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Author Topic: A lost book reference  (Read 1690 times)

Kansas

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A lost book reference
« on: November 10, 2010, 10:17:30 am »
Dear ones,
When I first started checking this website I found a wonderful suggestion for a book, and just knew I would come back to it.  Of course, I can't find it.  It was something about how to live with an invisible disease, and I had hoped it would help me a lot.  Maybe it was in an Emotional Disorders thread?  Most of us live with this feeling that others couldn't possibly understand the effects of an acoustical neuroma removal; I think this book would be a valuable find.
      Help, please?
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Shan1014

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Re: A lost book reference
« Reply #1 on: November 10, 2010, 10:26:17 am »
I am not sure if this is it or not.  I just saw this on a long-ago post from this site and ordered the book last weekend.  I haven't received it yet so I don't know it's quality.  I found it on Amazon.com

Living Well With a Hidden Disability: Transcending Doubt and Shame and Reclaiming Your life

Hope this helps
Shannon
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4.1cm AN 85% de-bulked on 3/09/10
Dr. Willis & Dr. Macias- Phoenix Banner Hospital
July 2010 MRI shows fast re-growth
(FSR) Stereotactic Radiation Novalis Tx 9/27/10 5 days
Hearing loss and slight Bells Palsy Left side
Experiencing balance, facial numbness, double vision, headaches, & fatigue

Lizard

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Re: A lost book reference
« Reply #2 on: November 10, 2010, 11:42:13 am »
http://www.amazon.com/Living-Well-Hidden-Disability-Transcending/dp/1572241322/ref=sr_1_1?ie=UTF8&s=books&qid=1289410632&sr=1-1

Here's the link in Amazon, I also posted it in another thread were you mentioned it.

Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

luvzmutt

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Re: A lost book reference
« Reply #3 on: November 10, 2010, 12:33:57 pm »
I've ordered it as well, now I'm watching and waiting my mailbox  ;)
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Right side AN diagnosed 7/10 - 6.1 mm x 7.8 mm
1st follow-up MRI 1/10/11 - 0.9 x 0.3 x 0.4 cm
2nd follow-up MRI 7/11/11 - 1.0 x 0.7 x 0.6 cm
Follow-Up 12/20/11 - no noticeable change
MRI 11/26/12 - .5x1.0x.6 cm
MRI 10//21/13 - 0.8 x 1.0 x 0.7
Some hearing loss AN side and tinnitus
NF1 & optic glioma
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