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Author Topic: Post # 6000!!!!!!!!!! where to go from here?  (Read 12419 times)

Rivergirl

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #30 on: November 10, 2009, 07:29:22 pm »
So I am a bit late to respond to this you must be close to 7,000 by now.  Phy you are awesome, you make it better for many, many of us, the love right back at you.
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

MLB57

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #31 on: November 11, 2009, 07:52:51 am »
 ;D Hi Phyl and all,   ;D

Phyl you are definitely the "silly" glue that keeps us all together...that piece of the puzzle that completes the whole picture for us... and although I've only needed to call you once or so I know you will always be available if I need to talk... and you so richly deserve the Volunteer Achievement Award you received at the last ANA symposium!!  :-*

Thanks also to all the other great people on this site who share of themselves with their time by posting replies as those are invaluable to us all as well!!!  ;)

Looking forward to our Spring Brunch... My next MRI is April so I hope to have conntinued good news to share... (new grandchild as well coming)....

Love, Mary (aka Grammy Mary)   :o

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1 cm rt AN (retrosigmoid Jan 2001 UMASSMed Ctr/Worc, MA)
Residual left--continued growing--finished 30 FSR w/Dr Loeffler (Mass Gen/Boston MA) on Oct 22 2007... --April 2010--tumor shrank to 8mm and is a dark spot!!  Latest Update: April May 2017 scan shows no change!--Next MRI 2020!!  Life is good!!

ppearl214

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #32 on: November 11, 2009, 11:49:46 am »
GrammyMary.. congrats! #2 forthcoming! Wonderful news!  :-*


Ok, all... you still haven't harrassed me for posting too much... I thank you for the nice words... truly.  Trying to figure out what mischief I can do (allowable in Mod-mode) for my 7000th ;)  Jan's gonna beat me to it anyway.... will see what she does.

thanks again all... very much!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Pooter

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #33 on: November 13, 2009, 11:12:43 am »
Heck, I'm still inching towards 1000.  You ladies have me whipped for sure.  I'll still throw my own celebration at 1000, though.  Who's with me?  :)

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Jim Scott

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #34 on: November 13, 2009, 05:11:26 pm »
Quote from: Pooter on November 13, 2009, 11:12:43 am
I'll still throw my own celebration at 1000, though.  Who's with me?  :)

Brian ~

Don't be concerned with comparing your post-count to other folks.  No matter what you may accomplish, even reaching a substantial post-count here, there is usually someone who will be ahead of you in some way.  So what?  Achieving 1,000 posts would demonstrate a real dedication to the ANA forums on your part - and I would certainly celebrate it with you, along with many others, including Jan and Phyl, I'm sure.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #35 on: November 14, 2009, 10:03:32 pm »
Brian - and Phyl - it's not a race  ::)

I'm just so happy that all of us contribute - and I hope (speaking for myself here - not you guys) that someone takes something away from at least a few of my posts.

I think it's very important for us "oldies" to keep posting so that the newbies can share in our experiences - and also be motivated to become "oldies" themselves.

Giving back is a wonderful thing; we all need to keep the cycle going.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

ppearl214

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #36 on: November 16, 2009, 06:43:26 am »
Oh, I know its not a race and this thread took a direction I wasn't expecting.... initial thought was that you all would be busting me for "posting" too much as I have nothing better to do with my time except for chasing users around here... or that I need a life.  No race... and Jan is correct... we post in the hopes that others can take something away from it, nothing more.

Post on folks. Your experiences and knowledge are so very helpful to others that may just be starting this "journey" and what we can share may be invaluable to others.

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Pooter

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #37 on: November 16, 2009, 10:54:56 am »
Oh yeah!  Well, my post count is bigger.. wait.. Not a race.  Not a competition.  Heh..

I get that it's not a race..  I didn't mean to imply that it was.  I'm glad that there are those people who stick around and contribute for those that are newly diagnosed and bewildered.  I was there once.  Now, I choose to come back as I can and offer whatever advice I can to help.  I'm glad there are Jim, Jan, Phyl and others that do the same..  It helps to make the knowledge continue on.

I'm still throwing a party at 1,000 posts tho..  Heh.  :)

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

leapyrtwins

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #38 on: November 17, 2009, 08:31:32 am »
Quote from: Pooter on November 16, 2009, 10:54:56 am
I'm still throwing a party at 1,000 posts tho..  Heh.  :)


And we'll party right along with you  ;D

I'd offer to have Steve knit you a hat in honor of this milestone, but you already have one.

We'll have to think of something else  ;)

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

ppearl214

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #39 on: November 17, 2009, 11:03:06 am »
Quote from: leapyrtwins on November 17, 2009, 08:31:32 am
Quote from: Pooter on November 16, 2009, 10:54:56 am
I'm still throwing a party at 1,000 posts tho..  Heh.  :)


And we'll party right along with you  ;D

am I invited to the Pooter Pah'ty? :D

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Pooter

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #40 on: November 17, 2009, 11:32:26 am »
Quote from: ppearl214 on November 17, 2009, 11:03:06 am
Quote from: leapyrtwins on November 17, 2009, 08:31:32 am
Quote from: Pooter on November 16, 2009, 10:54:56 am
I'm still throwing a party at 1,000 posts tho..  Heh.  :)


And we'll party right along with you  ;D

am I invited to the Pooter Pah'ty? :D

Phyl

I hope so, because we'll be on the Mod Leer.  ;)

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

ppearl214

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #41 on: November 17, 2009, 01:57:57 pm »
Quote from: Pooter on November 17, 2009, 11:32:26 am
Quote from: ppearl214 on November 17, 2009, 11:03:06 am
Quote from: leapyrtwins on November 17, 2009, 08:31:32 am
Quote from: Pooter on November 16, 2009, 10:54:56 am
I'm still throwing a party at 1,000 posts tho..  Heh.  :)


And we'll party right along with you  ;D

am I invited to the Pooter Pah'ty? :D

Phyl

I hope so, because we'll be on the Mod Leer.  ;)

Brian

I have the Mod Jet keys, my Pooter! ;)

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Pooter

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #42 on: November 17, 2009, 04:47:22 pm »
Quote from: ppearl214 on November 17, 2009, 01:57:57 pm
Quote from: Pooter on November 17, 2009, 11:32:26 am
Quote from: ppearl214 on November 17, 2009, 11:03:06 am
Quote from: leapyrtwins on November 17, 2009, 08:31:32 am
Quote from: Pooter on November 16, 2009, 10:54:56 am
I'm still throwing a party at 1,000 posts tho..  Heh.  :)


And we'll party right along with you  ;D

am I invited to the Pooter Pah'ty? :D

Phyl

I hope so, because we'll be on the Mod Leer.  ;)

Brian

I have the Mod Jet keys, my Pooter! ;)

Phyl

So, I guess you'll be there...  At least to let us in.  ;)

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

leapyrtwins

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Re: Post # 6000!!!!!!!!!! where to go from here?
« Reply #43 on: November 17, 2009, 10:18:56 pm »
Well, if Phyl lets us in, it's only fair to let her party with us.

Just don't bring the bull whip, Phyl  ;)

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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