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Post-Treatment / Re: 2 years and the tumor has calmed down
« Last post by mwatto on October 22, 2024, 07:48:48 pm »
I am so very glad to hear that! I have also found that symptoms come and go (first 3 years were hard especially re nerve pain).
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Post-Treatment / 2 years and the tumor has calmed down
« Last post by UkulelesAreAwesome on October 22, 2024, 05:06:44 pm »
I had my 2 year MRI last week. I met with my doctors today. They told me they are unsure if it will grow or not. There was a period of swelling or potential growth earlier. I am relieved to be told I don't need surgery at this time. I have another MRI in 6 months. I have headaches which may be tension headaches. Other than that, I just have hearing loss, tinnitus, and a bit of pressure in the left side of my head. I'm feeling grateful that the tumor is looking more stable. I feel like I've been given my life back but I understand that can change with any future MRI. The ventricles are looking good. No hydrocephalus. Feeling thankful.
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Thanks again for the kind words. Sorry to hear your tumor has increased in volume… For me the worst is the loss of hearing and the loud tinnitus. It distracts me from everything, makes everything worse.

But yes, this feeling of lack of control, of knowing that everything can just get worse than it is now, at any moment, it’s very difficult to live with this…and then I think of all the people that out up with much worse and I feel ashamed of myself. Although that doesn’t bring me to be any happier with my life…
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Post-Treatment / Re: GK on 9/17 - extreme vertigo in 48 hrs
« Last post by DanFouratt on October 19, 2024, 02:43:34 pm »
Sorry to hear you are still struggling.  I had fullness in the ear and reduced to no hearing for at most two weeks.  I have returned to poor hearing and no fullness. Tinnitus is simple a constant in my life. Hope things improve.
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Post-Treatment / Re: GK on 9/17 - extreme vertigo in 48 hrs
« Last post by GMDizzyndeaf2 on October 19, 2024, 01:23:56 pm »
UPDATE:
The vertigo is gone… my left ear still feels full with no hearing in it at all and I am lightheaded when  getting up or turning my head/body quickly. I am hoping with time and starting vestibular therapy this week there will be improvement but afraid this may be my new life.
Thanks for asking!
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Post-Treatment / Re: GK on 9/17 - extreme vertigo in 48 hrs
« Last post by stevehernes on October 19, 2024, 12:25:20 pm »
How are you doing? Are you leaning on your family and friends for support during these difficult times? It's so important to reach out to loved ones when things get tough, especially when it comes to health—there’s nothing more important than taking care of yourself. I’ve learned that firsthand, which is why I turned to services like https://ukwritings.com/dissertation-services when I was going through a rough patch. Getting help made all the difference and allowed me to focus on what mattered most.
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Hearing Issues / Tinnitus Suddenly Worse
« Last post by Jordybutt on October 19, 2024, 03:12:35 am »
Hi all.

It has been just over 2 years since AN surgery removal 87%. This past few weeks tinnitus has struck me roaringly worse and with dizzy spells. I can’t understand it. Does anyone have anything to add?

Jordy
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Caregivers / Re: 2 years on
« Last post by stevehernes on October 17, 2024, 03:07:55 pm »
I'm so sorry to hear about your troubles. It must be really difficult for both of you during this time. Does he have any relatives or close friends who can reach out and try to talk to him? Sometimes having someone else listen can provide a fresh perspective and support. Going out with friends can be a great way to lift your spirits and improve your mental state. Socializing, even if it's just for a little while, can help take your mind off things. You might want to consider writing to the friday plans email and asking about activities that could be suitable for you right now. They often have great suggestions for social events, workshops, or community gatherings that could provide a nice distraction and help you connect with others
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For those in the 'watch and wait' status / Re: Diagnosed 2 months ago, don't know what kind of help I need
« Last post by UkulelesAreAwesome on October 17, 2024, 09:46:15 am »
Hi Nyorl. I can understand your comments. I've cycled through the 5 stages of grief for the past 2 years. It's not easy to admit we are brain tumor patients. It's not easy to manage that kind of stress. It's hard to let go of who we were before diagnosis and accept the changes that this diagnosis brings. I try to set small manageable goals, make lists each day, and try to do what I'm able to do. It's not easy when we feel we are not in control of our health. I had my 2 year MRI 2 days ago. It shows additional increase in the tumor. I'm not sure if they'll consider it to be pseudo progression or if it means surgery. I don't want my life turned upside down.
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Insurance / Re: Problems with Kaiser paying out of plan for Dr. Friedman
« Last post by stevehernes on October 17, 2024, 05:44:34 am »
How are you doing now? Are you feeling better already? I went through something very similar, and it was especially tough because I was in college at the time. Balancing everything was overwhelming, but thanks to the support I got from the team at https://stateofwriting.com/uk/academic-writing-service, I was able to push through and graduate. It made such a big difference for me, and I hope you're finding the help and support you need to get through this too. Hang in there
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