Author Topic: Looking for Success stories from folks with large AN's and Translab approach  (Read 19475 times)

jerseygirl

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Sorry, Scott, my scar is  A LOT bigger than Nikki's and my cranial defect (opening in the skull) was so significant that I could never put my hair up, I always had to wear it down. During my second surgery, Dr. SH used bone cement and built-up that indentation a little bit so that it is not so obvious now.

As far as the true difference between suboccipital retrosigmoid and retrosigmoid, it is millimeters. I doubt it would be an issue to any patient. Every surgeon has the responsibility to get the best outcome possible for his patient and if he can do that with one versus the other, then be it.

                                       Eve
         










 
Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

leapyrtwins

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Eve -

thanks for the explanation of retrosigmoid vs suboccipital retrosigmoid.

I was always told I had retrosigmoid but I noticed that when the ANA listed me on their WTT list, they put me down as suboccipital.  Didn't really understand that they were pretty much the same thing, until now.

Scott -

there are lots of different scars on the Forum; some have posted pictures that you might find if you search.  Mine looks like a > directly behind my left ear.  It doesn't extend out too far towards the neck; perhaps an inch and a half at the most.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways