So I have had 5 years of atypical trigeminal type pain after Cyberknife which have mystified my specialist. My AN is ipsilateral to the trigeminal nerve so I thought it was that however even with a focus of the MRI on that nerve all seemed normal. Yest stabbbing eye and ear and throat and deep in head that side (could never sleep on that side either) would wake me up almost every night. I saw a neurosurgeon this year for his opinion  as he also a TN specialist. He said in his opinion nothing to do with AN (and he operates on that quite a bit) he thought I might have had Herpes simplex viral reactivation especially since I had the vaccine and Covid and RSV post my treatment. My dentist and my doctor said TMJ so I got a dental mouth guard which helped a little. Then about three months ago I saw my naturopath a biochemist and he said lets try high dose PEA and a few other things. This stopped the pain and it has not returned. Full spectrum CBD, CBG and CBN have also helped I think. Anyway am completely pain free for a few months now. Sleeping well also (a few things am taking such as Ecklonia Cava).

It is remarkable that your husband is supportive and that you found a certified doctor. You are switching from Ambien and clonapin to something more natural. It sounds good. Medical marijuana, especially in its extract form, can help with pain and sleep. It will help to talk to your doctor about the proper dosage and type. It might cost a bit, but if it helps you feel better, it's worth it. I've been using medical marijuana for a while and thought I'd share my experience. I had some depression issues, and my therapist recommended medical marijuana. I have been using it for a while and use it through Nexus Smoke vapes. It was hard at first, but with time to come, it helped me a lot. So you will be able to overcome this problem too.

I think that people underestimate the power of medical marijuana.

Hi MikeRad, and welcome to the ANA Forums! Thanks for posting your excellent post!

Dan is correct. It is your brain and your decision. I could never fault anyone for wanting to pursue treatment, nor would I ever criticize anyone for wanting another six months to see if the growth is continuing or not. I wish you all the best as you make that tough decision.
Don

Hi. Carrie!

Like you, I was very concerned about the Bluetooth signal.  And I expressed my concerns to my audiologist. I told her, "You might think I'm crazy, and I know everyone says Bluetooth is safe, but I don't want to take the risk of any damage to my brain from EMF or Bluetooth sources."  So, she listened to my concerns and told me that she was going to recommend a CROS unit where I can turn off the Bluetooth.

I replied, "If I turn off the Bluetooth, will the device still work?" And she said that it did, but it would not connect to my phone app, TV, etc , but it still would send the audio from the transmitter to my receiver in my good ear. To which I replied, "I don't want any EMF going through my brain."   She said that the model she was recommending did not penetrate the brain, but used bone conduction and traveled on the outside of the skull. I was very skeptical, but when I read the claims of the manufacturer, they said the same thing.

When I charge my CROS system overnight, the charger automatically turns the Bluetooth back on. So, every morning, I turn the Bluetooth off, and it stays off until I put it back on the charger.

So, I was very firm with my audiologist on what I wanted and didn't want, and she listened to my concerns to match my expressed needs. And I have not noticed any worsening of my tinnitus or my hearing. I purposely didn't list my model here because I'm not trying to promote any brand, and there are newer and better units which have come on the market since I purchased mine. But I hope my experience is helpful for you.

Best wishes on your continued journey!
Don