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For those in the 'watch and wait' status / Diagnosed with VS , What to do
« Last post by And147159 on October 14, 2025, 01:03:59 PM »
Hi
I am 54 YO now and was diagnosed with VS (6mmx8mmx5mm) in March 2024 with a hearing loss and tinnitus. Follow-up MRI  in Nov 2025, and size is (6mmx9mmx5mm), and again in Oct 2025, and size is (7mmx12mmx5mm).  My doctor says it is a baby size, but he is pushing to get treatment (mostly radiation). Not sure what to do.
My question is, if it's a baby size and grows slowly, then why to rush for the treatment?  Hearing is deteriorating, and tinnitus is not bothersome. I have another appointment for a second opinion in a month.

Can someone advise on a better approach?
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Facial Issues / Re: Do I have hope after 6 and a half months?
« Last post by WALEED KHALID on October 12, 2025, 06:41:27 AM »
Hello,  I don't know enough about your surgery/treatments to tell how much your nerves were damaged so I don't know if this is of help or not.  I had my surgery in 1992 and the my facial nerve was severed because that was where my tumor was. They told me it would take 6 months for the nerve to regenerate before I would see any movement, they were correct.  If your nerve was damaged but not severed I assume it wouldn't take so long for you to notice movement.  Good luck to both of you!  Jill Marie
The nerve was not cut, but it was affected during the surgery, although before the operation, my facial expressions were working normally, and now I have completed 10 months of the operation and I have not received any treatment only in the first week of the operation, and sometimes I take vitamin B12 and I began to be able to tighten the angle of the mouth and smile 2 or 3 millimeters, but a very small movement, as well as the eyelashes at the bottom, it seems to move 2 millimeters, although the upper eyelashes vibrate with healthy eyelashes, and the tears returned excellently as well as my lower lip became normal, my question to you, is, does my smile develop and close my eyes in the coming months
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Facial Issues / Re: Do I have hope after 6 and a half months?
« Last post by WALEED KHALID on October 12, 2025, 06:40:35 AM »
Did you ever get any movement? I’m at 6.5 months and not better tone but no movement.
I have now completed 10 months and I have begun to be able to tighten the corner of the mouth and smile 2 or 3 mm, but it is very off, as well as the eyelashes below, they seem to move 2 mm, although the upper eyelashes are shaking, I hope we have a lot of developments, doing exercises and massage do not lose hope
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Hearing Issues / Re: Pitch Changes and Musicians
« Last post by ESH on October 08, 2025, 04:56:08 PM »
Singing--ah, there's the rub. I find I am no longer singing in public. I can do ok if I half-cup my hand over my mouth and direct the sound to the good ear, but I can't do that in public. I just don't trust my voice right now. I keep hoping I will figure out how to adjust.
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Physicians / Suggestions on where to get gamma knife treatment
« Last post by Mulberry56 on October 07, 2025, 02:26:38 PM »
Good afternoon,
Trying to determine the best place to have a gamma knife treatment.
Live in Buffalo ny, wondering about Cleveland Clinic vs Roswell .
Anyone with experience at either facility?
Thank you!
76
Hearing Issues / Hearing aids vs. Airpods
« Last post by cjd on October 06, 2025, 09:45:56 AM »
I lost total hearing in my left ear due to my AN surgery a couple years ago and have a hearing aid in my right ear with a cross-over in my left.  Like a lot of folks, I have trouble hearing well in bars and restaurants, crowded places, etc.  Even with the hearing aids I struggle with these social situations.

I've heard from a couple people that Airpod 2's (and maybe 3's?) are excellent at helping with clarifying voices in these settings.  My question is are these actually better than hearing aids?  Does anyone have any experiences comparing the two?
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Inquiries / Re: Bells Palsy and acoustic neuroma
« Last post by seagullbiat on October 06, 2025, 08:53:08 AM »
In your particular case, a direct cause-and-effect relationship is highly unlikely. The unilateral Bell's palsy and the contralateral acoustic neuroma clearly represent two separate, unrelated events. If the acoustic neuroma were the cause of the palsy, both events would almost certainly have occurred on the same side. The ten-year gap also suggests different causes. Bell's palsy is often attributed to a viral inflammation of the facial nerve.
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Inquiries / Re: Bells Palsy and acoustic neuroma
« Last post by destructionmuesli on October 03, 2025, 10:15:04 PM »
I had Bell’s Palsy too—mine was on the left side and lasted about 6 weeks. No acoustic neuroma in my case, but I’ve definitely seen a few folks mention both conditions in the forums over the years.
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