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Author Topic: AMAZING AND EXCITING NEWS!  (Read 8621 times)

Jackie

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Re: AMAZING AND EXCITING NEWS!
« Reply #15 on: September 01, 2009, 12:35:40 am »
So very exciting and this is just the beginning for you!!! Best always
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

leapyrtwins

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Re: AMAZING AND EXCITING NEWS!
« Reply #16 on: September 01, 2009, 06:40:11 am »
Laura Lynn -

I couldn't have said it any better myself - AMAZING AND EXCITING NEWS!   ;D

YEA!!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

GRACE1

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Re: AMAZING AND EXCITING NEWS!
« Reply #17 on: September 01, 2009, 07:44:43 am »
That is some great news !  Congratulations !!!

Grace
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Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

wendysig

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Re: AMAZING AND EXCITING NEWS!
« Reply #18 on: September 01, 2009, 09:42:56 am »
Laura Lynn,

AMAZING FANTASTIC WONDERFUL NEWS!!  YAY for you!!!  Keep up the hard work and it will get better and better!!!!!

Best wishes,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Pembo

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Re: AMAZING AND EXCITING NEWS!
« Reply #19 on: September 01, 2009, 10:25:38 am »
Yay! I remember that day for me as well. Practice that smile in the mirror everyday, closed mouth and open mouth. It will get better......
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Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

4cm in Pacific Northwest

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Re: AMAZING AND EXCITING NEWS!
« Reply #20 on: September 01, 2009, 12:32:26 pm »
WaHOOOOO!  ;D

DHM
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

cheza

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Re: AMAZING AND EXCITING NEWS!
« Reply #21 on: September 02, 2009, 09:27:58 am »

Hey there,

I've not been on the site for a while but WOW what a great thread to come back too.

I'm so pleased for you, I remember when my mouth moved just a little in the corner like you I shouted the kids I was so excited, I know the feeling well. it can only get better from here keep practisng the simple smile and before you know it you'll be smiling at everyone you meet just so you can show off. WOOHOO Good times!!!

Cheryl XxX  :-*
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diagnosed 4th Oct 07 with a 3cm left acoustic neuroma,
surgery 9th Nov 07, age 30 at time of surgery,
total hearing loss to left ear, grade 6 facial palsay (getting better)
latest MRI shows regrowth on facial nerve.

moe

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Re: AMAZING AND EXCITING NEWS!
« Reply #22 on: September 02, 2009, 09:30:57 am »
 :-\ :-\ :-\ :) :) :) :) :) :D :D :D :D :D :D :D :D :D ( ;) ;) ;) ;))
I feel your happiness! There is hope after all.
Keep practicing/exercising those smiles. Hopefully you'll end up laughing ;)
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

lori67

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Re: AMAZING AND EXCITING NEWS!
« Reply #23 on: September 02, 2009, 11:01:31 am »
That is definitely amazing and exciting!

Now you have even more reason to practice that new smile!   ;D

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

DR

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Re: AMAZING AND EXCITING NEWS!
« Reply #24 on: September 03, 2009, 07:26:20 am »
That is amazing and fantastic news!  Keep working at it and never stop smiling  ;D

- Dennis
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AN right side 12mm x 9mm x 9mm
Middle fossa surgery 11/4/09 at House (Dr. Brackmann/Dr. Schwartz)
Tumor removed, no facial issues, hearing intact!
http://denvstumor.blogspot.com/

"The greatest trick the devil ever pulled was convincing the world he did not exist."

4cm in Pacific Northwest

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Re: AMAZING AND EXCITING NEWS!
« Reply #25 on: September 03, 2009, 01:04:08 pm »
CHERYL (Cheza)!!!

You are back!! YEAH!

Wow you are stunning in your photo... so young.

DHM (aka "4" )
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

lauralynn

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Re: AMAZING AND EXCITING NEWS!
« Reply #26 on: September 11, 2009, 09:52:26 pm »
Thank you all so much for all of your sweet and encouraging words.  I've noticed a little improvement since I noticed the first movement.  I know it will continue to progress as long as I continue my exercises.  My next big step is I'm preparing to go back to work.  I've been out over 4 months.  My energy level is still pretty low but I need the money.  I'm hoping my strength will come back so I can handle a 40 hour work week.  I'll of course keep you posted on that.  I plan on going back beginning of Oct.

Love,
Laura Lynn
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4 cm left AN/diagnosed 1/23/09
Translab 4/14/09
Cyberknife 7/09
Gold weight implant 8/09
Barrow Neurological Institute, Phoenix
Dr. Syms and Dr. Porter
Balance issues, 100% hearingl loss (left ear), tinnitus, facial numbness/pain,
chronic fatigue, weakness, eye issues

God Bless everyone

Kaybo

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Re: AMAZING AND EXCITING NEWS!
« Reply #27 on: September 11, 2009, 10:00:47 pm »
WOW!  You are lucky that you have been able to stay away from work that long!  I had to go back at 3 months and that was teaching 1st grade - pretty hands on and physical!  I came home & slept everyday until it was time to get up the next morning!

I know you will do great!

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

followingHim

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Re: AMAZING AND EXCITING NEWS!
« Reply #28 on: September 11, 2009, 10:27:06 pm »
That is really great news!!

Blessings

Ley
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