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Author Topic: Tumor-free!  (Read 2651 times)

Goldie

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Tumor-free!
« on: February 10, 2010, 08:15:36 pm »
Absolutely wonderful news!  I had my first MRI follow-up on Monday and got my results today - no sign left of my tumor!  They had left just a tiny bit that was stuck to my facial nerve and I was hoping it would eventually die off, but I didn't expect such good news so soon.  I can recheck in two years.  Even though I didn't expect bad news today, I didn't expect this either and I feel like a weight has been lifted.   :D 

I am dealing with dry eye issues (just not producing tears), but otherwise I have no complaints.  I have decided to hold off on a BAHA for now but may go that route eventually. 

Just wanted to share with my AN friends!  Even though I don't post a lot, this is always my first stop when I have things pop up that I want to check out, and you've all been very helpful.  Thank you.

Denise D.
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GK 5/06 at Mayo for small AN after balance and slight hearing issues.  Progressive hearing loss following GK.
3/09 - facial spasms began.  MRI shows tumor growth.
9/09 - MRI shows further growth.  "GK failure."  Translab 10/1/09 success!  BAHA 10/8/10.

leapyrtwins

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Re: Tumor-free!
« Reply #1 on: February 10, 2010, 10:59:22 pm »
Denise -

this is incredible news!

Congratulations!!!  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Cheryl R

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Re: Tumor-free!
« Reply #2 on: February 11, 2010, 11:19:49 am »
Denise!     So good to hear of the MRI results.       It is easy to get that "what if" thought and good news makes life so much easier!
I think of that for all who get good news even when do not write to all.
                                                           Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

lori67

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Re: Tumor-free!
« Reply #3 on: February 11, 2010, 12:29:41 pm »
Denise,

You must be so relieved by the great news!  Thanks for sharing it with us - we always like to hear when a member of the family gets good news!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Jim Scott

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Re: Tumor-free!
« Reply #4 on: February 11, 2010, 01:10:05 pm »
Denise ~

I'll be uncharacteristically succinct and simply say congratulations! Thanks for posting this great news.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Pooter

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Re: Tumor-free!
« Reply #5 on: February 11, 2010, 01:51:27 pm »
Woo woo!  Great news!  Congratulations!

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

epc1970

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Re: Tumor-free!
« Reply #6 on: February 11, 2010, 03:22:32 pm »
Denise!
That is AMAZING news! Congratulations!!!
Erin
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Mei Mei

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Re: Tumor-free!
« Reply #7 on: February 13, 2010, 06:42:02 pm »
That's great news.  It's nice to be rid of the tumor.  When was your surgery?
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

lawmama

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Re: Tumor-free!
« Reply #8 on: February 13, 2010, 06:45:40 pm »
Congratulations!!! I am so happy to hear that you are tumor-free.  I bet you left your appointment feeling as light as air.

Lyn
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9mm X 7mm tumor (left side), diagnosed 10-15-09
Retrosigmoid on 12-14-09 by Drs. Antonelli and Lewis (my heroes!)
Shands in Gainesville, FL
SSD, but no facial issues.  Mild tinnitus.

Goldie

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Re: Tumor-free!
« Reply #9 on: February 13, 2010, 08:12:16 pm »
Thank you, all! 

Mei, Mei - my surgery was 10/1/09, so I'm over four months out. 

Denise
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GK 5/06 at Mayo for small AN after balance and slight hearing issues.  Progressive hearing loss following GK.
3/09 - facial spasms began.  MRI shows tumor growth.
9/09 - MRI shows further growth.  "GK failure."  Translab 10/1/09 success!  BAHA 10/8/10.
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