Author Topic: CA Newbie  (Read 4522 times)

Myjoyjordan

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  • Posts: 3
Re: CA Newbie
« Reply #15 on: November 13, 2009, 07:38:28 pm »
Thank you everyone for the kind comments.  It took me 2 days to respond to everyone because I am having a build up of fluid build and its causing me bad headaches and the doc needs to adjust my shunt next week. I am feeling pretty down......with all these problems and now my daughter is embarrassed to be out with me cuz I don't have any hair. :-(

gingerbread6

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  • Posts: 51
Re: CA Newbie
« Reply #16 on: November 13, 2009, 08:27:58 pm »
Hi Myjoyjordan

I hope and pray that you are doing better. Better days are ahead. Be strong and God will see you through. We are here for you, whenever you need the support.

My thoughts and prayers are with you.

Gingerbread6

Tricia (horsekayak)

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  • Posts: 64
  • Keenah and Tricia
Re: CA Newbie
« Reply #17 on: November 14, 2009, 11:26:47 am »
HI,
I know i'm late chiming in, but just wanted to wish you the best, and to tell you (again) that we all are here for you, pulling for you, wishing you the best.
Tricia (horsekayak)-Diagnosed 8/10/09
1.5 cm right side AN
Gainesville, GA (near horses and Lake Lanier)
Linac radiosurgery at Shands Hospital/Univ of Florida  12/1/09  Go Gators!!!

"Excellence is to do a common thing in an uncommon way"...BT Washington

Palace

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  • Posts: 600
  • Palace
Re: CA Newbie
« Reply #18 on: November 15, 2009, 10:22:04 am »
Dear Myjoyjordan,

I wrote to you privately awhile ago.  Welcome to the AN forum!  You have many issues regarding the AN and might like to consult more specialists before, making anymore serious moves.

Where are you planning the radiation?  Try to stay with a "team" that is really experienced as, it's not the decision so much to finish with radiation which will help you.  The important part here is that the steriotactic radiation be precise enough in the target spot.

If you have any further information regarding meningitis as well, please post in my thread regarding that topic.  I and others need to be informed with this.! Were you told that once you had meningitis you're more at risk to contract this again?  (mine being bacteria related and I got it right after arriving home from, a month travel all through Europe)  As I mentioned in my related-thread, keep antibiotics with you just in case you might be able to take them if you feel you're having such symptoms (getting meningitis) while away from your immediate doctors.

As you see below, I'm connected with Stanford.  (awaiting to hear my latest MRI results)  I've only good comments to say, about Stanford Hospital!  

Where in California are you and I'm wondering with whom you met, discussing your further options to combat the existing Acoustic Neuroma tumor?

I found a note in my email folder dating-back only six weeks ago.  This email was written to the person with whom accompanied me on the vacation.  I had mentioned my symptoms in the email and they seem like a "bad cold" coming on.  The email I wrote was written just hours before, I was in a coma.  Little did I know......



Take care,



Palace
« Last Edit: November 15, 2009, 01:00:27 pm by Palace »
22 mm Acoustic Neuroma (right side)
Cyberknife, Nov. & Dec. 2006
Dr. Iris Gibbs & Dr. Blevins @ Stanford
single sided deafness