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Author Topic: And the winner is...  (Read 3304 times)

eab

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And the winner is...
« on: June 24, 2009, 03:07:41 pm »
GK - I'm going in on Monday July 6 to get this thing zapped.

I will fess up that I did not believe all of the people who said that there is some relief in making a choice and setting a date, but I am now converted.  I feel much better than I did a week ago. Now that I can plan for it, work out the care for my kids and my own r&r, I feel like I have a little more control.

Many thanks for the posts, encouragement and information that helped me get to this decision.
Beth
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Left side AN 2.5x1.7x1.5cm, limited hearing loss, limited tin., good balance
GK 7/6/09 Hoag Hospital; MRIs at 2, 6 & 12 months show no change in tumor size - hearing etc. same as before GK.

ppearl214

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Re: And the winner is...
« Reply #1 on: June 24, 2009, 04:39:04 pm »
Beth,

and YOU are the winner for making the decision for what will work best for you! :) Congrats on your GK decision (where will it be done?) and I'll be following along.

Ah, the monkey is off your back.. .doesn't it feel great?  Now time to rawk it!

congrats to you!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Vivian B.

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Re: And the winner is...
« Reply #2 on: June 24, 2009, 09:22:09 pm »
Hi Beth,

Glad to hear a decision has been made and you can now get rid of the little "creature". I am not there yet but looking forward to whay you say taking control over the situation. Good luck and keep us posted.

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

eab

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Re: And the winner is...
« Reply #3 on: June 24, 2009, 09:25:30 pm »
Thanks to you both.  I'm going to have it done at Hoag (in Newport Beach, CA) by Dr. Chris Duma.  I do feel a little crazy for being excited to get it done, everything about this has been crazy so why stop now?!
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Left side AN 2.5x1.7x1.5cm, limited hearing loss, limited tin., good balance
GK 7/6/09 Hoag Hospital; MRIs at 2, 6 & 12 months show no change in tumor size - hearing etc. same as before GK.

Sefra22

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Re: And the winner is...
« Reply #4 on: June 24, 2009, 09:46:18 pm »
Hi Beth,
I'm happy that you made a decision you are "excited" about. I felt the same way ;D.  July 6 is coming fast, that's great that you don't have to wait too long.

Best of Luck,
Lisa

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Lisa from Portland, Maine age 46
Diagnosed June 2006
15mm X 17mm AN right side 80% hearing loss
GK March 14,2007 Dr. Noren, Providence RI
1 Year follow-up MRI shows "slight shrinkage".
2 Year follow-up MRI shows "No Change".
3 Year follow-up MRI "stable".
BAHA surgery 4-22-09 BP100 Sept. 2009

GM

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Re: And the winner is...
« Reply #5 on: June 25, 2009, 03:17:35 pm »
Congrats on making the decision...truely the hardest part.  Sourround yourself with friends and family to support you... 

Good luck and keep us informed!

Gary
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Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

leapyrtwins

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Re: And the winner is...
« Reply #6 on: June 25, 2009, 08:19:09 pm »
Congratulations on your decision, Beth.

It truly is a very hard part of the AN Journey.

Good luck on 7/6

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Jim Scott

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Re: And the winner is...
« Reply #7 on: June 26, 2009, 03:12:10 pm »
Beth ~

I have to add my congratulations on your reaching a decision on treatment and having a firm date set.  I'm pleased to learn that you now understand why reaching this point is a relief.   :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

chocolatetruffle

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Re: And the winner is...
« Reply #8 on: June 26, 2009, 09:09:48 pm »
congrats on your decision, it feels like a weight off your shoulders and now you can continue your focus in treatment and recovery.  good luck to you!
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chocolatetruffle


2.8 cm left AN
Translab @ House/St Vincent's 11/27/07
Drs. Brackmann, Schwartz, Wilkinson, Stefan

GRACE1

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Re: And the winner is...
« Reply #9 on: July 14, 2009, 08:48:17 am »
Please let us know how you are doing.

Grace
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Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16
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