosurgery this Thursday, January 8, 2026. 

I had vertigo in November which has since subsided, but my trouble is the tinnitus--the ringing isn't so bad, but the echoing and amplification of sounds is rather challenging!  I find I am getting used to both, but I really wish the echoing would go away.  Does anyone have that symptom? 

I will see an audiologist the day before the radiosurgery to get an updated hearing test (the one in early November was "fine" but my hearing got much worse only 12 days later).  Does anyone have suggestions of what questions to ask the audiologist?

Finally, my PCP had given me a referral for a neurologist.  I have an appointment for later in the month, but is it necessary for ANA patients to see a neurologist if there are no neurological issues present?  (As I mentioned, the vertigo passed several weeks ago.)  Thanks in advance for any replies.

I am sorry to hear of the continued growth of your tumor.  I wonder if you have had the surgery yet, and how did it go?

I had dizziness in November and then it went away, thankfully!  I will have radiosurgery this week and was told I might have some dizziness after the radiosurgery.  I have a cane to use just in case!  But it should be temporary, if it does happen.

I see this is an older thread, but since it had a recent post I figured I would add my 2 cents worth.  I agree you should do something to keep your mind occupied and take a break from the constant research.  But I would also add this: Do it alone or with people that you normally spend a lot of time with.  I say that because for me personally I was getting upset about people always asking how are you doing with the pity look on their face.  It seemed like every single time I managed to put this out of my mind and start to feel a little normal, someone had to bring it up.  I know they were just being genuinely concerned, but the last thing I needed was to be reminded that I had a brain tumor.   So yes go out and do something you enjoy, just do it with someone who isn't going to bring it up.