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Author Topic: Check this out!  (Read 3737 times)

Captain Deb

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Check this out!
« on: November 06, 2009, 07:51:00 pm »
I recently went off my Topamax and Neurontin and of course, headaches back, but not as severe as before.  I have been laid up with various internal ailments (caused by anti-seizure drug toxicity??) and not active at all but in the past few weeks have been a little more active and as a result, very headachy.  It all starts at that single point in the occipital region. Almost seven years post-op and still suffering and I'm sick of it!!!

googled up this:

http://www.webwire.com/ViewPressRel.asp?aId=106394

Dr is in my old hometown of Cleveland, where I still have a few friends who would be glad to have me.  I plan on contacting this doc next week and finding out more.  I want my life back!!!!!!!

Special hugs to all Headachers

Capt Deb

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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
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ppearl214

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Re: Check this out!
« Reply #1 on: November 06, 2009, 07:53:17 pm »
Captn

did you see my post in this forum a few threads down the list? ;)

http://anausa.org/forum/index.php?topic=10196.0

xoxoxoxoxo
Phyl
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nancyann

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Re: Check this out!
« Reply #2 on: November 06, 2009, 08:01:42 pm »
Hi Capt.:  I'm not a headache sufferer but I want my life back too ! !   I really don't like lying in bed trying to go to sleep with one eye wide open b/c of the paralysis.
We have different problems due to the darn AN, but our wishes are the same.
I hope you find some relief.   I am still searching....    But, I am (as I know you are) thankful for what we have,  for what God has given us.
I personally just wish when I lay down both eyes would close !....   I know you wish you can go through at least a month without a headache.
Always good thoughts my friend,  Nancy
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retrosigmoid 6/19/06
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Captain Deb

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Re: Check this out!
« Reply #3 on: November 07, 2009, 07:02:56 am »
Yes Phyll, that's da guy!  Your post promted a google search and when I typed in "surgical migraine cure" his name came up and he happens to be in Cleveland, a convenient place for me to actually go since I have a best friend from high school there and 3 girls who used to be family friends who I am still in touch with.

Thanks!

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Sue

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Re: Check this out!
« Reply #4 on: November 09, 2009, 06:08:32 pm »
Wow, hope that is a treatment that really works and offers people like our beloved Cap't Deb relief.  Such a terrible thing to be straddled with all of your life.  Cut the darn thing out!!

Sue in Vancouver USA
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