I see this is an older thread, but since it had a recent post I figured I would add my 2 cents worth.  I agree you should do something to keep your mind occupied and take a break from the constant research.  But I would also add this: Do it alone or with people that you normally spend a lot of time with.  I say that because for me personally I was getting upset about people always asking how are you doing with the pity look on their face.  It seemed like every single time I managed to put this out of my mind and start to feel a little normal, someone had to bring it up.  I know they were just being genuinely concerned, but the last thing I needed was to be reminded that I had a brain tumor.   So yes go out and do something you enjoy, just do it with someone who isn't going to bring it up. 

I've been using a scleral lens in my right eye for about 1.5 years.     I'd had cataract surgery in both eyes and for most things I had no need for glasses. A little over 2.5 years ago, I was sitting in my recliner and suddenly I had no vision in my right eye.   I ended up having several surgeries and had a new lens attached and a donor cornea installed.     I ended up having more surgery because the lens wasn't attached properly.    Now the scleral corrects my vision great, but I've got a problem cleaning and getting my scleral ready for insertion.

Before, in addition to the lens being a bit loose, I guess I was having a problem cleaning the lens, so my vision wasn't great in my right eye.     When I inserted the lens the first time after surgery and healing my vision was fantastic.     I've been told to use Bosch & Lomb Boston Simplus Multi-Action solution and Sodium Chloride .9% solution (saline).

I read the Bosch & Lomb Boston Simplus web page and I think that when I remove the lens, I need to put a few drops on each side of the lens and then rub the lens with my finger for about 30 seconds to clean it.    Then I insesrt it into my lens case and add more Boston Simplus until the lens is submerged.     I need to wait at least 3 hours for the Boston Simplus to change.     Then I'm supposed to take the saline and rinse the lens.    My doctor told me at my last visit that to not use so much saline in the small pink containers I could pick up a larger bottle of saline solution but to not use it to fill my lens.    So I did and use it to rinse the lens first and then rinse the lens with the pink container saline and use it to fill the lens for insertion.     My problem is that the Boston Simplus isn't all removed from the inside of my lens.   I can feel the Boston Simplus on the inside of the lens.    I try to use my finger to remove it and then flood it with saline but it takes a lot of repetitions.    Usually I think it's ready, install it and it gets cloudy.    I remove it and flood it again and then fill the lens and usually my vision is good.      What am I doing wrong?   It usually takes 15-20 minutes to get my lens inserted and my vision good.

Frank

I think it is a good idea to talk to someone about your feelings.

I find that writing it down helps. I am not a journal person. I tend to write it down in haikus. Writing helps me with the thinking part of feelings.

But there also are other outlets for anger than words: dance, hammering something, exercise, or my husband's "stomp around outside." They have their place too.

And since at least part of my anger is at the lack of control, doing something creative where I have more control can also help.

I couldn't agree more with Dan.   I never want to be mistaken as trying to talk anyone into the surgery. I just share my story for those who want to go that route.   Definitely pick the treatment option that you are the most comfortable with, and don't let anyone talk you out of it. 

Welcome to the club, sorry you are here but you will find great help here.  I did a lot of research over the years, if you email me at Dan4att@gmail.com I will share it with you. I call it a decision matrix where I tried to compare all the options.  I also referenced several webinars from the AN library I found useful.

As you can see from my signature block I went with radiation.  That was the right decision for me.  This is an unique situation where the patient chooses the option they want. Mark F went with surgery, that was the right decision for him.  When I was doing my research one of the doctors I spoke with gave the best advice, "When you make a decision do not second guess yourself, make that one work for you."

Good luck on your decision journey, if you have any questions please reach out.

Dan