21
For those in the 'watch and wait' status / Re: Has anyone tried Lenire for Tinitus?
« Last post by donjehle on March 15, 2025, 05:24:10 pm »I would also be curious if anyone has had any experience with Lenire?
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Recent Posts
22
For those in the 'watch and wait' status / Re: Fascial numbness and twitching off and on on wait and watch
« Last post by donjehle on March 15, 2025, 05:20:29 pm »Hi Majeed,
If I were you, I would want to consult with my specialist and share what you are experiencing. He or she would be much more qualified to give you counsel than we would be. People on the forums have experience with acoustic neuromas, but their situation could be different from your specific case.
I wish you the best on your journey!
Don
If I were you, I would want to consult with my specialist and share what you are experiencing. He or she would be much more qualified to give you counsel than we would be. People on the forums have experience with acoustic neuromas, but their situation could be different from your specific case.
I wish you the best on your journey!
Don
23
Radiation / Radiosurgery / Re: 6 months after Cyberknife
« Last post by donjehle on March 15, 2025, 05:16:00 pm »Hi Jennifer1969,
What did you find out from your MRI? And what is the latest with your tinnitus?
What did you find out from your MRI? And what is the latest with your tinnitus?
24
Post-Treatment / Re: 3 Days Post-Retrosigmoid Surgery at UCSD Report
« Last post by donjehle on March 15, 2025, 05:12:15 pm »Thank you, christopherbench, for the follow-up from 9 months out. I'm looking forward to your next update!
25
For those in the 'watch and wait' status / Re: Newly Diagnosed Son - Need Help Please
« Last post by Jets551 on March 15, 2025, 01:02:05 pm »Thank you so much your response is so helpful right now.
It is mm not cm
Thanks
It is mm not cm
Thanks
26
For those in the 'watch and wait' status / Re: Newly Diagnosed Son - Need Help Please
« Last post by DanFouratt on March 14, 2025, 03:53:22 pm »Jets,
Sorry you are hear especially with it being your son. It sounds like you are doing all the right steps. I had a VS and it is now "behind" me. If you need information as you progress through this please reach out. Either here or at Dan4att@gmail.com. First is sounds like you are dong the right thing today, understand the problem. Your steps here sound like they are on point.
Now as a father of a child who had cancer which I had a struggle. I wanted information NOW and that was not possible. My wife was even more stressed. It took me some time to learn but stay calm. Learn you have to wait and stressing over that does no one any good. My journey took a month from suspicion to confirmation of the issue. Day three of this I discontented the internet. My wife was finding one bad thing and then another worse thing from his symptoms. I told her planning for 25 bad things does us no good and only causes internal issues. The day we found out what is was was not a great day but it did allow us to create a plan of action.
Just would like to confirm the UOM is in MM not CM?
Good luck on your journey,
Dan
Sorry you are hear especially with it being your son. It sounds like you are doing all the right steps. I had a VS and it is now "behind" me. If you need information as you progress through this please reach out. Either here or at Dan4att@gmail.com. First is sounds like you are dong the right thing today, understand the problem. Your steps here sound like they are on point.
Now as a father of a child who had cancer which I had a struggle. I wanted information NOW and that was not possible. My wife was even more stressed. It took me some time to learn but stay calm. Learn you have to wait and stressing over that does no one any good. My journey took a month from suspicion to confirmation of the issue. Day three of this I discontented the internet. My wife was finding one bad thing and then another worse thing from his symptoms. I told her planning for 25 bad things does us no good and only causes internal issues. The day we found out what is was was not a great day but it did allow us to create a plan of action.
Just would like to confirm the UOM is in MM not CM?
Good luck on your journey,
Dan
27
AN Community / Re: let's run! or walk! or something....
« Last post by Jill Marie on March 13, 2025, 10:28:26 pm »Hi Steve, Thanks for bringing back wonderful memories. I had forgotten all about this topic and how popular it was. I read a few of the posts and smiled as I read the names of so many people I use to see on this board.
Now that I'm retired I walk our dog for an hour everyday and ride my bike about half an hour. We live at the lake now so we have lots of beautiful trails to walk on with lots of deer, turkey, quail and of course a view of the lake.
Thanks again for posting, hope you are doing well! Jill
Now that I'm retired I walk our dog for an hour everyday and ride my bike about half an hour. We live at the lake now so we have lots of beautiful trails to walk on with lots of deer, turkey, quail and of course a view of the lake.
Thanks again for posting, hope you are doing well! Jill
28
AN Community / Re: let's run! or walk! or something....
« Last post by stevehernes on March 13, 2025, 04:06:24 pm »How is everyone doing? How’s life treating you all? Where have you spent your time lately? I’ve been really into traveling, and right now, I’m checking out orbitz reviews to see what deals they have. I’m planning to call them tomorrow and see if they have any good offers for upcoming trips. There are so many amazing places I still want to explore, and I’m hoping to find something for a great price.
