Recent Posts

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51
Inquiries / Re: finding a doctor
« Last post by DanFouratt on June 23, 2024, 03:16:08 pm »
Dear icscfhn,

I am not a doctor but my advice is find someone who is familiar with AN. In the library there is a presentation by the San Diego team about using high volume operation for surgery.  I did not have surgery but had a high volume Doctor ready. 

Good Luck on your Journey,

Dan
52
Inquiries / Re: finding a doctor
« Last post by UkulelesAreAwesome on June 22, 2024, 07:14:03 pm »
My ENT referred me to a neurosurgeon and neurotologist. I also saw a gamma knife radiation oncologist. I chose gamma knife in 2022. I had a bit of a wait also. I was diagnosed with the AN in April 2022. I saw a neurosurgeon in June 2022. I did not want surgery so I was referred to a different neurosurgeon and gamma knife radiation oncologist in July 2022. The waiting period really felt like forever.
53
Inquiries / finding a doctor
« Last post by icscfhn on June 22, 2024, 02:26:29 pm »
I have had an MRI for MS and a 2.5 cm AN was found. My neurologist referred me to a local ENT who cannot see me for another month. The local ENTs do not treat AN. Should I look for a consult with someone who specializes in AN or wait and go to the local ENT first?
54
Pre-Treatment Options / Re: Another Newbie
« Last post by stevehernes on June 22, 2024, 01:40:48 pm »
How are you doing these days? I hope you are feeling better and have found peace of mind with everything you are facing. As for me, amidst all the challenges, I've started my weight loss journey and I'm considering to buy wegovy online to support my efforts. Taking steps towards better health feels empowering. While there are hurdles, I'm committed to achieving my goals through a combination of healthy eating, exercise, and possibly incorporating Wegovy under medical guidance. It's about finding the right balance and staying focused on long-term wellness.
55
Scholarvapid,

Looks like you have just joined.  Sorry you had to but welcome.  This is a great resource.  A year ago I did a lot of work understanding the difference between radiation and surgery.  If you think this might help you please send me an email at Dan4att@gmail.com.  I will send it to you. 

Dan
56
ANA Meetings / World Vestibular Schwannoma Awareness Day - June 22, 2024
« Last post by Director on June 21, 2024, 07:00:15 am »
Please join us for a special virtual event on Saturday, June 22 in honor of World Vestibular Schwannoma Awareness Day.

Registration is free and required. The event is open to clinicians, scientists, patients, and patient advocates.

A Zoom webinar will be presented from 2 pm to 7 pm EDT and is dedicated to cutting-edge innovations in vestibular schwannoma featuring a discussion of high-yield technical topics from international thought leaders.

https://www.vestibularschwannoma.com/

Thanks,
The ANA Team
57
I hope it gets further developed.
boxing random
58
Headaches / Re: Medical Marijuana
« Last post by Allan12 on June 20, 2024, 02:18:52 pm »
Thanks for the information. I have terrible headaches. I try all possible means to avoid pain
59
Radiation / Radiosurgery / Re: CK update
« Last post by DanFouratt on June 19, 2024, 02:37:41 pm »

My doctor said tell them team you do not need it and do not let them change your mind. be firm.  Trust me
I will be!  Good Luck.
60
Hi October,

I also have Kaiser and met with Drs. Sheridan, Sevy and Hou. I'm on watch and wait since Dec 2023. I'm due for my 6 month MRI soon (nervous about it) and was wondering if you had your MRI last April. Are you still on watch and wait? Did you get a consult from others?

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