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91
Headaches / Re: Sex / orgasm headaches & dhiarhea headaches - post op
« Last post by greenamw on October 31, 2025, 06:29:50 AM »
I've actually experienced mild headaches after sex a few times, especially when I was stressed or recovering from illness, but nothing as intense as what you're describing. It always freaked me out, but for me, drinking water and lying down in a dark room usually helped. Diarrhea-related headaches are something I had post-gastrobug, probably from dehydration, but never both together or as severe as you mention.
92
AN Issues / Re: Second surgery-HELP
« Last post by DanFouratt on October 30, 2025, 03:28:35 PM »
Sorry to hear your story and I cannot offer advice but you are in my thoughts are prayer.  Good luck on your journey.
93
AN Issues / Second surgery-HELP
« Last post by nattyc21 on October 30, 2025, 09:51:13 AM »
I had a translab surgery in October of 2023(3cm tumor).  Then I went through Gamma Knife in April 2024 for the residual tumor.  The tumor is starting to grow and it is causing symptoms (currently it is 1.2x1.1x1.2).  I have have been told to do a second surgery.  I am curious about those of you that had a second surgery.  What was the recovery like? easier? harder? They are debating between a repeat translab vs a retrosigmoid/parial craniotomy.  Any advice would be great! Thanks everyone! Keep fighting!
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Pre-Treatment Options / Re: Really Happening?!
« Last post by mctaggsm on October 28, 2025, 02:04:11 PM »
Records are overnighted and the referral has been sent. Now it's time to wait. Dr. Friedman said he would as soon as he receives my records, which will be Monday!

This is a very old thread, but I'm curious to know how everything worked out both with the surgery and Tricare!

I am AD AF and my story is looking very similar to yours!
95
Hi all! Hopefully people still lurk on this thread...

I am recently diagnosed - 2.5x2.6x3.4cm AN on the right side. I am Active-Duty Air Force and looking for some advice for dealing with Tricare and MTF's.

I was told by my case manager that I could get a referral to a civilian provider, however I would not receive any travel pay unless I followed a few steps which basically amount to:
1) Get a referral to an MTF, which would probably be Balboa or Walter Reed?
2) If the MTF cannot treat, get referral to providers in the local area
3) If local providers cannot treat, get referral to the closest non-local provider that can provide adequate care (probably not the place I want to go).

So I know somewhere in that chain of events that must happen, people are going to say they can provide the treatment - which is probably technically true, but I don't want someone who does this like once a year working on me. Does anyone have experience dealing with Tricare or MTF's to throw the "BS" flag?.

I can of course always just get the referral to a civilian provider of my choice, but I would like to keep the door open to getting paid to travel if possible...

FWIW I am in Las Vegas, so relatively close to UCSD, UCLA, Stanford, Mayo etc
97
For those in the 'watch and wait' status / Re: Diagnosed with VS , What to do
« Last post by Mark F. on October 26, 2025, 07:09:47 PM »
I fully understand your hesitation to do anything, and the decision is totally yours, but that being said, my opinion would be to go out of watch and wait and get something done.   It is growing and one thing for sure is that the bigger it gets, the more likely you are to develop additional symptoms that may or may not be permanent.  Personally, I went with the surgery.  I felt it was the right decision for me and I still do.  I am 5 months post op now and feel better than I have in years.  I'm not going to try and convince you one way or another,  just do your research and decide which option you are most comfortable with.  I wasn't comfortable with radiation, some people are.   Just remember that no matter which method you consider, the doctors are going to warn you of the possible worst case scenarios.  But the chances of you being in that category with a small tumor are very slim.  By the way, I am 56 so I am not a young person, but I am physically active.  If you do lean towards the surgery, being physically active is a huge advantage in your recovery. 
98
Inquiries / Re: What's your tinnitus like?
« Last post by ESH on October 26, 2025, 09:34:50 AM »
For me, it usually is more of a loud "seashell" sound but can become that emergency alert sound if I have been in a lot of noise. The seashell seems worse in quiet (and nights are quiet.) I have found that it helps to go to sleep with soft music as I have trained myself to focus on that more than the tinnitus. I use soft "headband" headphones so I don't have the bad-side-up problem and I set the music to go off automatically.

I am sorry to hear yours is so bad.
99
Facial Issues / Re: Do I have hope after 6 and a half months?
« Last post by GatorMan on October 20, 2025, 10:57:06 AM »
Very happy for your progress Waleed!!  :)
100
Microsurgical Options / Anxious, considering Stanford for retrosigmoid approach.
« Last post by G Marioni on October 16, 2025, 11:40:49 PM »
I was diagnosed with a vestibular schwannoma in November of 2024. Size about 18x15mm. Besides tinnitus I have some hearing loss but no change in hearing from initial diagnosis. I have had one balance related episode. To preserve the hearing I have and avoid additional symptoms I am considering the rectosigmoid approach for treatment at Stanford by a team led by Dr Jauna Carlos Fernandez-Miranda. I do have opinions from two other facilities; those surgeons basically recommend a similar approach. I am very anxious about all this and would like to know if anyone has had experience with Stanford and Dr Fernandez-Miranda that they would be willing to share.

Thank you
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