29
Post-Treatment / Re: Post trans lab surgery - a cosmetic question
« Last post by stevehernes on March 13, 2025, 04:01:07 pm »How did it go? How was the recovery process for you after surgery? I know that post-surgery healing can be challenging, and everyone’s experience is different. Hopefully, you’re feeling much better now and things are getting back to normal. One thing that really bothered me during my recovery was crepey skin—it became more noticeable, and I wasn’t sure what to do about it. But thankfully, I found the crepe erase customer service number and reached out to them. They were super helpful in explaining their products and guiding me toward the best options for my skin
30
For those in the 'watch and wait' status / Newly Diagnosed Son - Need Help Please
« Last post by Jets551 on March 12, 2025, 09:45:06 am »Hello,
Last week my son (20 years old) who is in college about 3 hours away called me with tingling in his jaw and right hand. I advised him to go to the emergency room and immediately drove up to his college to the ER to be there with him. He had a CT scan that was negative and the next morning they took an MRI without contrast that showed a small vestibular schwannoma in his left ear. The ER doctor advised seeing a neurologist next to have an MRI with contrast to see if it is actually a schwannoma or if it's something else like a cluster of blood vessels. Because he goes to school in upstate New York we made the decision to take him to a Neurologist back home which is in NJ close to NYC.
The Neurologist (Mario Vukic) was excellent and what we learned at the session with him was that my son also showed 3 bulging discs in his neck as well as his Thyroid levels were out of whack, and he was diagnosed with Hashimoto's a few years back.
We followed up this past week with an MRI with contrast which the Neurologist confirmed is a vestibular schwannoma in his left ear the size being 7x4x4.
At this time he wants to have him see an ENT asap to get the hearing test results to see if there is any impact to hearing and he said most likely we will want to take a wait and watch approach and have another MRI done in the summer before he comes back. However, since the visit last week my son has now gotten symptoms of ringing in his ears, migraine headaches and a feeling of pressure in his ear.
We are not sure if it's related to bulging discs, schwannoma or thyroid which can cause tingling feelings in extremities when not normalized.
Next steps:
ENT visit on Monday 3/17
Nuerosurgeon visit Dr.Philip Steig NYC (2nd opinion) on Tuesday 3/18
Follow up visit with Neurologist on 3/19 to discuss 2nd round of MRI with contrast results and latest symptoms
On top of this between the Schwannoma, Thyroid and bulging discs you can imagine the stress and anxiety and I know he's struggling a bit coping and processing all of this at 20 years old. I'm trying to locate a therapist for him to talk to that can hopefully manage some of this going forward.
I am beyond devastated at this diagnosis and struggling myself through this but trying to stay strong for my son. Can anyone advise is there anything else at this point I should be doing other than the Dr visits I have setup?
Thank You
Last week my son (20 years old) who is in college about 3 hours away called me with tingling in his jaw and right hand. I advised him to go to the emergency room and immediately drove up to his college to the ER to be there with him. He had a CT scan that was negative and the next morning they took an MRI without contrast that showed a small vestibular schwannoma in his left ear. The ER doctor advised seeing a neurologist next to have an MRI with contrast to see if it is actually a schwannoma or if it's something else like a cluster of blood vessels. Because he goes to school in upstate New York we made the decision to take him to a Neurologist back home which is in NJ close to NYC.
The Neurologist (Mario Vukic) was excellent and what we learned at the session with him was that my son also showed 3 bulging discs in his neck as well as his Thyroid levels were out of whack, and he was diagnosed with Hashimoto's a few years back.
We followed up this past week with an MRI with contrast which the Neurologist confirmed is a vestibular schwannoma in his left ear the size being 7x4x4.
At this time he wants to have him see an ENT asap to get the hearing test results to see if there is any impact to hearing and he said most likely we will want to take a wait and watch approach and have another MRI done in the summer before he comes back. However, since the visit last week my son has now gotten symptoms of ringing in his ears, migraine headaches and a feeling of pressure in his ear.
We are not sure if it's related to bulging discs, schwannoma or thyroid which can cause tingling feelings in extremities when not normalized.
Next steps:
ENT visit on Monday 3/17
Nuerosurgeon visit Dr.Philip Steig NYC (2nd opinion) on Tuesday 3/18
Follow up visit with Neurologist on 3/19 to discuss 2nd round of MRI with contrast results and latest symptoms
On top of this between the Schwannoma, Thyroid and bulging discs you can imagine the stress and anxiety and I know he's struggling a bit coping and processing all of this at 20 years old. I'm trying to locate a therapist for him to talk to that can hopefully manage some of this going forward.
I am beyond devastated at this diagnosis and struggling myself through this but trying to stay strong for my son. Can anyone advise is there anything else at this point I should be doing other than the Dr visits I have setup?
Thank You