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Author Topic: Confused  (Read 1715 times)

Vtech

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Confused
« on: June 11, 2010, 02:32:44 pm »
Went to the specilist today. He said from looking at my films he is not sure how they can say I have a neuroma. He is ordering MRI with contrast to rule it out. the first doctor did not order contrast with the first MRI. The specialist has 27 years experience and said that to him he believes it might just be a pocket of fluid. I hope he is right. But in any event I am really upset at my first doctor for jumping the gun and scaring me half to death.

Laurie
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Age: 38,  Possible 3.5 cm neuroma found May 2010. waiting on second MRI to conclude either way . "Prey for the dead, but fight like hell for the living." (Mother Jones)

Jim Scott

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Re: Confused
« Reply #1 on: June 11, 2010, 02:44:53 pm »
Laurie ~

Although another MRI with contrast should help your doctor determine whether or not you have an acoustic neuroma, your experience demonstrates why we routinely advise newly-diagnosed AN patients to consider getting a second doctors opinion.  Like you, I hope you don't have an acoustic neuroma and the MRI should determine that, once and for all.  We're rooting for you!

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

satman

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Re: Confused
« Reply #2 on: June 12, 2010, 07:35:01 am »
sometimes doctors dont think before they speak and dealing with life and death on a daily basis i gues they lose the sense of compassion. just my 0.02
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kicked my little 8cm buddy to the curb-c ya !

Lizard

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Re: Confused
« Reply #3 on: June 12, 2010, 01:35:26 pm »
You must have to contrast, if it is an AN it will light up...
Hang in there,
Liz

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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
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Vtech

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Re: Confused
« Reply #4 on: June 12, 2010, 07:56:31 pm »
Well I hope this month goes fast so I can get the second MRI and have a conclusive answer. The waiting game will drive me crazy. Thank you everyone for your kind words.

Laurie
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Age: 38,  Possible 3.5 cm neuroma found May 2010. waiting on second MRI to conclude either way . "Prey for the dead, but fight like hell for the living." (Mother Jones)
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