Rose,

I am not a doctor so this is not medical advice.  I did not see a neurologist in my CK journey.

Dan

Mark, that’s an awesome story and filled with hope. I really appreciate hearing it!

I do have questions about Hopkins, I have an appointment with them in February, and I live in MD, so it would be nice to go there. I’m not sure what the appropriate way to ask questions about clinics is or where the appropriate place is….

Hi, everyone!  I am scheduled for Gamma Knife radiosurgery this Thursday, January 8, 2026. 

I had vertigo in November which has since subsided, but my trouble is the tinnitus--the ringing isn't so bad, but the echoing and amplification of sounds is rather challenging!  I find I am getting used to both, but I really wish the echoing would go away.  Does anyone have that symptom? 

I will see an audiologist the day before the radiosurgery to get an updated hearing test (the one in early November was "fine" but my hearing got much worse only 12 days later).  Does anyone have suggestions of what questions to ask the audiologist?

Finally, my PCP had given me a referral for a neurologist.  I have an appointment for later in the month, but is it necessary for ANA patients to see a neurologist if there are no neurological issues present?  (As I mentioned, the vertigo passed several weeks ago.)  Thanks in advance for any replies.

I am sorry to hear of the continued growth of your tumor.  I wonder if you have had the surgery yet, and how did it go?

I had dizziness in November and then it went away, thankfully!  I will have radiosurgery this week and was told I might have some dizziness after the radiosurgery.  I have a cane to use just in case!  But it should be temporary, if it does happen.