Author Topic: CyberKnife Center of Miami  (Read 3148 times)

Maxana

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CyberKnife Center of Miami
« on: March 20, 2010, 03:54:02 pm »
Hello,
Next week i start a CK 3 time treatment in the CyberKnife Center of Miami.
Any advise ?
Thank You !

sgerrard

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Re: CyberKnife Center of Miami
« Reply #1 on: March 20, 2010, 04:43:30 pm »
Relax and don't worry about it.  8)

Also, if they give you steroids to avoid swelling reactions, watch what you eat, it can increase your appetite. Step away from those cookies!

Welcome to the forum.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

leapyrtwins

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Re: CyberKnife Center of Miami
« Reply #2 on: March 21, 2010, 11:28:06 am »
Maxana -

no advice from me; I had surgery.

Just wanted to say good luck and welcome to the Forum.

I hope everything goes well  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sunfish

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Re: CyberKnife Center of Miami
« Reply #3 on: March 21, 2010, 11:31:37 am »
I just finished my 3 CK treatments Thursday.  It didn't hurt at all, it wasn't scary.  I snoozed through most of it. 

No after effects thus far, except maybe some pressure feeling on AN side, more tinnitus on and off, and fatigue.  I'm hoping to return to work tomorrow.

My advice - lots of rest, and let folks help you.  Hope your experience goes as easily as mine!
Rt. side 14mm x 11mm near brain stem
Severe higher frequency hearing loss
I use a hearing aid (Dot 20 by Resound)
Balance issues improving!!!!
Cyberknife March17, 2010
Roper Hospital Cancer Center, Charleston, SC

Maxana

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Re: CyberKnife Center of Miami
« Reply #4 on: November 23, 2010, 05:38:45 pm »
I had MR result after seven months from the Cyberknyfe experience and seems the growth as stopped.
Good bless you all !  Max

Tumbleweed

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Re: CyberKnife Center of Miami
« Reply #5 on: November 23, 2010, 09:46:45 pm »
Fantastic news. Congratulations!

Best wishes,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

JLR

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Re: CyberKnife Center of Miami
« Reply #6 on: November 24, 2010, 06:09:22 am »
Great News! Congrats!! My CK starts next Wednesday. Hope mine is as uneventful as yours!! Joan

Palace

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Re: CyberKnife Center of Miami
« Reply #7 on: November 25, 2010, 02:55:21 pm »
Maxama,


I had a wonderful mentor whose name is Lorenzo.  He took me under his wing and was my coach.  Lor is now my close and very trusted friend.

Four years ago at the very end of November and into December I took a CD to listen while I had Cyberknife.  You'll have your custom mask made and the rest is history.

Yes, expect fatique and mine lasted one year.  The first week I couldn't tolorate sunshine on my head at all.  It felt like a burning sensation with my head and hair on fire.

I didn't take the steroid pill I was given.

Stanford called yesterday afternoon.  The doctor wasn't there and my latest MRI will be read by her next week.  They will have to call Dominican MRI Center as the measurements couldn't be read for some reason.  I was told that it appears my tumor is close if not exactly like last year.

I didn't want the Gadolinium injected into me or pay more monies out.  Paul on this forum has his MRI every year at the same time mine is due.  I warned him on the telephone in early October about Gad" and to make sure he would drink copious amounts of water right after the MRI with contrast.  I spoke to him about the dangers of this and why I wanted to postpone my MRI for six more months.  

He posted on this subject for us both and to warn others.  It's all there under the related thread.

« Last Edit: November 25, 2010, 03:04:04 pm by Palace »
22 mm Acoustic Neuroma (right side)
Cyberknife, Nov. & Dec. 2006
Dr. Iris Gibbs & Dr. Blevins @ Stanford
single sided deafness