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41
Hearing Issues / Re: Tinnitus Suddenly Worse
« Last post by DanFouratt on November 01, 2024, 05:07:17 pm »
Michele,

When you say you used to have tinnitus, does that mean it is gone now?

Dan
42
Post-Treatment / 8 years since AN surgery
« Last post by JLR on November 01, 2024, 07:26:54 am »
Today, Nov 1, is 8 years since my AN surgery.  No hearing right side, eye very dry, finally can close, balance continues to be wobbly even after PT.  I had what I thought the best of the bests surgeons but chatting with other AN Patients they didn’t go thru what I did.  Spent a week in,hospital then a month in rehab and 2 weeks in a sub acute facility. I do have yearly brain MRIs to make sure all is ok and will continue to,do so.  I had my surgery NYC. Just needs to vent. Hello to all my friends on this site. Stay well. JLR
43
Hearing Issues / Re: Tinnitus Suddenly Worse
« Last post by mwatto on October 31, 2024, 10:55:51 pm »
I used to have tinnitus - I feel its a few things that aggravate it and I talked this through a few years back with an audiologist. Firstly blood pressure, virus exposure, certain ototoxic medications even NSAIDS can, sleep disorders, high histamine diet, ageing and hearing loss, hormonal fluctuations. Melatonin helped me somewhat and reducing stress. Magnesium seemed to help and when it was at its worst 1mg valium before bed or full spectrum CBD/CBN (just saying what helped me) maybe as they are muscle relaxants. White noise also helps. Perhaps see an audiologist for more insights.
44
Hearing Issues / Re: Tinnitus Suddenly Worse
« Last post by UkulelesAreAwesome on October 31, 2024, 07:19:00 pm »
Hi Jordy. It's been 2 years since I had gamma knife. Some days my tinnitus is like a loud roar. Other days it's like a click or chirp. Some days it bothers me. I haven't figured out why it fluctuates.
45
AN Research / Re: Education and risk of AN article
« Last post by donjehle on October 31, 2024, 04:44:09 pm »
Hmmm, maybe I would have been better off had I not returned to college after I had dropped out in my hippie years.  Or maybe I should not have pursued my doctorate.  What an interesting article!
46
Hearing Issues / Re: Tinnitus Suddenly Worse
« Last post by donjehle on October 31, 2024, 04:33:53 pm »
Hi Jordy!

Welcome back to the ANA Forums!  I wish I could help you regarding the tinnitus and the dizzy spells.  But can you share what the last two years have been like otherwise?  You did such an excellent job sharing your experience on these forums.

I hope the tinnitus dies back down soon.
Don
47
Insurance / Re: US Expat Insurance Help
« Last post by donjehle on October 31, 2024, 04:22:50 pm »
Hi Stanislaus4048!

Thank you for posting your question.  I think it's a good one for our ANA Community.  I do not have the answer you are looking for as I have not experienced what you have.  However, insurance options can vary from company to company and from state to state.  I think it would be difficult for any of us to give you a lot of helpful advice.  If you become employed, you may be limited by the insurance coverage your new employer has (or blessed by it).

If you remain unemployed, you may need to speak with an insurance agent to see what insurance would be best for you.  I'm about to retire, and I will be changing insurance companies, and I have been surprised by the various options which are out there.

I wish you well in your acoustic neuroma journey and your endeavor to find insurance.
Don
48
AN Issues / Re: Newly Diagnosed, Confused, Scared, All of the above
« Last post by Derby on October 30, 2024, 05:07:37 pm »
Quote from: BrokedownPalace on October 07, 2024, 08:11:21 am
Really appreciate all the shared stories. Doing my best to do all the research I can without getting wrapped up in the anxiety stages if I spend a few hours browsing the fb group or similar. I can see why scheduling the surgery would have a sense of relief as there's so much unknown in terms of next steps right now. It is really nice to have a group around this who understands, looking into support groups in my area as well.
Did you decide on a treatment plan? I also had a 2 cm AN and I opted for radiation. Much less anxiety inducing than neurosurgery, IMHO. I had had hearing loss for 10 years before diagnosis, which, like you, I had chalked up to my concert-going habits. I'm about 6 months out from my treatment, with no significant change in symptoms, knock on wood.

I hope your inital anxiety has been somewhat aliviated with information. Knowlege really is power!
49
Physicians / Re: Kaiser Redwood City vs. Stanford and UCSF
« Last post by skier on October 30, 2024, 10:32:39 am »
My story. Ultimately, I chose surgery over radiation due to having a fast-growing tumor, even though it was small.

I had been on watch-wait for 2 years, and had talked to a range of doctors, both about surgery and-or radiation.

I always learned something from the consults, and in the end, I understood that the surgery is a very difficult and that I wanted the best regarded doctors/team with the best track record that I could find.

They provided their team's record of outcomes, and it was very reassuring.

Hope you will be able to choose well and don't be shy about asking for information you want to consider.
 
50
AN Research / Education and risk of AN article
« Last post by mwatto on October 29, 2024, 06:44:14 pm »
https://oncologynews.com.au/latest-news/high-levels-of-education-linked-to-heightened-brain-tumour-risk/
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