Author Topic: Thank you all, some progress on symptoms  (Read 2968 times)

texas

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Thank you all, some progress on symptoms
« on: September 19, 2010, 10:31:55 am »
I cannot thank you on this Bulletin Board enough for the info about the House Institute free MRI analysis from my earlier post about my symptoms, internal muscle jitters especially, not matching the dx of AN.  The House Institute called me back Friday and suggested I get a balance test as they think there are other possibilities for the small mass such as meningioma.  The severity of my symptoms are increasing daily & making my life difficult, so I am pushing for this to happen fast, but insurance moves slow.  There are so many possibilities even perhaps something not caused by the brain tumor.  If I truly have AN, I will return here.  You are my heros!  Hugs to all, Joy

leapyrtwins

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Re: Thank you all, some progress on symptoms
« Reply #1 on: September 19, 2010, 11:00:54 am »
Good luck to you, Joy.

Even if you don't have an AN, you are welcome here any time.

Please keep us updated on your "situation".

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

free2be

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Re: Thank you all, some progress on symptoms
« Reply #2 on: September 19, 2010, 12:44:57 pm »
Joy,

I hope you get the answers you seek and the sooner the better. Do keep us posted; we do care (AN or no AN!).

Best wishes,
Connie
Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable