Hi to all - I continue to try and decide on treatment; either surgery or radiosurgery. I read much on this site (which has been very helpful and I am going to send more questions in soon!). I must comment on this insurance discussion.
I have seen 3 "teams". All of the doctors are out of network for my Blue Cross plan. The hospitals are in network. My PCP had told me that it would be very unlikely that any specialists at this level, doing these procedures, would be "in network". She was right! Keep in mind also, that almost everyone's insurance plans have changed in the past couple of years, and NOT for the better. Had I had treatment in '09, I would have had much better coverage. Be sure you know what your plan currently covers. What was covered in December '09 may not be covered as of January '10! Call your insurance company and find out all the procedures they may require for out of network coverage. Even if you don't need referrals with your PPO plan, you may find you can apply for a "waiver exception" (or whatever your plan calls it) for better coverage for "out of network" when there is no "in network" specialist in your area. Ask, ask, ask - as you may get different answers each time you call your insurance company. Many of the people who answer the phones do not really know details like this. Try tallking to the pre-certification department or ask for a supervisor. Also see if there is a benefits coordinator at your place of employment that you can consult with.
One tip I heard from about the 5th person I spoke to at my insurance company: Even though the doctors office will schedule the treatment and they and the hospital are supposed to notify the insurance company, be SURE to make a call to your insurance company YOURSELF at least 24 hours before treatment. This is just reassurance for YOU that the insurance company has been notified so you will not be denied coverage is someone else dropped the ball.
Those on medicare at this time probably fare the best in coverage. Medical coverage is very scary at this point in time. It is NOT what it used to be.
Then, there are the doctors. I have not met anyone I didn't like or respect. I have seen very well respected, experienced people. BUT, if you mention your concern about expenses, their faces go blank and they can't look you in the eye. They don't want to discuss it, tell you to talk to their "billing people" (who won't say much, or they tell you to call your insurance company). When you call your insurance company, they tell you they can't help you unless they know what the cost will be, and that you should call the doctor's billing office! Then the billing offices again tell you to call the insurance company! I also love it when professionals, friends and even family say things like: "You can't think of the expense when your health is involved".
Are they KIDDING?
?
Just keep asking quesitons, I guess, and hopefully all the finances will at least not be life altering shocks! As for getting any "promises" in writing from doctors regarding what they will accept payments - I doubt that will ever happen. As one candid doctor told me - the whole system is broken. We all know that, of course!