List your unusual symptoms, please.

[damien8]

My mother was diagnosed with AN about 6 months ago. T|he doctor said that the tumor was small, and they would keep an eye on it and do another MRI in November.

Since then, she has had a few issues of her face twitching and feeling distorted for about 30-45 seconds.

She has also had a couple instances where she has lost balance for about a minute.

I'm just wondering what you guys thought of this, and what you might suggest she can do at this point.

She's 67, and the doctor said that based on the size of the tumor, and he age, they do not want to do the surgery.

Any thoughts would be greatly appreciated.

Thank you kindly in advance

[yardtick]

Damien,

I responded to your other post.  I wonder if she has a facial neuroma.  I have a facial neuroma and I experience daily what she experiences.  It is annoying no doubt.  I would be worried if her face distorts and does not return to a normal position.  Her and I are experiencing hemifacial spasms.  I find when I am stressed they are more frequent and intense. 

Anne Marie

[cin605]

Metallic taste in mouth -draining of "fluid" from left side if tongue
Insomnia-YES
AN Fatigue-YES
Pressure behind eye on OP side-no
Pressure anywhere else on OP side-YEs
Tight or spastic muscles in head and neck-YES
Phonophobia  (Fear of noisy places)-Yes
Photophobia  (Fear of light)
Barometric Migraine or Headache-Yes
Migraine increase either in level of pain or frequency of attacks-Yes
Low or High Blood Pressure  (Please specify which)-Low
Blood pressure affecting headaches-no
Allergies to certain meds:-no
     Corgard
     Imipramine
Mood changes, depression, or Mania-Yes
Lack of ability to concentrate-Yes
Loss of intelligence  (May be neglible, not noticable to others)-Yes

[LisaP]

Hi,

Ok here is a list of mine, and I am still W&W.

lost of taste on right side or food tastes funny and not ha ha
pulling sensation on my right side of my face (AN on right side)
pulling sensation that sometimes goes down my right side of my neck and my right arm falls asleep
fatigue
insomnia
pain in ear and right side of face at times


daily symptoms
headaches
ringing in ear
dizziness
wonky head
trouble concentrating at time along with anxiety at times

Lisp

[TP]

Initially I had a metallic taste in mouth, that has gone away
AN Fatigue
Pressure behind eye on OP side
Tight or spastic muscles in head and neck
Phonophobia  (Fear of noisy places)
Photophobia  (Fear of light)
Lack of ability to concentrate
Loss of intelligence
Difficulty reading for long periods of time
No longer enjoy being in front of people - will do it but really do not enjoy it (like singing, speaking, getting attention), was a strong A personality, now prefer not to speak up and/or provide my opinion. Probably due to facial paralysis and SSD, can't hear half of what people are saying.