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Author Topic: Article on facial rehabilitation  (Read 4055 times)

jerseygirl

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Article on facial rehabilitation
« on: May 10, 2011, 02:47:55 pm »
I just could not resist posting this article even though I personally do not suffer from facial paralysis.

http://www.medicalnewstoday.com/articles/224802.php

Hope it will inspire many people!

           Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

Jim Scott

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Re: Article on facial rehabilitation
« Reply #1 on: May 10, 2011, 03:24:19 pm »
Eve ~

Although the article specified that the study was conducted on persons with facial nerve damage resulting from childhood injury, it would seem to be applicable to AN patients suffering from facial nerve damage due to the tumor and/or surgery.  Very interesting.  Thanks for posting it.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Jill Marie

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Re: Article on facial rehabilitation
« Reply #2 on: May 10, 2011, 11:00:57 pm »
Hi Eve,

Interesting article, although as Jim mentioned it has to do with childhood injuries it doesn't mean it doesn't pertain to AN's as well.  My nerve was cut, not damaged but who knows perhaps it would work for me to.  It's always nice to have hope that new things will come along.  I live in Spokane so perhaps they would like to use me as a test dummy, he, he!  Thanks for posting the link, it often seems like those on this board have more knew info. for us then the doctors do, at least the ones I go to.  Jill :D
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Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.

saralynn143

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Re: Article on facial rehabilitation
« Reply #3 on: May 11, 2011, 05:34:51 am »
Jill Marie, you should absolutely contact the doctors.

The article reinforces what we have read here time and time again - there is not a one-year limit on facial nerve recovery.
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Jill Marie

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Re: Article on facial rehabilitation
« Reply #4 on: May 14, 2011, 09:01:52 pm »
Sara - Will look into it, can't ignore something that's in my own backyard!  Thanks for the encouragement!  Jill
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Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.
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