Recent Posts

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For those in the 'watch and wait' status / Eye Twitching
« Last post by sissyn on May 21, 2025, 02:46:13 pm »
The last two days my left eye has been twitching on/off for no particular reason. I have the facial tingling, like I've been shot with Novocain waiting for dental treatment.  This tingling comes and goes which I'm used to, but this eye thing is not something I want to get used to.  Anyone else have this issue?  I see the neurosurgeon on June 6th to determine next steps.
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AN Issues / Re: New member, symptoms questions.
« Last post by Jill Marie on May 20, 2025, 10:32:24 pm »
Hi Mark,

Really glad to hear that you put your "Ruby Slippers on, tapped them 3 times and now you're home!" Congratulations!! Glad they got the infection under control so you can at least eat soft food and got to go home. Being off the pain meds so soon is definitely a plus, less side effects.  What a huge difference in your life now having the awful constant pain gone. I'm so very happy for you! I bet you can't wait to celebrate how well you're doing.  Perhaps not dealing with the pain anymore is your celebration! 

Glad you were able to have a computer so you could check the website and update us!  Jill

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Post-Treatment / Re: Tinnitus: What sort of sound do you hear?
« Last post by mwatto on May 20, 2025, 08:21:33 pm »
I have found white noise at night ( we use spotify 737 cabin noise ) is excellent. I dont have much tinnitus but this even helps with any interfering noise like snoring etc.
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Post-Treatment / Re: Tinnitus: What sort of sound do you hear?
« Last post by ESH on May 20, 2025, 02:21:05 pm »
Have you tried using music? My tinnitus is particularly bothersome at night, but I got some headband-type headphones, set my phone to mono, and now play gentle classical music softly. I have the phone set so the music goes off on its own after 45-60 minutes (depending on which playlist.)

I find it helps a lot.
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Post-Treatment / Re: Tinnitus: What sort of sound do you hear?
« Last post by stevehernes on May 20, 2025, 01:21:35 pm »
I started having tinnitus about two months ago, and it’s been really tough—especially when it comes to sleeping. The constant ringing or buzzing at night makes it hard to unwind and fall asleep peacefully. I’ve decided to try a few things to see if they help: first, I’ll be getting a professional ear cleaning, just in case there’s any blockage contributing to the problem, and I’ve also started listening to white noise at night to help mask the sound a bit. If anyone’s been through this, I’d really appreciate any advice or tips you found helpful. Are there specific apps or sound machines that worked for you? Did you notice any foods, stress triggers, or habits that made it worse—or better?
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AN Issues / Re: New member, symptoms questions.
« Last post by ESH on May 20, 2025, 10:12:45 am »
Hooray!

Ellen
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AN Issues / Re: New member, symptoms questions.
« Last post by Mark F. on May 20, 2025, 09:00:47 am »
Officially released from the hospital!!!   7 days here was longer than I expected, but three of those are due to the throat infection problem.   I could have been released from a neuro standpoint Saturday.   
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AN Issues / Re: New member, symptoms questions.
« Last post by Mark F. on May 19, 2025, 09:47:33 am »
Ok I did hit a setback on swallowing.   Still not on solid food, and now but just got moved up from liquid only to soft food.  I'm told I probably won't be going home today, maybe tomorrow depending on how it goes with the food.  The doctors seem to think I came in with a mild infection and the combination of the surgery, breathing tube, and steroids just blew it up into a full blown Thrush infection in my esophagus.   It is getting better, sad I might not go home as soon as I wanted, but it's temporary.   The big thing for me is I have now been off my pain medication for 3 days already.   I was surprised to learn that the minor amount of pain I have now is absolutely nothing compared to what I apparently was living with every day of my life for the last three years.

Jill:  One thing you have in the hospital is a lot of free time, way too much actually so I've been watching the website a couple times a day.
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AN Issues / Re: New member, symptoms questions.
« Last post by Jill Marie on May 18, 2025, 10:17:51 pm »
Hi Mark,

Wow, I was really surprised and pleased to see that you posted just 3 days after surgery.  I didn't think we would hear from you for at least a week or two.  Glad to hear your balance is better than normal, that will certainly help your recovery.  I was on crutches after breaking my leg a month before surgery so I'm lucky they even let me out of the hospital. Lol. Speaking of getting out, tomorrow is the big day, bet you're looking forward to it.  So sorry to hear that you had such a rough time with the headaches, thankful of course that they went away.  Considering the growth in your tumor recently I imagine you're really glad you got rid of it.  Take Care, Jill :)
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AN Issues / Re: New member, symptoms questions.
« Last post by DanFouratt on May 17, 2025, 01:38:35 pm »
Surprised it grew, glad it is gone!  Keep on moving.
Dan
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