How Common Are AN's?

[Raven]

My ENT also said 1 per 100,000........another number I've seen is 5% of people that have one AN are bilatteral..........don't ask me how I know...LOL

John

[ppearl214]

Note to Phyl - one of the many wonderful things about the symposium was actually meeting my "sisters" - one who is also my partner in crime    Hopefully in Cincinnati I'll have more time to attend sessions - but I wouldn't miss the socializing for anything in the world.  I can count the number of people I knew with an AN on no hands prior to joining the forum - and IMO - one of the many great things here is being able to interact with others who've shared my same experience.

In total agreement for myself as well  

I wonder if the ANA has an official update on the numbers/%.  Will inquire to see what I can find out.

Phyl

[ppearl214]

Official from the ANA:

"Following is what we have in our patient information booklet:

HOW OFTEN DO ACOUSTIC NEUROMAS OCCUR?

Most recent publications suggest that the incidence of acoustic neuromas is rising.

This is because of advances in MRI scanning both on incidental scans and for

patients experiencing symptoms.  Studies in Denmark published in 2004 show the

incidence is 17.4 per million or close to 2 persons per 100,000.  Most acoustic

neuromas are diagnosed in patients between the ages of 30 and 60.

This equates to about 2,500-3,000 annually in the US .

 

At our Medical Advisory Board meeting this past August – following is the report on incidence—

AN Incidence Rate

It was noted that there was a very slight increase of this tumor on the auditory nerve—but no definitive findings; with a slight decrease of other brain tumors."