Francesco,
For some reason I have not realized that we were so close on CK treatment date. You are about 3 weeks ahead of me.
I read your updates, and some things rang true for me. My AN was much smaller, and I have not had dizziness as an issue all through it. I did recognize the post-CK jaw feeling you mentioned, which for me was stronger last year at this time, and has now disappeared.
I don't have any residual balance thing, but I do have hearing effects. I lost quite a bit of hearing before treatment, and I still have days where my ears are "doing something." It doesn't really fall into the category of something that can be diagnosed and treated by conventional medicine. A more holistic approach to general healing, as you describe, seems like the best way to go. I think the main thing is keep doing regular activities and encouraging your body to heal up and get going again. My experience at this point suggests that works over time.
It is great to hear that medically your tumor is well under control and has responded to CK as intended. I bet you find that in time the residual balance issue will clear up as well.
Best wishes for year number 3.
Steve
