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Author Topic: No growth and still W&W  (Read 4964 times)

AIteach

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No growth and still W&W
« on: August 07, 2010, 10:31:44 pm »
I had my 2nd MRI at 6mos from diagnosis.  I am happy to say the tumor has not grown and my doctor said we can wait 1 year to schedule another MRI provided I remain relatively asymptomatic.  That was very good news to me.  I am hoping I can remain on W&W as long as possible.   ;D

Lauren
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diagnosed Feb. 2010
wait and watch
tumor: 6mm
Fall 2018 still W&W 8mm
August 2021 grew to 1.2cm
8/21 Treatment: Fractionated SRS

Jackie

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Re: No growth and still W&W
« Reply #1 on: August 08, 2010, 12:16:34 am »
Lauren,

Congratulations on your MRI, "no growth" is what we love to hear!!! You join a great group of Watch and Waiters!!!
Continued blessings.......
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

Jim Scott

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  • 1943-2020 Please keep Jim's family in your hearts
Re: No growth and still W&W
« Reply #2 on: August 08, 2010, 01:45:45 pm »
Lauren ~

Great news!  Thanks for sharing it with us.  I also hope that you can remain a 'watch-and-waiter' for many years to come.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

TJ

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  • 1.2 cm AN right side, CK November 2010
Re: No growth and still W&W
« Reply #3 on: August 08, 2010, 02:36:11 pm »
Lauren

That is good news.  I don't know who holds the record for being on "wait and watch"?  Last month I met a man at our AN support meeting that has been 20 years!  Hope we both can do that.

Good luck

TJ
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Barb909

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Re: No growth and still W&W
« Reply #4 on: August 08, 2010, 02:47:04 pm »
Lauren, that is great news! What relief you must be feeling at this point. Here's to breaking the record for W n W!

Barb
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Feb. 2010    4 x 8 x 5mm
June 2011   4.7 x 8.9 x 4.0mm
May 2012    4.5 x 9.1 x 3.9mm
Sept. 2013   5 x 10.1 x 5mm
Feb. 2015     6 x 13 x 5 mm
In IAC near cochlea
Mild hearing loss, tinnitus
W & W, thinking about treatment

Sheryl

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Re: No growth and still W&W
« Reply #5 on: August 08, 2010, 06:34:50 pm »
Lauren - as a fellow member of W&W - keep up the good work and keep us informed.  Good luck.
Sheryl
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9th cranial nerve schwannoma - like an acoustic neuroma on another nerve. Have recently been told it could be acoustic neuroma. Only 7 mm of growth in 18 years. With no symptoms. Continuing W&W

G_Man

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Re: No growth and still W&W
« Reply #6 on: August 08, 2010, 09:39:05 pm »
 ::)
Lauren Unfortunately they don't have the smiley for two faces toasting their beer mugs so this will have to do.  I am happy to be in the W+W club with you. 
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Diag: 08/11/2009 Left side
AN: 0.6cm.  65% Hearing loss, tinnitus, fullness, minor motion issues.
hearing loss over 25+ years.  MRI in 2000 showed nothing.
Optical Atrophy from infantcy
Watch and Wait.
As of 2017 I am on a 2 year MRI frequency.

Mickey

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Re: No growth and still W&W
« Reply #7 on: August 09, 2010, 08:32:49 am »
It`s nice to hear good news! Going to yearly MRI`s I would say is the next positive progression in W+W. Happy to be part of our AN club. Best wishes, Mickey
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LisaP

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Re: No growth and still W&W
« Reply #8 on: August 09, 2010, 04:59:05 pm »
Another "no growth", the third one I have replied to, congrats and I too hope to continue with the W&W brigade, next MRI is in Oct.

Best wishes,

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W
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