I missed the original thread, but stumbled upon it right now. I want to relate a slightly different perspective, arising from my recent experience. I had MRIs at 6 month intervals since diagnosis and GK. The radiation oncologist kept saying that the AN is stable. From reading my scans, I thought that there was a very slight upward trend, which I dismissed after being consistently reassured. Then after the latest MRI, I saw once again a slight increase (of less than 1 mm). Initially I was told again that this was within the margin of error. Now here is where I started questioning this. Yes, every slight increase has been in the margin of error, if you only consider 6 month intervals. However, if it is just statistical variation, due to instrument or number of slices etc., I would think that sometimes the trend should go downward as well, instead of consistently upward. i.e. there should be some fluctuation in measurements. So i raised an issue with this. Fortunately the radiologist report came to back me up, because the radiologist looked back not only at the most recent scan, but a few scans back. This is what caught finally the attention of the radiation oncologist, who sent it for yet another opinion, and started to sound worried.
Long story short, he has referred me to get the opinion of a very experienced neurotologist, who also thinks that it has been growing, albeit slowly. And the point of all this: You are very justified to question the results, be on top of this, and if you feel uncomfortable, seek a second and third opinion.
Having said all this, I hope that your schwannoma does remain stable and that you won't need any intervention.
All the best
Marianna