Author Topic: goes to show...be your own advocate!!  (Read 1887 times)

tenai98

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goes to show...be your own advocate!!
« on: April 21, 2010, 10:22:29 am »
I get a call from my ENT's secretary wanting a recommadation for the physio therapist I had.  Like hummm I didnt do physio. I was my own therapist!! My balance nerve was dead before surgery!!  Get and keep your own medical file...we are all human and can make mistakes
JO
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

CHD63

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Re: goes to show...be your own advocate!!
« Reply #1 on: April 21, 2010, 12:37:42 pm »
Knowledge is power.  I have long been an advocate of keeping copies of all of my medical reports, including lab/imaging, etc.  Not only is it much more accurate, but readily available when going to visit a physician.  I mentioned in an earlier thread that I have compiled a concise medical information sheet, that includes my history, my family history, surgical/procedure history, immunizations, drug allergies, and regular medications/vitamins (including dosages and OTC ones) ..... all on one page.  I keep a current copy in my purse all the times.  I did one for my husband, as well.  The few times we have had emergencies, it was so important to have accurate information when we were stressed.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011