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Author Topic: this week (8/23) in he peripatetic world of AN  (Read 4246 times)

Keri

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this week (8/23) in he peripatetic world of AN
« on: August 23, 2009, 08:10:47 pm »
Peripatetic... isn't that a cool word? I've never heard of it until I read it in an article today. I have no idea who it would apply to in our AN world... who's our resident travelling philosopher?

First of all, thank you to Rich for doing the updates last week. I had an exhausting weekend and fell asleep before I hit the computer. I woke up two times during the night and thought 'I really need to do that update'. Rich will be doing them more after this week. I'll help out when he needs it.

Here's what's up this week:
Monday
Lholl36233 (laura) has a consultation with Dr Mc Kenna. I’ve read your posts, Laura, and it seems like you’ve got a lot of questions that need to be answered, and I hope Dr. Mc Kenna is very informative and helpful to you.

Tuesday
Happy Birthday Jo (tenai) ! I hope it’s a great one. Isn’t 50 the new 30, or whatever?
Have any big plans? I hope your next half century is wonderful!

Wednesday
Melinda has translab surgery at House in LA. From what I’ve read, you’ve done your research over a period of time and came to your decision, and I hope all goes smoothly and your recovery uncomplicated. We’ll have you in our thoughts and prayers.

Thursday
Well, there’s nothing on the calendar, so I will add a personal note… Wednesday our family is travelling to San Antonio to see Scott graduate from AF boot camp. There's a big ceremony Thursday and the actual graduation ceremony on Friday. Everything's outside and the weather is lovely there - about 102! We're very excited and proud and it will be so good to see him for a few days.

Friday
I just found Noodle's post and added her to the calendar. Noodle is having translab at St. Vincents Medical Center, LA with Dr. Jerald Robinson. We wish you well, Noodle! I will be praying for you. Noodle is pretty new to the forum.

Lois is celebrating her one year anniversary of her retrosigmoid surgery. Happy anniversary, Lois!

And though this is technically next week... Laura (allegro17) will be travelling this week to compete in Ironman Canada on Sunday. Laura ran the Boston marathon right before her surgery in April. Many of us met her at the NE luncheon. This will be her first Ironman and her biggest event post surgery. Ironman triathlons are made up of a  2.4 mile swim, 112 mile bike ride followed by a 26.2 marathon! Way to go, Laura!

From last week’s procedures: I hope Debi, Kathy, Wanda and Helen are recovering well.

Have a good week!  - Oh, check out the pics from the ANA forum last week. It's nice to see who so many of you are!

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

sgerrard

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Re: this week (8/23) in he peripatetic world of AN
« Reply #1 on: August 23, 2009, 09:21:49 pm »
I don't know how much walking he does, but I will nominate Jim as our resident traveling philosopher, since he is the one most likely to know what peripatetic means. :)

Best wishes first to Melinda and Noodle, for good surgeries and gentle recoveries.

Laura (lholl36233) I hope your consult goes well, happy birthday to Jo, congratulations to Scott, and happy anniversary to Lois.

Laura (allegro17), I don't what to say. I can't imagine doing a 2.4 mile swim, a 112 mile bike ride, and a 26.2 mile run, even with a month of rest in between. Doing them all in one day? Get outta here. What an inspiration to those who wonder if athletics is possible after ANs. Apparently it is. Have a great race, Laura.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Rich56

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Re: this week (8/23) in he peripatetic world of AN
« Reply #2 on: August 23, 2009, 10:29:16 pm »
We'd like to send our thoughts and prayers out to Melinda, and Noodle this week for successful surgeries.

Laura, don't be afraid to ask all the questions you have Monday in Boston.  Remember, there are no stupid questions.

Happy Anniversary Lois as you celebrate one year since becoming a Postie.

Happy Birthday Jo

Go get them Laura (allegro17).  Have a safe trip to Canada as you compete in the Ironman Triathlon next Sunday, we'll be thinking of you.

Congratulations to Scott, and his proud Mom ;D  Keri, have a safe trip and enjoy festivities, don't forget the sunscreen.

Thank you Keri for the opportunity to do some updates.

Rich & Scarlett
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SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

suboo73

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Re: this week (8/23) in he peripatetic world of AN
« Reply #3 on: August 24, 2009, 04:56:01 am »
Dear Keri,  Hi!  Had to research that word - good one!

My thoughts and prayers also to Melinda and Noodle - remember the F3D rule.
Laura - thoughts and prayers to you as well as you continue your research with Dr. K.
Lois - congrats on the one year mark!  Continued healing.
Jo - what can i say - i am over 50+ and life is good!  Happy Birthday to you! ;D
Keri - have a safe journey - i know you will enjoy seeing your son!
Laura - best wishes and good luck in the Ironman!

Sincerely,
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

ppearl214

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Re: this week (8/23) in he peripatetic world of AN
« Reply #4 on: August 24, 2009, 06:00:02 am »
thanks Keri!  Have a fantastic and safe trip this week!  :)

wellness wishes to all those having treatments this week or follow ups... and mighty "hippy burpdays" to Jo! :)

Laura, you go girl! Please keep us updated on how you do! You are amazing!

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Jim Scott

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Re: this week (8/23) in he peripatetic world of AN
« Reply #5 on: August 24, 2009, 01:54:03 pm »
Keri ~

Thanks, as always, for compiling and posting this week's AN 'activities' and milestones.  Much appreciated.

Sincere good thoughts to and prayers for Melinda and Noodle, undergoing Translab surgery this week. 

I trust Laura's consultation with the renowned Dr. McKenna will prove fruitful for her as she moves toward a treatment decision.   

Happy Birthday to JO- and yes, 50 is the new 30, so 60-something must really be 40-something, making me middle-aged, again.  I think I'll buy a sports car!

Happy First ANniversary to Lois.  As a fellow retrosigmoid surgery patient, I know that first year anniversary is important.  May you have continued healing.

My best wishes go out to the intrepid Laura (allegro17) for a successful Ironman quest.  Her strength and determination are awesome. What an inspiration! 

Finally, I couldn't end without saluting Keri's son, Scott, as he graduates from the Air Force boot camp.  Please, thank him for his service to his country - and have a great visit!  :)


Side note: I'm not quite as peripatetic as I used to be, but I do get around.  ;)

Jim

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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

cindyj

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Re: this week (8/23) in he peripatetic world of AN
« Reply #6 on: August 24, 2009, 02:18:46 pm »
Great word, Keri!  Congrats to your son! 

Will be thinking of Melinda and Noodle in LA and watching for updates...

Jo!  Hey, Happy b-day!  Mine's (50th) right around the corner...

And, Laura!  An Ironman!!!  Wow - yes, there is life after AN's!

Have a great week all,

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

CHD63

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Re: this week (8/23) in he peripatetic world of AN
« Reply #7 on: August 24, 2009, 02:59:27 pm »
Keri .....

Love the word of the week ..... one of those fun words to say ..... and so appropriate.

Melinda and Noodle will be in my thoughts and prayers as they go through surgery this week.

Celebrations for several this week:  Jo's birthday, Lois' 1 yr post-op, Scott's graduation, Laura's competition.  Happy times!  (It's nice when this list is the longest!!)

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

tenai98

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Re: this week (8/23) in he peripatetic world of AN
« Reply #8 on: August 24, 2009, 07:41:25 pm »
Thank you all for the b/day wishes....new 30's huh??? sounds cool...
JO ;D
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7
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