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71
Facial Issues / Re: Help and support finding the best possible reanimation surgeon in US
« Last post by Director on November 07, 2025, 09:40:40 AM »
Hi Jackysue,

The Foundation is a separate organization. A quick internet search will give you the contact information for the physician you are looking for.

Please reach out if we can be of assistance. 

Best regards,

The ANA Team
melanie@anausa.org
72
Radiation / Radiosurgery / Gamma Knife Surgery Scheduled
« Last post by JoHo1118 on November 07, 2025, 07:34:08 AM »
After my 2nd MRI this year, the Acoustic Neuroma grew 20% (it's at nearly 5 mm now) and haver been recommended for the Gamma Knife procedure to take place on December 4th because of the rate of growth.  While there is the small chance my hearing will get worse (it already is anyway) my true hope is the long-term positive effects of no more vertigo and imbalance issues while walking or other activities.
73
Facial Issues / Getting back to normal after facial reanimation 5 to 7
« Last post by YankyG. on November 07, 2025, 01:58:59 AM »
Hi

I have an appointment for facial reanimation In 2 weeks

I would like to know how long after the surgery can you go back to normal like working flying domestic or international.

I know the hospitals are saying to stay around 3 to 4 weeks

But I would like to hear from people that went thru such a process how long after that is it really possible to travel?

I have to get back home as soon as possible.

Thanks a lot
74
For those in the 'watch and wait' status / Re: Diagnosed with VS , What to do
« Last post by DodgeAU on November 05, 2025, 10:16:05 PM »
And147159, welcome to the best AN community! I had similar AN size like yours when first diagnosed. I decided to wait and watch for three years. My AN has tripled in size after 3 years and decided to go for GK treatment. So far the treatment has worked really well for me and my AN is now under control, continues to shrink in size. It's okay to wait and watch but please be mindful of the growth rate after few MRI's. Most of us are lucky to find out AN while still small in size as we have plenty of options. In my case, I should have taken action/treatment much earlier although I had enough time to decide what treatment was best for me. I'm really glad I found this community people are really nice and helpful. All the best and keep us updated with your progress.
75
Facial Issues / Re: Help and support finding the best possible reanimation surgeon in US
« Last post by Jackysue on November 04, 2025, 08:56:59 PM »
Quote from: Director on September 23, 2025, 01:02:26 PM

It's our understanding that the Facial Paralysis & Bell's Palsy Foundation is not currently active. You can still find some helpful links and information posted on their website, however.

Please reach out to Melanie at the ANA for facial resources, including the ANA's facial support group.

Best regards,

The ANA Team
melanie@anausa.org

I am very curious about this...Is Dr. Azizzadeh's office not open anymore? 
76
AN Issues / Re: Second surgery-HELP
« Last post by mwatto on October 31, 2025, 08:08:14 PM »
I read this today and was wondering if medication/ chemo might help this time? Here is the link to show your specialists : https://academic.oup.com/noa/article/6/1/vdae107/7697688
77
Headaches / Re: Sex / orgasm headaches & dhiarhea headaches - post op
« Last post by greenamw on October 31, 2025, 06:29:50 AM »
I've actually experienced mild headaches after sex a few times, especially when I was stressed or recovering from illness, but nothing as intense as what you're describing. It always freaked me out, but for me, drinking water and lying down in a dark room usually helped. Diarrhea-related headaches are something I had post-gastrobug, probably from dehydration, but never both together or as severe as you mention.
78
AN Issues / Re: Second surgery-HELP
« Last post by DanFouratt on October 30, 2025, 03:28:35 PM »
Sorry to hear your story and I cannot offer advice but you are in my thoughts are prayer.  Good luck on your journey.
79
AN Issues / Second surgery-HELP
« Last post by nattyc21 on October 30, 2025, 09:51:13 AM »
I had a translab surgery in October of 2023(3cm tumor).  Then I went through Gamma Knife in April 2024 for the residual tumor.  The tumor is starting to grow and it is causing symptoms (currently it is 1.2x1.1x1.2).  I have have been told to do a second surgery.  I am curious about those of you that had a second surgery.  What was the recovery like? easier? harder? They are debating between a repeat translab vs a retrosigmoid/parial craniotomy.  Any advice would be great! Thanks everyone! Keep fighting!
80
Pre-Treatment Options / Re: Really Happening?!
« Last post by mctaggsm on October 28, 2025, 02:04:11 PM »
Quote from: Ahollo on February 20, 2015, 12:45:39 PM
Records are overnighted and the referral has been sent. Now it's time to wait. Dr. Friedman said he would as soon as he receives my records, which will be Monday!

This is a very old thread, but I'm curious to know how everything worked out both with the surgery and Tricare!

I am AD AF and my story is looking very similar to yours!
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