Recent Posts

Pages: 1 ... 6 7 [8] 9 10
71
Radiation / Radiosurgery / Gamma Knife Surgery Scheduled
« Last post by JoHo1118 on November 07, 2025, 07:34:08 AM »
After my 2nd MRI this year, the Acoustic Neuroma grew 20% (it's at nearly 5 mm now) and haver been recommended for the Gamma Knife procedure to take place on December 4th because of the rate of growth.  While there is the small chance my hearing will get worse (it already is anyway) my true hope is the long-term positive effects of no more vertigo and imbalance issues while walking or other activities.
72
Facial Issues / Getting back to normal after facial reanimation 5 to 7
« Last post by YankyG. on November 07, 2025, 01:58:59 AM »
Hi

I have an appointment for facial reanimation In 2 weeks

I would like to know how long after the surgery can you go back to normal like working flying domestic or international.

I know the hospitals are saying to stay around 3 to 4 weeks

But I would like to hear from people that went thru such a process how long after that is it really possible to travel?

I have to get back home as soon as possible.

Thanks a lot
73
For those in the 'watch and wait' status / Re: Diagnosed with VS , What to do
« Last post by DodgeAU on November 05, 2025, 10:16:05 PM »
And147159, welcome to the best AN community! I had similar AN size like yours when first diagnosed. I decided to wait and watch for three years. My AN has tripled in size after 3 years and decided to go for GK treatment. So far the treatment has worked really well for me and my AN is now under control, continues to shrink in size. It's okay to wait and watch but please be mindful of the growth rate after few MRI's. Most of us are lucky to find out AN while still small in size as we have plenty of options. In my case, I should have taken action/treatment much earlier although I had enough time to decide what treatment was best for me. I'm really glad I found this community people are really nice and helpful. All the best and keep us updated with your progress.
74

It's our understanding that the Facial Paralysis & Bell's Palsy Foundation is not currently active. You can still find some helpful links and information posted on their website, however.

Please reach out to Melanie at the ANA for facial resources, including the ANA's facial support group.

Best regards,

The ANA Team
melanie@anausa.org

I am very curious about this...Is Dr. Azizzadeh's office not open anymore? 
75
AN Issues / Re: Second surgery-HELP
« Last post by mwatto on October 31, 2025, 08:08:14 PM »
I read this today and was wondering if medication/ chemo might help this time? Here is the link to show your specialists : https://academic.oup.com/noa/article/6/1/vdae107/7697688
76
Headaches / Re: Sex / orgasm headaches & dhiarhea headaches - post op
« Last post by greenamw on October 31, 2025, 06:29:50 AM »
I've actually experienced mild headaches after sex a few times, especially when I was stressed or recovering from illness, but nothing as intense as what you're describing. It always freaked me out, but for me, drinking water and lying down in a dark room usually helped. Diarrhea-related headaches are something I had post-gastrobug, probably from dehydration, but never both together or as severe as you mention.
77
AN Issues / Re: Second surgery-HELP
« Last post by DanFouratt on October 30, 2025, 03:28:35 PM »
Sorry to hear your story and I cannot offer advice but you are in my thoughts are prayer.  Good luck on your journey.
78
AN Issues / Second surgery-HELP
« Last post by nattyc21 on October 30, 2025, 09:51:13 AM »
I had a translab surgery in October of 2023(3cm tumor).  Then I went through Gamma Knife in April 2024 for the residual tumor.  The tumor is starting to grow and it is causing symptoms (currently it is 1.2x1.1x1.2).  I have have been told to do a second surgery.  I am curious about those of you that had a second surgery.  What was the recovery like? easier? harder? They are debating between a repeat translab vs a retrosigmoid/parial craniotomy.  Any advice would be great! Thanks everyone! Keep fighting!
79
Pre-Treatment Options / Re: Really Happening?!
« Last post by mctaggsm on October 28, 2025, 02:04:11 PM »
Records are overnighted and the referral has been sent. Now it's time to wait. Dr. Friedman said he would as soon as he receives my records, which will be Monday!

This is a very old thread, but I'm curious to know how everything worked out both with the surgery and Tricare!

I am AD AF and my story is looking very similar to yours!
80
Hi all! Hopefully people still lurk on this thread...

I am recently diagnosed - 2.5x2.6x3.4cm AN on the right side. I am Active-Duty Air Force and looking for some advice for dealing with Tricare and MTF's.

I was told by my case manager that I could get a referral to a civilian provider, however I would not receive any travel pay unless I followed a few steps which basically amount to:
1) Get a referral to an MTF, which would probably be Balboa or Walter Reed?
2) If the MTF cannot treat, get referral to providers in the local area
3) If local providers cannot treat, get referral to the closest non-local provider that can provide adequate care (probably not the place I want to go).

So I know somewhere in that chain of events that must happen, people are going to say they can provide the treatment - which is probably technically true, but I don't want someone who does this like once a year working on me. Does anyone have experience dealing with Tricare or MTF's to throw the "BS" flag?.

I can of course always just get the referral to a civilian provider of my choice, but I would like to keep the door open to getting paid to travel if possible...

FWIW I am in Las Vegas, so relatively close to UCSD, UCLA, Stanford, Mayo etc
Pages: 1 ... 6 7 [8] 9 10