Recent Posts

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AN Issues / Re: New member, symptoms questions.
« Last post by greenamw on July 08, 2025, 11:31:28 am »
Your speech and double vision symptoms likely relate to the tumor pressing on nearby nerves or brain areas. It’s common and worth mentioning to your neurosurgeon. These issues support your decision for surgery. Your health and activity level are good signs for recovery. The pre-op physical, blood work, and MRI before surgery are standard steps.
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Since CSF leak and usual treatments aren’t helping, look into craniocervical instability or tethered cord, they can cause similar headaches and often get missed.
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AN Issues / Re: 12mm to 14mm in 3 months
« Last post by greenamw on July 08, 2025, 11:23:31 am »
Many choose surgery quickly in cases like this to prevent permanent damage. Waiting risks more nerve damage and harder recovery.

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Inquiries / Re: Mayo for Treatment/s
« Last post by hypothesisgrumpy on July 08, 2025, 02:08:16 am »
Greetings Kamama62-

I was treated at Mayo in MN. Started with Gamma in 2019 - deemed to be a failure (part died party kept growing) so I had translab surgery in 2023.  Let me know what questions you have!
After the Gamma treatment didn’t fully succeed, how did they help you transition into surgery—was it a smooth process?
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AN Issues / Re: 12mm to 14mm in 3 months
« Last post by skier on July 06, 2025, 01:55:14 pm »
Wishing you great peace of mind and strength in recovery!
Skier
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AN Issues / Re: 12mm to 14mm in 3 months
« Last post by sissyn on July 06, 2025, 09:20:33 am »
Mark - thank you for this and I will keep that in mind.  I am so encouraged to hear that you feel so much better emotionally and mentally.  I am so eager to feel myself once again. 
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Mark I understand - I dont get dizziness thank goodness! My main issue is intermittent nerve pain so thats different. 
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I get it and like I said if it works for you and you are ok with it that's great.  Just because something is prescribed though definitely doesn't make it non-addictive and safe.   The opioid problem here can be traced back to legally prescribed pain killers.   My concerns with it were not about getting high.  But the long term effects listed include things that I was already battling, one of the main ones being dizziness.   The acoustic neuroma was causing dizziness already and there was no way I wanted to add to that.
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Hi there I am def not addicted. This is prescribed TGA approved medical cannabis I only use it when I get nerve pain and that is not every day. I put two drops under my tongue before bed and sleep deeply. I have no side effects nor is it meant to make one high (this is a very low THC full spectrum product with all the terpenes and its the only brand I would use). For me its a useful anti inflammatory that is all. I dont smoke ,dont drink and am not taking anything else thats medication. Its prescribed and I am fully educated on it . I take it also because it wont damage my glymphatic system.   I had very bad neuroinflammation post covid and it helped then also. I am an exceptionally health orientated person who diligently reads in depth on everything from nutrition, sleep, supplements etc.
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MWATTO,

I know you say it worked for you, and I know it's totally legal in a lot of places.  As a personal choice I will not use that for anything short of a terminal illness.   There are lots of studies about the long term side effects and risks.  I for one am very leary of anything that is so easily addictive unless it is a last resort on a terminal diagnosis.   I just had the craniotomy surgery 7 weeks ago and I stopped taking anything for pain on day 3 as I don't want any issues with stopping the meds.

Now I do not judge others or try to impose my opinion so if you're ok with it and it works for you that's great, I just like to see people try every other option first before going down the road of addictive drugs weather legal or not.
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