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91
Headaches / Re: Alcohol effect
« Last post by stevehernes on February 16, 2025, 02:11:43 am »
How are you doing these days? Hope you're doing well! I stopped drinking alcohol two years ago, and honestly, I feel like a completely different person. My energy levels have skyrocketed, my mind feels clearer, and overall, I just feel so much healthier. It’s incredible how much of a difference cutting out alcohol can make—not just physically, but mentally too. Since making that change, I’ve been able to focus more on things that truly matter to me, like staying active and enjoying hobbies I once neglected. With the help of https://ukwritings.com/write-my-essay, I’ve also managed to free up even more time for myself. Now, I can do sports every day, explore new interests, and just live life without constantly feeling drained or stressed. It’s been such a rewarding journey, and I wouldn’t trade it for anything
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Inquiries / Re: vertigo
« Last post by mwatto on February 15, 2025, 07:05:51 pm »
Diazepam may help with vertigo. I think just try 1 mg after a chat with doctor. I used it for neuroinflammation after Covid when I felt a bit dizzy.
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Inquiries / Re: Am I normal?
« Last post by mwatto on February 15, 2025, 07:04:32 pm »
Steve I met my husband 15 years ago on E Harmony. Blissfully happy!
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Post-Treatment / Creatine pre-surgery and affects during recovery
« Last post by andrewiscycling on February 15, 2025, 12:43:22 pm »
I’m curious if anyone has heard of—or better yet, tried—using high-doses of creatine (0.4g/kg) before and after surgery to aid in recovery? Specifically, I’m wondering if this has been beneficial for neurological recovery and overall post-op healing. 
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NF2 / Re: TCM for NF2 article
« Last post by mwatto on February 15, 2025, 01:16:16 am »
Hi I am unsure. I had CK 6 years ago though due for another MRI next month. I do read almost every day on the biological signalling pathways and today based on a webinar Q&aA(UCSD) on this site I looked at the role of TGF Beta.

 I use supplements then that target the pathways in different ways.  Other than that, I try and be very mindful of diet and lifestyle and especially keeping stress low (and therefore inflammation). I keep an eye on BP and do light exercise every day, sleep also important though its taken me a few years to understand the importrance of a healthy glymphatic system to bring neuroinflammation down.

I am always aware that because I had SRT regrowth might occur but some insight as to what causes growth gives me a sense of control.
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Radiation / Radiosurgery / Anyone has had radiation after surgery?
« Last post by carolinafreire on February 14, 2025, 02:09:07 pm »
I had surgery at UCSF last month (January 13, 2025) to remove a 3cm acoustic neuroma. The surgeon removed 98% of the tumor to preserve the vestibular and facial nerve. This was agreed before the surgery, as I also have a hearing loss on my "good side", unrelated to the tumor. The recovery is going well and the surgeon is now recommending one session of CyberKnife (in 3 months) to prevent the tumor from growing back. He says one session is enough to treat and prevent regrowth.

Has anyone had a similar experience that required radiation after surgery?

Thank you,
Carolina
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Hearing Issues / Re: Hearing Music
« Last post by stevehernes on February 14, 2025, 07:27:52 am »
Never had something like that, but I really hope you figure out what it is and how to get rid of it. Stress can be such a tricky thing to deal with. I've definitely noticed how much of a negative impact stress can have on my health, too. That's why these days, I'm making it a priority to use https://academized.com services more often for my college tasks. It’s been really helpful so far, and I’m hoping it’ll take some of the pressure off, allowing me to focus on my well-being. Let's see how it goes, but I’m feeling optimistic
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AN Issues / Re: Fatigued, confused, forgetful, and foggy?
« Last post by MarlaB on February 12, 2025, 11:04:53 pm »
Hello, I'm one of the moderators on this forum and I wanted to let you know that I removed the link from your post in accordance with the rules you agreed to. Thank you and thanks for sharing the information.

Marla B
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AN Issues / The issue of contrast with MRI
« Last post by mwatto on February 12, 2025, 10:59:52 pm »
I have read two recent articles re contrast and personally feel that for simply monitoring AN it may be best not to have it (understand might need for diagnosis or treatment though). 1. https://www.research.va.gov/currents/1024-Metal-in-MRI-contrast-agents-may-cause-serious-health-problems.cfm and 2. https://medicalxpress.com/news/2023-02-nanoparticles-rare-earth-metal-mri.amp

We need to advocate for our health.
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AN Issues / Targetting pathways
« Last post by mwatto on February 12, 2025, 10:56:04 pm »
I was told this by Prof Maruto (a researcher into NF2 for many years) a few years ago and this study (although old) again confirms the pathway. There are natural compounds that target this pathway. https://pmc.ncbi.nlm.nih.gov/articles/PMC4218275/
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